SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 04-21-2010, 01:45 PM #1
abrown176 abrown176 is offline
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Default is your battery flat or can you feel it sticking out

Hi everyone! As you all know I had my battery fixed for the second time. It now is sticking out at the top. I can actually grap the top and hold it with my thimb on top and finger on back. I am so tired of this . Will you please tell me if you don't mind were you have your battery and to the degree you can feel it through the skin. Like if you rub over it and just feel the edges or is there a very noticable line like a big dip or ridge. Thanks for all the answers as I try to figure out were to put it or take it out.
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Old 04-21-2010, 07:24 PM #2
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I, too, can feel my battery and grab a little of it with my thumb and finger. When you look at it, you also can see that something is 'sticking' out and it's not flat. I've had the implant for about 10 weeks and the battery area is still tender if touched too much or bumped. I'm not sure if the tenderness will ever go away since it isn't flat. I'm hoping that it will as the skin gets a little tougher around it but I don't know that for certain. Hopefully, someone will post who has more experience with this than I do.

Hang in there!!!
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Old 04-21-2010, 07:37 PM #3
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Thanks the first time they put it in in April 09. It was flat I could only feel one corner of it. I waited till October and had it moved because evertime I set back it sent pain all through my body. It was right under my bra line. Now it is above my waistline about middle ways between both spots it has now been. I can feel it like move and it feels like something is ripping when I lay on my right side were it is. I am so discusted. I just want to rip it out. But I want my life back. I want to enjoy life again and this SUCKS! Thanks for your help. Maybe something can be done.
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Old 04-22-2010, 05:52 AM #4
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Heart abrown.....

You've been so patient as you've gone thru your revisions!
Things were looking so good at first!

Like kzlrogue said, mine was pretty tender there until the stitches disolved and i didn't even want to touch that area - eck!
Now tho, it's not so tender to the touch. Yes it sticks out a tad and when I put my hand where it is I can feel the whole outline of it right under my skin (may 1/8th inch or so). It's certainly something to get used to.

But, in your case, I'm concerned regarding this 'ripping' feeling you are describing. Is this only at the pocket site? Are your leads doing ok?

I so desperately want this to work for you! You've been thru so much!
I'd continue 'pestering' your doctor who implanted it and let him know about the ripping feeling and that it seems to be rotating or changing positions. The sooner he can get to it the better. Maybe it's just a matter of re-stitching something in more secure.
You've certainly got every right to get aggrivated with this!

We have a new member who's had 3 SCS's and I think she'll be able to give us some direction! Her name is Pooh and she recently started a new thread here. Feel free to ask her what she thinks may be going on. She may be able to give us some tips on what to say to the doctor and other suggestions.

......I want to keep saying 'hang in there my friend'.....but how much is a person supposed to take!?

I do believe in my heart we'll get to the bottom of this.

One thing that is frustrating with me right now is that I can tell I've lost so much muscle tone in my hip/butt/back due to the post op restrictions. So now when I try to slowly incorporate new activities into my lifestyle, I have to go thru the muscle pain until I can get the muscles toned back up
....can't WAIT to get back in the therapy pool!!

TTYS my friend,
Rae
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Old 04-22-2010, 10:59 AM #5
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Hi new here.
Abrown176, I have a SCS and my battery sticks out, so does the wiring in my back....extremely unpleasant, unfortunately my Consultant says its because im thin. I got it implanted originally a year ago but had to go back because of the battery, the pain was terrible, so they brought me back in a replaced and padded it, so it cant move.

I had a new lead put in amonth ago and the area around the battery and wiring is still very tender but he says this will take a while and all my 'insides' have to heal even though the wound is healing. So the tenderness should go BUT I would 150% go back if you can feel it moving in any way.

Rrae, I have the same problem, my muscles have weekened so much over time, I get cramp from doing the simplest thing.
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Old 04-22-2010, 04:26 PM #6
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Laugh Hey Livewire!

How GREAT of you to drop in!!
We need all the input we can get! Please stick around! You've got great info to share!

You know, I sure wish they'd do it 'right' the first time (Re: padding it, and some even get their IPG's put in a special little 'pouch' so scar tissue won't invade)
It's so frustrating seeing all these folks having to go back for all these revisions! THIS is why we need more and more folks who've had SCS's for some time now (a year or more at least) to come here and offer advice/suggestions.

Again, thanks so much for taking the time to post some support!

Hope to 'see' more of you!
Rae
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Old 04-22-2010, 05:40 PM #7
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I have had my SCS since July of 2002
My battery sticks out I can hold it between thumb and fingers like when one is picking up a coin . I can kind of cup mine with half of my hand. I think it is good idea for everyone to say where the battery is placed . Mine is under left arm below arm pit where bra line is. I can feel it press on side of rib when anything touches it . when I have to wear bar I prefer sports bra as they have thicker strap and it is more like a pocket around the battery, Rather then a thin string rope like feeling pressing on it . I cant lay on that side for very long or hug pillow under that arm.It dose not cause lots of pain it is more annoying and uncomfortable. I am kinda thin I guess and short 5" 2 .
It has never slid or moved at all . Mine is not chargeable and has to be replaced every 7 - 10 years it is more like the type they used for pace makers. It is kinda big , I guess like a small hockey puck and its very visible. I had to get comfortable being topless with hub cus well there is this 3 roundish thing popping out and its not my boob. sorry if thats to much info .

I would Bug your doctor and get this issue taken care of if you think yours is sliding , moving or you have ripping sensation... If anything feels "not right" Force the issue with your doctors. Keeping you in my positive thoughts and prayers abrown
PEACE
BMW
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Old 04-22-2010, 07:05 PM #8
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Heart Bmw



Now THAT's what I'm talkin bout!
You da Bomb! BMW
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Old 04-23-2010, 04:31 AM #9
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My battery is in my stomach, it was lower - not comfortable position at all. Still very uncomfortable wearing trousers - tg leggings are 'in'...I noticed from few threads ive read....some of ye see the Rep after implant not your Dr Am I reading this right??????

Here we have a pain team set up in the hospital and you see them before and after, with regular chk-ups, the Rep only comes around after sugery to show you how to use it and then maybe if you need re-programing....but if there are problems with it your seen by your surgeon or one of his team. You then are sent on a Pain Mgmt Programme to help you deal with the implant, mentally & physically (im on the list for this but its compulsary) and talk to other people in similar situations (pain).

any questions, just ask
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Old 04-23-2010, 01:57 PM #10
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I do not know about any one else but as for me I have never seen a Rep after having my SCS surgery.Any issues I have are handled by my Neuro or pain doc.. if need be the rep would be brought in but..so far SO GOOD. I have not had any issues with mine.I get the feeling I am one of a few who never had anything wrong since day one of SCS implant. I am lucky blessed and so THANKFUL .

PEACE
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