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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Dear All
I have been reading and posting on this forum since last summer, a few months after I was diagnosed with CRPS. I have decided not to continue to post on this forum. I will dip in and read periodically but I clearly don't fit in here. I don't know whether other people don't like my posting style or whether there is some other issue but there seem to be a minority who take exception to most of my posts and respond in what I think is an unreasonably aggressive way. Like everyone else with CRPS, I have more than enough to deal with in my life without this kind of response to my own thoughts and experiences which I think are just as valid as those of others. I wish all of you well in your lifelong and very personal battles to manage your CRPS. Kind regards Gymjunkie |
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#2 | ||
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Member
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Yes, it seems I feel the same way. I will probably leave also. It's seems like I have no valid questions to ask either.. Like med amounts and things like that, I mean I am just asking for opinions.. Thanks again Lisa
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Magnate
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Hi. I am confused on exactly what you are refering to and of course you both have to do what is best for you. I just hate for people to leave or not get the support they deserve because of someone else or a negative response. If you feel more comfortabel or just need a buddy I am a PM away. Sending better thoughts
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#4 | ||
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Member
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I am sorry you both feel that way. I have never gotten a bad feeling on this site. There are times I posted a question and no one has (or very few have) responded. That only means I asked something where people have no opinion or experience.
Myself, I will not write unless I feel I have something to add that I think is meaningful. Of course, we all need to do what we think is right for us. I wish the best to you. Mike |
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#5 | |||
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Member
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I am speechless???
__________________
. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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#6 | |||
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Administrator
Community Support Team
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Hi
if there is a problem with anything on the forum it would be appreciated if you would report this to the mods please. making "farewell" posts like this just leaves members confused and concerned and really is not fair to them at all this forum is filled with many very caring members who go out of their way to be helpful and supportive to others, and we commend them for that ![]() if you aren't happy here, we regret that your experience hasnt been all you may have hoped and wish you well this thread is now locked. if those who are leaving have anything further to say about why, please PM me and I will be happy to help if possible thank you
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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