Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-30-2006, 07:49 PM #10
daylilyfan daylilyfan is offline
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Join Date: Oct 2006
Location: ohio
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daylilyfan daylilyfan is offline
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Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
Default yes

yes, topomax replaced the neurontin for me. Only it has worked much better. Depending on how I have done, it has been lowered or upped on dosage. You have to go slowly with it also. Some people think they will not be able to take it -- it does make you feel funny at first. But, you do get used to it, and those feelings go away.

I have had RSD twice.. I first had it in my foot, and it gradually went away almost completely. I was down to 50mg of topomax a day then. When I was re-injured, and RSD came back, I was able to go up fairly quickly to 200mg, and now I am at 250. I really believe this medication is why I have not experienced any burning feeling this time - since I was already on the medication when RSD came back.

Between Topomax and calcitonin nasal spray, it covers the worst of my pain. I do have some problem with not being able to SAY a word now and then with the topomax, but my thinking is fine.

Jules
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