Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-08-2009, 03:29 AM #1
AintSoBad AintSoBad is offline
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Default I'm SO P'd Off!! (not like me)

Ya know?
What did I do?
I got some sleep this weekend, I think many of us did.....
OK, it's 4 something EST, and I'm wide awake, trying to put a pic up on facebook. FACEBOOK! Boy, do I have another name for that right now!
GrrrRRRR.

I've spoken to SOooo many friends today, who are in pain, in one way, or another. People, wether we got RSD, or nothing or something, we're ALL ILL, it seems to me, to be!

Why do tuff economic times bring this out? It seems in my parents days (God Bless them) that the "difficult" times brought out the best!

We've got a load of "whiners" amongst us now!

If, we're here, We Keep on "Chooglin", right?
We gather our strength, and go on. right?

Why is it, that those who have "Nothing wrong", hafto "bear down" on folk like us, and use us for "Traction"?
Ya know?
I'm gonna bite someone's foot soon!

Oh well.
Just a Rant.
If any of Ya'll have recognized the weakness around you, let's hear about it!
Here's YO chance!

If not, please, accept my apologies for my rant, and carry on....

Blessings to all......

Pete
Asb....??
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Old 06-08-2009, 06:50 AM #2
daniella daniella is offline
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Hi. It is ok to vent as it helps sometimes. I can't say I got a lot sleep just not up to writing much I guess. I do know for me with my past and current I am surrounded by people with problems in one way or another. I think everyone deals with problems in different ways. I know for me I have to work on my outlook as I often am a Debbie downer where as some I know can have such a hard fight but have such a positive outlook. Sometimes I do feel that the way one looks at things can change the outcome. Of course certain things like pain or illness one can't "will" themselves to get better through. I have no idea if I am making sense.
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Old 06-08-2009, 08:45 AM #3
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Hi Pete,

I totally understand what you mean about people with nothing wrong with them coming to us to complain!!!

I have a few people in my family that always come to me when they are having troubles and it is sooo frustrating at times!! They know for a fact that I have RSD and am under quite a lot of stress with school etc but still think that it is OK for them to come to me and complain!!! My aunty is really bad. When I tell her that I have been in hospital for a treatment or something, she always changes the subject back to her and says she feels terrible or something. She is the type of person that is ALWAYS complaining and if you have a cold, she has Pneumonia!! It is so frustrating at times, especially when I have a lot going on!!!

I honestly don't mind helping people but it's really frustrating sometimes when you don't feel well and someone is always saying that they are worse than you or something! I'm sure some people in my family think it's a competition to see who has the worst problems when it isn't at all!!!!

My mum is always telling me that I need to stop helping people as much as I do when i'm not feeling well but I find it hard sometimes. I guess I am just one of those types of people that likes helping people and hates telling someone that I can't do something as i'm not feeling too well. I was told that I have a 'Type A' personality and I guess it's true!

Thanks for bringing up an interesting thread, Pete and for allowing me to get things off my chest a bit also!!

Alison.
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Old 06-10-2009, 05:32 PM #4
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Confused Learning to deal!!

May be some of us know the right way to deal with pain and some of us haven't had long to learn how to deal with their own rsd and pain related issues/Maybe sometimes we try to be funny but find out later it wasn't funny. Maybe there are alot of issues with loved ones families that aren't going too great now with more than 1 family meember and I thought that there were places to go and vent!! oops!

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Old 06-10-2009, 08:41 PM #5
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So true, I've started to begin the talking when talking to friends. the reason behind this is if I don't get my friends involved in talking about themselves at the beginning, I end up complaining. So, I start by asking about them, then by the time they finish complaining, commenting, etc, I can just say I'm fine and end the conversation. I hate it when the first thing out of everyones mouth is how are you today? feeling better then yesterday. Believe me, If I felt better then yesterday that would be the first thing i would tell them. That way, when I really really feel bad I don't mind complaining, because I haven't been doing it. I know it may not be fair to my friends and family, but I get tired of being everyones main concern.

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Mary
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Old 06-11-2009, 06:40 AM #6
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Heart Amen to That Sister!!

Thanks Mary Yes I get so tired of hurting. Trying to learn new techniques to deal and with the high blood pressure problems way too high and then way too low, I feel Like a limp noodle and I am doing my best to stay at work today all day. Then my doc said to cut cymbalta in half for blood pressure so now in m0re pain than I have been in in a long time!! But Life goes on!!
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Old 06-11-2009, 07:18 AM #7
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Quote:
Originally Posted by ali12 View Post
My mum is always telling me that I need to stop helping people as much as I do when i'm not feeling well but I find it hard sometimes. I guess I am just one of those types of people that likes helping people and hates telling someone that I can't do something as i'm not feeling too well. I was told that I have a 'Type A' personality and I guess it's true!
Alison.
One of the life-lessons I tried to teach my daughter as she was growing up is that is it OK to say "No" at times. She was trying so hard to please everyone, help everyone, do it all, that it led to a stressful existence. So many things going at once, that there was no time to just be "off duty."

She just turned 24, and I think she is better about that. But she is still a real go-getter. Unfortunately, she got that from me as well - Type A personality. I have learned, with the RSD and other problems, to limit my promises to help and only do what my body will tolerate.

Try to remember, Alison, that you need to be the first priority in your life.

Mike
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Old 06-11-2009, 08:11 AM #8
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Default Hi Pete,

There are so many people going through so much today that by the time we get a word edgewise with them telling us their story, we just think, what the heck, don't add on to their problems by telling them ours.

We have more sick people, finanicial woes, divorces, loss of lives and it is just overwhelming to everyone in our lives.

I spent over 8 years being so bad off that everyone could tell what shape I was in so I didn't have to tell them. They thought I would go before Bill so now that I am better, I am ok with not complaining to them too much.

We look normal most of the time so people think their is nothing wrong with us.

There are people with very minimal problems though that you do get tired of hearing about them. I have one in my life like that. She calls me about her work, her house they are buying, and her kids and it's only to complain and her life is very good. I don't get a word in edgewise with her.

I talked on the phone last night for 2 hours with a friend that her husband came home Monday after 13 years and said he wanted out. She has to sell their home and liquidate her store so I was ok with listening to her.

It kind of goes both ways I think. Maybe we can listen to one that is complaining and then one comes along that we can complain to.

Ada
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Old 06-11-2009, 08:26 AM #9
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When it gets too much for me, I too sometimes think --when I hear people talk about their problems-- but what the hell do you have to complain about, really? You're healthy, you at least *have* your life to lead, you're in full control of it and can do whatever you want whenever you want, WTH!? Then I try and calm down instead of getting all worked up about it and think... well, life goes on, apparently, with or without my RSD. So I try and look at it differently, and boy do I try, because it's hard. The problems that others are having might not compare, but people are going through these problems nevertheless and these problems are very real to them. They are just living their lives and you cannot be angry about that. I am not living my life, however, I got stuck with RSD and I have to face the fact that others can and will go about life as usual. It's their right.

I cannot always see it that way, though... I try to.

Then there are others, you know, the kind of people who think that things happening to them are the worst, always the worst. People who do not have the slightest bit, not even the slightest bit of consideration for you - at all. People who don't listen to your problems and who love to hear themselves talk about theirs. Those are people I ban out of my life. I don't even think twice about it.

But...
The others are worth me making the effort to put everything into perspective, even my own issues and worries and problems. And it can be so soothing being a witness to other people's lives, to know that life goes on around you, that there is life going on around you... even when you only are on the sideline, getting older, being disabled and in lots of pain.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 06-14-2009, 11:28 AM #10
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Angry Re/I'm So P'd Off!! (not like me)

Pete I aggree with you if RSD is not enough then we all have to face the other problems in our lives! I just found out two days ago that I might have breast cancer. The waiting is just driving me crazy! Also my Mom is in the last stage of Alzheimiers. My cousin Sue who is like a sister to me and I love her dearly, her second husband of just four years now just found out that he has pancreatic cancer. The Dr's cannot do surgery on him because the tumor is to big and it would kill him right there on the O.R. table. Yes Pete I am P'd off too right now! Some things in life are just not fair! Hang in there and I will to. Breezy55
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