Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-17-2009, 12:43 PM #21
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Love you Ali,
Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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ali12 (08-20-2009)

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Old 08-17-2009, 01:05 PM #22
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Quote:
Originally Posted by ali12 View Post
Thanks everyone for your help and support! I'm trying to forget about my old 'friends' as I know they aren't true friends seeing as they haven't been with me through the rough as well as the bad times though it is hard. I now know that I don't need them to cause more stress in my life ... I have enough already with the RSD and everything else. Like the quote say "The only people you need in your lives are the ones that prove you are needed in theirs" - guess I need to start realising that more!!

My mum and I had a lengthly discussion today about what I will be doing from September etc and we have both decided that it would be better for me if I could do Science and Citizenship at home. My mum is going to enroll me into a science and citizenship ship course tomorrow. It will cost about £400 which is a LOT of money but hopefully, it will be worth it. The course is all online and they will send paper work and asignments out for me to do as I go along. I'll still get the full qualification that I would in school - it should just be easier and will free up more time for hospital appointments etc.

We go back to school on the 9th September so my mums going to write a letter to my school telling them what we are going to do. Hopefully they will be understanding. They haven't supported me through any of this so I think we don't have any other choice. At least at the school centre, the teachers and other kids are understanding about my ilness and don't judge me.

Lifes going to be crazy from September but hopefully, with the help of my tutors and doctor, we will be able to come up with a plan that will work and i'll be able to get through all of the course ! My first placement will be in November and will last 10 days. I'll be working in a nursing home with old people so i'm looking forward to that as it should be interesting!

Tomorrow would have been my grandads Birthday so I think it's going to be a pretty tough day. He passed away last November after an heart attack and I miss him a LOT! They say it gets easier within time but I don't think it does ... I still spend many days crying about not being able to see him and say our final goodbye etc. My nanan and I are going away next week to a caravan that we have - we were going to go this week but it would have been too stressful for us probably. It's SO hard knowing that i'll not be able to see my grandad this year on his Birthday.

Thanks again and i'll let you all know how I get on when I start in a few weeks time!

Ali,
it's so difficult to say "goodbye" to a beloved, especially if you're not or weren't there to do it in person.

I've lost many friends, and, it seems that it just keeps on happening, with folks that I love, and don't have that final "goodbye".

Trust in God, (if you do), or a higher power, to let those beloved to you, who have passed, know how you feel about them!
And, THEY WILL!

They haven't left your life, except in a physical way.
My Mom died when I was 15, and my dad in 92.
my Sister a decade ago or so.
I still "communicate" to them!
Don't "shut them out"!

They're still there for you!
Open your self to "hearing them".
And, you'll know,
that, everyday, in everyway, they love you, as you do them!

And, you can relax and take comfort in that, sweet girl!

Cry if you need, but, also, feel their "warmth" around you!

Because they are....
with you forever....


pete
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ali12 (08-20-2009)
Old 08-17-2009, 10:53 PM #23
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Dearest Ali,
I know how much you miss your grandfather. He was a very fortunate man to have a granddaughter like you and to receive all the love you have for him, and I am sure he loved you with great depth.

I lost my beloved sister two Novembers ago...if you go back to a recent thread titled 'full moon' you will see a post I wrote about my sister, and how we can still reach out to eachother , even though she has passed on..

Ali, you may want to light a candle on your grandfathers birthday and tell him how much you miss him and love him..the quiet glow of the candle will comfort you and the words you say will help you feel complete....

I so look forward to hearing about your placement working with the elderly, and the on-line classes you'll be taking..you're on your way, Ali !!!!

Many hugs
Hope4thebest
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Old 08-20-2009, 03:25 PM #24
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Thank you all SO much for your support - I really appreciate it and what you said brung tears to my eyes! It's so nice being able to talk to people who understand what i'm truly going through!

My grandads Birthday was pretty tough, I guess it's times like this where I miss him the most. I'd just give anything to be able to go to my nanans and see his face one last time and let him know how much I love him. I never got the chance to say goodbye and tell him how much I loved him when he died and thats one thing that I have always regretted.

It was my nanans Birthday the day before my grandads so we went to visit her and take her presents round. Whilst we were there, my aunty and uncle and cousion and her kids were there. We went and took some flowers out into the garden. When my grandad was alive, he said whenever he died, he wanted his ashes to be put in the garden so my nanan did and we got a rose bush that we named after him. We put the flowers next to his ashes. It was pretty upsetting but I know it is something my grandad would have wanted us to do.

Whilst we were in my nanans house on her Birthday, some of her cards kept falling down. I know it sounds strange but it was sort of though my grandad was communicating with us and letting us know that he was still looking out for us and was wishing my grandma a happy Birthday. I never believed in ghosts or spirits before my grandad died but I do now - theres been quite a few things that have happened that made me think my grandad was still with us.

I went to the movies with my friend on my grandads Birthday. I really didn't want to as I just didn't feel up to it but went as I told her i'd go. She kept asking what was wrong and I think she knew I wasn't my normal self, even though I tried to be. The upset of my grandads Birthday had caused a bit of a pain flare so I just didn't feel up to doing much. They always say that it gets easier in time but it doesn't seem to have at the moment; I still spend many hours crying about the loss of my grandad and wish every day I could just go and see him one last time.

I got my letter from college today with all of the important dates on the course. I'll be starting the course on the 9th September and on the 23rd, I will have a placement induction day in the morning. On the 13th October, my mum will have to attend a parents briefing and on the 19th, we will have a visit to a care home. In November, we will have an health and safety training day at a school near us which will last a full day and then my first 10 day placement will start on the 23rd November to the 4th December. In January, we will have a trip to an hospice and social services and in February, we will have a 2 day award in food safety. On the 29th March, we will have an 8 day placement which will run til the 1st April. In July next year, we will have another placement adn then a summer school which will last 5 days. In August, there will also be a period for us to catch up with any placements that we may miss due to ilness etc. In between all of that, i'll have to go to college on a Monday, Wednesday and Thursday AND do all of my school work on top of that so i'm going to be extremely busy!!

My mums managed to find a Science course that I can do online that she's going to get me enrolled onto and her boss has said that I can do a Citizenship qualification at her work (my mum works for the youth service). I don't think the school will be right happy with us doing that but it will be better for me as it will be less stress and i'll get more free time to rest and for hospital appts etc.

I'm hoping that i'll be able to cope with the course OK. I really want to prove to all of the doubters that I can do something even though I have RSD and it's something I really want to do so hopefully, it will be worth it!!

Thanks again everyone for your support, it means a lot!
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