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Sanctuary for Spiritual Support This "Sanctuary" is a place for people of all spiritual beliefs and faiths to offer support and compassion to each other in the form of prayers, meditation, and expressions of spirituality. This forum is for support, not religious debate. |
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#1 | ||
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Senior Member
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My mom is very ill in the hospital. She has several serious underlying medical conditions but was brought in the ER from the nursing home for non-responsiveness and fever of 103. In the ER they found that she has a urinary tract infection (her third in a five weeks) and an additional weight loss of nine pounds since June 30. She has a big red balloon-looking thing on her elbow which they told me is sepsis . The ER doctor said she is in terminal decline which I have never heard of. She now weighs 104, in March she weighed 123, June 30 she weighed 114 I think it was. She is like a feather in the bed, it is almost impossible that she is so thin and frail.
Hospice has been called in, we have a living will and DNR, and the doctor has put her on comfort care. I understand that this all means that her infections and other issues do not get treated. I have also been advised to withold IV fluids (my mom cannot swallow) because I have been told to give them will prolong the inevitable. My mom is on morphine because she is in pain. This is so horrible. We have been helping my mom repair her house to make it more senior-friendly and now I am being told she will not make it home. She may never see her nice clean house or new floor or paint colors she picked out. I can't believe this is happening. I feel so helpless. I can't stand the thought of my mom being thirsty. I am thinking of telling the hospital this and that I do not want her fluids restricted after all, but then I don't want her to suffer, either. But I don't want to be selfish, and cause her pain or make things worse by giving her fluids that do nothing for her, but make me feel better. Does anyone have any suggestions? She sometimes opens her beautiful eyes but doesn't see me. This is so very hard. I just wish I could make her all better. |
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#2 | |||
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Elder
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I am so sorry you are going through this sad time. Your mom and you will be in my prayers today. I pray that He will give you the wisdom to make a choice and be at peace with it.
Anything I'd have to offer you would only be my personal opinion. Perhaps you could ask the doctors to be more specific as to what would happen if you withdraw fluids, and if you don't. Are the fluids considered "treatment/medication"? Or are they considered "nourishment"? Your mom may not see her remodeled home, but she will have had the knowledge you were helping her with it, and the joy of anticipating it.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#3 | |||
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Wisest Elder Ever
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I'm so very sorry. I've been exactly where you are and know the pain and feelings of guilt it brings. We went through this with my Dad. Your Mom and you are in my prayers.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#4 | |||
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Member
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It's so hard when we can't take away the pain or suffering of our loved ones. I went through this with my Mom..she passed away this last May. I am praying that God will hug you and give you comfort.
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God never promised a smooth journey, just a safe landing! |
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#5 | |||
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Senior Member
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If your mom has a living will and a DNR, you are honoring her wishes. Please do not second guess yourself. Know that you are being her voice now that she cannot speak. I know how hard it is. I went through the same thing with my Grandma in 2009.
Ask the hospice people about her state of consciousness. They are very knowledgeable and helpful and I am sure they can ease your mind about what she is aware of (i.e. thirst, etc). Hugs and prayers to you.
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Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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#6 | |||
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Legendary
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My thoughts and prayers are with you at this time, at a time like this it is hard to face. One the many things that will help you and your family is to think of all the goods things you have had with her. Please give here a great big
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. "Life without God is like an unsharpened pencil -- it has no point.
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#7 | ||
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Senior Member
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My dear mom passed in early August, within days of my post here. I really appreciate everyone's support.
Something that really helped me with this issue was learning that when the body is actively dying, as they told me my mom was in that stage, the organs are shutting down. This means, the nurses told me, that the organs are not functioning....putting food or fluids into the body at this point can actualy cause pain and discomfort. With regards to IV fluids, which I was grappling with, the IV fluids cannot be processed by the kidneys because they are shutting down, so the fluids end up in the lungs, causing discomfort. Once I realized that hydrating my mom with IV fluids was not giving her comfort but was, rather, causing pain and not hydrating her at all because the fluids were ending up in her lungs, I let go. I didn't know any of this and it was a huge help in deciding what to do. Hospice of course will tell you what should be done because death is inevitable (I was told my mom had less than a day...) but I was not told why. For some reason, the "why" helped me make the decision I needed to make, hard though it was. Perhaps this will help someone else. I wish everyone peace, and gratitute for your support. |
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"Thanks for this!" says: | Blessings2You (08-29-2011), Chemar (08-28-2011), Darlene (08-29-2011), DVORA65 (09-03-2011), hollym (08-30-2011) |
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#8 | |||
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Legendary
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__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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"Thanks for this!" says: | hollym (08-30-2011) |
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#9 | |||
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Senior Member
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Quote:
Hugs and peace to you. ![]()
__________________
Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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"Thanks for this!" says: | Blessings2You (09-01-2011), DVORA65 (09-03-2011) |
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