Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-20-2009, 09:54 PM #1
debbiehub debbiehub is offline
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You dont say where you live- there could be a support group in your area? Have you checked the RSDSA site-they list the support groups

I am lucky to have people who support me but I am still very lonely at times because they really don't understand the severity of this disease and I sometimes just need to talk to other RSDers who get it!

You can always come here to vent- we use to try a live chat but couldnt get it together...Maybe we could try again?

Debbie
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Old 06-21-2009, 12:45 AM #2
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Daniella,
Even though I'm married with 5 kids, 2 dogs, a cat & friends a work, there's always that 'lonely' feeling thanks to the wonderful world of RSD...
Rich.
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Old 06-21-2009, 06:41 AM #3
daniella daniella is offline
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Hi all and thanks. I am going to try to push myself to sign up for something. I made a call to a volunteer thing that is for an hour and half 2 times a week so I am going to see if I can commit. If I can't at least I tried. I am able to do so much more but still to make a firm plan is hard. I know of a few rsd support groups and I may try one but really I want to try to involve myself in "normal" things if that makes sense. Having support and I would love support from people who understand is so amazing but at the same time I want a life outside of rsd. I think for many an animal is very nice but for me it is a no. I love other peoples animals but for myself it does not work aka why my dog lives with my mom. I tried that years ago.
On a side note I know even before my health problems there was a sense of lonely with in even around people. So I am trying to work on the reasons behind this and find a peace within. Sending many warm thoughts and thank you
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Dew58 (06-21-2009)
Old 06-21-2009, 03:33 PM #4
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 06-22-2009, 05:14 AM #5
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I just have to thank everyone here for their PM and thoughts always. You are such a wonderful group of people and I appreciate it so. I am here for anyone too. You can contact me anytime. Sending thoughts for a good start to the week for all. Thanks again!
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