It's great to hear that you have that kind of commitment for your wife. You don't see that kind of dedication much anymore nor do you see the level of comprehension for someone with RSD as the kind you have for your wife.

She's very lucky to have you care for her on a daily basis.

thks 2 all of u 4 replies! it's so good 2 talk 2 "people in my own shoes"! not stayin' up late tonite.... will see my PM dr & psycholog. tomorrow..... hope everyone is feeling better!
hugs

Jimking you are not failing your wife. I am sure you are her hope and safety. I have that in my mom and it is a great gift. It took me awhile to say I would go to a psych. My mom pushed many times and I would not. I think I thought if the docs would just fix my physical health then my mental would be better. Now this is true but was not happening and how I was dealing with my physical health was not in a good manner. I think I remember you saying how your wife does not like to open up or come here and write but really if she would feel comfortable PM me I am here. I think the more one isolates and makes their world smaller the harder it is to get out of it. I have been trying to push myself to meet new people without conditions like this and let me tell you the fear/anxiety does set in but I know I need to try to push through. Also since the RSD limits ones ability it is important I think on the better days to fill them with as much "normal" as possible so that when the crud days come it does not take such a mental toll.

ur entire 1st parag. is me - this whole 1st yr! i've lost myself!! no longer work.... can't stand crowds any longer.... & i was an outgoing person! seeing psychologist, thank goodness! and we have a good God!
u take care!

Hi Nancy and Welcome,
Besides seeing my psychiatrist once a month, the last 5 years, I'm taking a lot of vitamins anti-oxidants etc. I've seen a female Dr. that does bio=identical hormones and does all the tests. I'm 61 I have full body 13 years. I have spells of crying still, it's rough to loose your health. I use meditation, prayer, reading, music, keeping in touch with friends, scented candles, hand and feet waxing, epson salt baths, essential oils, massage therapy, swimming keeps me mobile and feels good. visualization, bio-feedback,
Basically any kind of distraction, my soft furry cat, I'm grateful for being where I am, my health seems to be getting better, not worse. I have a brilliant Dr. I going to try hyper baric oxygen chamber in his new clinic.
Before you settle with WC you might talk to others that have gotten lifetime medical care, and put in certain treatments that are not normally covered by insurance, but work really well for RSD patients. Take care, loretta

I am really bad today. The bill collectors call incessantly from 8 am on. Each call reminds me of my RSD, and the resultant financial ruin. Sometimes I think it's a wonder I don't drink myself silly every day.

Hi NJSteve,
I am not 100% sure about this, but under the Fair Debt Collection Practices Act, you can write what is called a "cease and desist letter" to collection agencies and tell them in writng to stop calling you. This is your right as a consumer. I think the lender has to have turned your account over to a collection agency...so you would write the letter to the collection agency.

You have valid justification as you have a medical condition that is being aggravated by the harrassment. You don't even have to share that info withthem..you just need to request them to stop!!!

Upon receipt of the letter, I believe the collection agency must halt their communication with you.

I hope someone on the boards may have more information on this, but it worth looking in to...The last thing you need is to be harrassed!

Take good care...
Hope4thebest

I agree that you should call and explain your situation and how this impacts your health. Have you discussed that due to health issues you are not able to pay or have you not explained this to them? I just ask cause that alone may stop them from calling or if you could even set up any type of payment even like 10 a month. I don't know if that is possible. I know how life things can add to this and really bring on the mental and physical pain. Stay strong and keeping take care of you. There is only so much one can do.

This is so hard for me to write. As i read all of your posts, its me. I've had rsd for 10 yrs now and I can't stand myself. I think about how I used to cook holiday dinners, make homemade cookies for my kids. I always said when I had grandkids I would do the same just like my grandmother. Now I'am luckey if I can make supper. I try to hide the crying and anger. Always a ''HAPPY FACE'' but its a lie. My husband is good to me, but he won't talk about the rsd and how I feel. I know its because he is so afraid of what may come next. I feel so bad for all of you. It makes me even sadder to know other people are facing this monster.


Sue K

It's been roughly 15 months since I requested a SSDI hearing. My lawyers office suggested perhaps penning a letter explaining my financial situation in an efffort to expedite the hearing. It can't hurt to try.