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Saffy
Hi Rae,
I haven't heard any more from Karen, she's in the North of England and I'm in Ireland but texting via the phone is no big deal. I'm back in hospital myself since last Sunday with this terrible pain, I had one part of a three part MRI scan today so please God that will show different results. I hope all is good with you, do please let me know. Sinéad xxxx :) |
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I can't believe all you've been going through. Infections, pain and not getting the care you deserve and need. Please God watch over Karen. Bring her the care, healing, comfort and peace that only you know what she needs. Be with her family as they stay by her. Guide the doctors who are caring for her. Sending good wishes and prayers your way. Sandy. :hug: |
Sinead
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(Ger) |
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My heart truly goes out to you and I pray these tests will lead to a plan of action to get you out from under this horrid pain you've been battling.... You are so strong in all of this and it's high time you get the relief you need and deserve. I continue to pray for you....I lift you up to God and ask that He puts a healing touch on you very very soon.... Rae :hug: |
Got results
Hi guys,
My Consultant called in yesterday evening and gave me some results of the MRI. I have an impingement on the L5 root which is causing the numbness and pain in my left leg. He is to refer me to an ortho asap to see what he thinks if doesn't want to do anything then he's going to refer me to another hospital, to an ortho there that he's hoping will do something. I asked what the impingement was likely to be and he said scar tissue from my first surgery. So that's my news and for me it's a big answer to something that has been annoying the hell out of me and I'm happy that finallay something is happening. Some news finally Sinéad xxxxx |
Neadi
No Skype, no text, no email, I am near to hopping a flight to check on two dear friends, Neadi and Karen [it is 3 am here and I am doing this by touch, so forgive my lack of the proper accent mark]. Oh, how I wish the Concorde still flew, for I would go. Three hours NY to Shannon. But that is history.
Please by God know I am worried for my friends. You text each other, let one another know I am on my knees for you. Prayer helps, and this I offer for God is great beyond measure....... beyond measure. I have each of you on the tip of my thought and tongue [OK, along with a LOT of other people too, but you KNOW]. Next time we are going to exchange PM with cell numbers so I may text you. Rae knows how I reach out in CARE and I am very much just wanting just to lay a cool washcloth on your foreheads, each of yours, Neadi and Karen, to be at your side and show to your beleagured eyes I am with you in spirit and GIVING constant novenas. Rae said it most beautifully, I am but an echo, resounding across the great sea which separates us. When I am able to pull through with one of my newest inventions and cash begins to accumulate with speed, do know Cleo and I will establish a foundation, the purpose of which is to PUSH care in newer directions. I may purchase Boston Scientific outright and take it private [I hope their Board of Directors is reading this post, because they will be shaken to their soles of their feet] because a privately run great company can be steered more directly toward the care I have not successfully influenced here or via my thread. We MUST fix this sort of thing. I am now reaching out to billionaires I know who could initialize capitalization of my newest invention which according to a brilliant nephew of mine is "a rock star invention" and I intend to hire his talented engineer brain away from Cisco, sorry Cisco, because I will need engineers surrounding me to bring the invention to pass. Oh, and I never idly diddle away my thoughts on drivel or minutiae which are valueless, for God has purpose for me on this place of pain. I now begin to see a window of opportunity opening as I reach out to billionaires who invest, Warren Buffet may be next, for I can make the connection, Phil Anschutx another, because these are people who are focused business people, and one a man of faith, who sees the hand of God. Imagine what we may do with $1trillion to help conquer pain....... No jest here, because none of you deserve a pitiful soul yanking your chain. All I ask is prayer focused on helping me follow God to carpe diem with this concept. Greatness lies here, which will encircle the globe and people will affirm it with their purchases, driving revenue. THEN, THEN, watch out Boston Scientific, for you are my target of choice, and I will come through the markets sweeping up shares, properly of course, so I can take the firm private. I am skilled in this kind of endeavor. Then we put patients into the drivers seats around the world, FDA be dammed as a stream, a mere trickle of water, our Trials and Proof of Concept being beta tested on real people who flock to its call because people of this forum become in charge, and the world will be amazed as patients one by one, then millions by millions receive the CARE THEY HAVE ALWAYS DESERVED. God has me focused, and I worry not, for He will make all things possible as this endeavor is surrendered to His glory through my company Inspri. We will conquer unrelenting pain becasue God wants this to be so...... else, I would not be so driven by His light. Imagine Moses, who was taken aside into God's boardroom for a personal one on one session for the plan to prosper a nation of His children. Now You who here are gathered, form a new nation, conceived on the internet, and dedicated to the ethernet proposition that God has grown tired of watching His precious children writhe in pain. I have wondered what God had in store for me while this process has worked its way through my body. Knowing I am unique among three in the world who have delighted in programming ourselves the stim in our bodies. Man's ears have deafened to the clear word I send out to involve patients. Therefore I have been propelled beyond mere small affairs to the means to touch great fortunes and suggest paltry investment [in their eyes] leads to the single amassing of human capital great enough in history to overcome nations, markets, corporations, and regulation to function in the cloud of the internet to render technology more inexpensively and properly to erradicate pain BY PERSONAL PATIENT INVOLVEMENT. My goal, simple, be gone with impediments to helping people. operate internationally where world attention is grasped and held entranced while the witness is borne to a clear means to better manage pain by involving the patient. Pray with me if you will for the launching of an invention yet in the drawing board of my mind where it is absolutely safe from prying eyes. Secrecy is the best means to development, deployment, marketing and profit beyond wildest dreams so my true goal of SEIZING the means to help those whom I most care about for free in clinics which are foundation funded, beyon the reach of Pelosi Care, beyond the reach of UK socialized medicing. Pray for the means to bring this to reality because inventions God has blessed me to develop fund all of this. I do not care to be wealthy. Thsi is not my goal. Sharing the wealth in means to bring care, proper care, supervised care under a company I absolutely control because it is beyond the clutches of Wall Street and investor temperament and dedicated to God's hope for brighter tomorrow where pain brings far too much suffering is my goal. I drive a 1995 collectible Chrysler automobile. That is enough excitement for me. Fortunes are meant to be shared, the reason Pharoahs missed the point and created elaborate tombs to "take it with them", the reason Elvis is buired in a pink Cadillac [I neither know nor care whether it is true] a metaphor of wealth hoarding gone mad. We follow a president [small p intended] who says distribute the wealth in America so all may share. I reply, put America back to work because people are helped to feel better, because fortunes are not squandered in lame efforts to minimize taxation just for the sake of accumulation. Instead follow the path of God, and utilize wealth properly to create foundations controlled for the greater good of the suffering. Provide for free the care which delivers people into the workplace where they may feel enabled, emboldened, RESTORED, and freed from pain so life is so much more worth the living honoring God. So, a tiny, ultra simple invention which may generate trillions of dollars may be the catalyst to form foundations to bring into fruition care for masses of hurting people for free. Government astonished for it no longer has to squabble meaninglessly over who is right, because foundations have rendered them useless except to build sewers, roads, and clean water supplies- the stuff of proper government function? Leave medical care to foundations run by people whom I trust personally from this forum who, knowing pain personally, will take deep personal interest in helping others find freedom in free care for their needs because a simple invention purchased by almost all people covering the planet seeded the fortune ceded back to the world overcoming insurance companies [what woudl they do] overcoming political hot potato health programs because private foundations replaced them [oh what would they do]. I trifle not. I never do. God does not present me with ideas to squander. He delivers them to me for a purpose. Read Jeremiah 29:11 then join me in prayer and let us see with true hope in the Great I AM precisely what He has in mind. I recall, Jesus came to earth NOT proclaiming kingdoms here on earth, but storing up riches in Heaven, I see visions of Heaven in my dreams. Nest semester, I am teaching a class on Heaven partially based on C.S. Lewis, but more properly based on God's revelation to me. We are NOT to store up vast fortunes here on this planet, for moth and rust corrupt them and God's children are not thus served. We are to give a cloak where it is needed, a meal where is will remove starvation, heal where ever we may, help people become so filled with blessings they cannot help but fall to their knees and praise God regardless of their fundamental faith brand. Let them all destroy weapons, forget war, praise God in unison, for God is God all around this globe, then let work brought here on the leading edge of trillions of dollars be put to use demonstrating to all humankind God is love regardless of the name by whick He is known, regardless of governments for they are always and to the beginnig of history corrupt, let us pray for God's greatness spring into action above world government and lead the way to BLESSINGS for everyone..... starting with each of my friends here in my place of safety shaing a vision. So I am human, and I do have my biases for friends whom I know struggle with interminable pain, I want to sit in Eva's home and scratch Olie gently behind the ear and see a broad amile on Eva's face because she is no longer hurting, I want to sponsor the greatest party at Pooh's pond where Rae and I sing songs of praise to God because it is good, right, and proper. I want to purchase a Concorde to deliver friends Jenna, Jackiey, Sinead, Karen to the party duly flying subsonic once American airspace is penetrated so no one complains their dishes rattled. I want Kelly, our newest family member to be so surrounded by care that all fear melts away from her sould because God cared for her so personally for her as to help her feel peace as to Know deep within her soul....... it is good, and God is mightly, assuring all will be well. I WANT FIONA AND NEW FRIEND DINAH WHOM NONE OF YOU HAVE YET MET, TO LEAD DISCUSSIONS REGARDING THE CARE AND SUPPORT NOT ONLY OF THE PAINED BUT OF THE CAREGIVERS. And courtesy of God, I want to foot the bill when the largest party ever hosted in Nowhere Nebraska descends upon that pretty little town as God is praised into the night as the principal cause for our release from pain. How about it? This is a lot of prayer. You can all handle it. And.... And God is with us when we join across faith lines to proclaim His name in myriad languages seeking His good word for the deliverance of His faithful..... Martin Luther King had a Dream... a good and honorable dream. I have a plan, a God inspried plan.... time to put it into motion so all of the above becomes reality. I am praying, are you? Mark56:grouphug: |
Hi Mark
I'm just getting ready to go to sleep when I thought I'd check my email, I do have email by the way, wow what a long message, I've read through half of it and I'll read the rest later. Thank you for your thoughts and prayers and I cannot forget about all of those wonderful ideas. I do think putting those of us who suffer a great deal of pain into the driver seats of these companies and those like yourself who are skilled and capable of running these companies at the helm as other wise it would run down and made a balls of. We. could add an element of support to patients who phone in too. I'm going to sleep now, I hope tomorrow I will have a surgeon to perform this surgery I need to remove that impingement/scare tissue what ever it is! Nigh night Sinéad xxxx :) |
Such Second Time Around Surgery
Dear Sinead- By now you are fast asleep and hopefully soon will be rolled to the theatre. The work to remove tissue impinging the nerve is easily handled. To tell you the truth, my second deep invasive surgery was to remove bone which grew from my fusion. The surgery went well, the impingement was removed, and I healed well. Then I was back at a beginning point from which my care could proceed.
Please may you be wrapped in the grace of God as you experience this surgery, and may your healing be complete. Mark56:hug: |
Mark :Red eyes: ..... your post up yonder has me head a reelin !
Now I can't find my toupee :icon_eek: I shall pray for you and your endeavors! Rae :hug: I don't really wear a toupee. :icon_biggrin: (yet, anyway) |
Neither do I
Nope, no toupee here either, just grey hair..... you have actually seen it a few times.....
I love driving through Totoland.. And the other, even with head a reeling, it is absolutely for real, and it works....... it works. Imagine a $1trillion bank account, imagine purchasing Boston Scientific, imagine forming a foundation for the assistance of folks like ginnie, like eva, like sophie, like saffy, like tara, like you, like everyone else. God says faith of a mustard seed will move mountains. I want to move a mountain range on behalf of God the Almightly. Following... following..... following, Praying, Please pray with me, Mark56:grouphug: |
No doubt in my mind that you can move mountains dear Mark!
We're behind you all the way! You are on FIRE about this! God has empowered you to do great things.....this is why I am more than CERTAIN that the enemy tried it's hardest to bring you down back when you were sinking further into that sea of depression. You've risen above all that and now God has granted you POWER! Let nothing stop you! Rae :Bow: |
Saffy
Hi guys,
Anyone heard Karen, I've sent her a couple of Skype messages, I'll try the phone tomorrow? I'll post properly tomorrow, it's 3:38 here and I'm gonna nod off, worst thing about anesthetic, sleep can be random. Night night my friends Sinéad :hug::hug: :) |
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Home after two weeks with pic line anti biotics and had bad reaction to oral ones I am supposed to take too. X x x love to all |
Karen's BACK!
THANK GOD!
It's unbelievable what you've been through. You are a tough woman, a fighter, and blessed of GOD. Now's your time to rest up and let your body heal. I was SO happy to log on and see this! Our little forum seems to be rather slow these days, but I'm sure when our friends come back, we'll want to throw a celebration for you......that is IF we can get Mark to stop moving mountains for a bit, so he can party :D He is one busy man, I tell ya! Many gentle (((HUGS))) to you Karen! Rae :grouphug: |
Hi Karen,
You poor girl, it seems that nothing is ever okay for you. Those pic Lines can be terribly sore, I've never had one but I know people who've had them in. At least your home now and you can be more comfortable, watch TV, eat what you want etc.. In terms of pain control where do you stand? I'm in a terrible pain, the surgeon my Consultant had in mind chickened out, but to be honest if a surgeon doesn't feel comfortable doing the surgery that's fine by me. Thankfully my consultant had contacted other surgeons so please good I'll hear something soon, but I have been in contact with my consultant. Sinéad xxxx :) |
Sinead & Karen
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Blessings, Gerry:grouphug: |
dear friend
enjoy coming home i am sure when i have to put my foot in a doctors office is one thing let alone hospital relax all you can your home |
Injections
Hi guys
I'm sorry to butt in on Karen's thread but I feel kind homeless on NT and I dunno where to put anything, As yee know im supposed to be going for surgery to remove an impingement at the S1 nerve root. My Consultant is having trouble tring to pin down a surgeon to get a date.... . I've told my Consultant a million times over the last few days that im in really bad pain and I can't walk.... He's decided to bring me in for a nerve block and now they know where they're going it bbworks better and for longer. No idea how long he's going to keep me in, it should onl be an overnight job. So that's my update for now, and sorry Karen for butting in Zzzzzz Sleepie time, nighty night :) Sinéad :hug::hug::hug:Mm |
Sinead
[QUOTE=Sophie_;865148]Hi guys
I'm sorry to butt in on Karen's thread but I feel kind homeless on NT and I dunno where to put anything, As yee know im supposed to be going for surgery to remove an impingement at the S1 nerve root. My Consultant is having trouble tring to pin down a surgeon to get a date.... . I've told my Consultant a million times over the last few days that im in really bad pain and I can't walk.... He's decided to bring me in for a nerve block and now they know where they're going it bbworks better and for longer. No idea how long he's going to keep me in, it should onl be an overnight job. So that's my update for now, and sorry Karen for butting in Zzzzzz Sleepie time, nighty night :) Sinead, I would doubt Karen, or anyone would think you are butting in. Please keep us informed. Maybe the nerve block, along with some extra knowledge will be successful. We do want to know how both you and Karen are doing; and if it be in the same thread.....so be it .We get to hear about both of you so far, but yet, ever so close. As always, our thoughts and prayers are with both of you. Gerry :hug::grouphug: |
I certainly don't mind x x x
Am back on morphine sulphate twelve hourly slow release with Ora morph for breakthrough pain. Omeprazole for stomach protector Tamazepam rotated with zopiclone for sleeping Amatriptylinne 40mg nightly Movicol to cough, help me to GO. Bisocodyl to help me go too. Diazepam 10mg for back spasm relief And a partridge in a pear tree. Mum got me some TONIC .. Metatone (at first I thought she shouted, I've got you some methadone .. I said mum, do you not think I'm on enough drugs???) this is full of vitamins and a pick me up after illness. Ive got to go to hospital on Thursday next for an ultra sound as I suffered a prolapse after the last op as I was unable to pee without pushing down hard .. Oh hum. This requires another operation, and I hope to get that done within the month .. Then I can relax. Hopefully. Feel bright in the morning, but after a couple of hours I am shattered. It's so very frustrating. Not had the stim on much as my mind is a bit pessimistic at the moment and I want to be in a good place before trying it out. At the moment it grips my waist, where th leads are, like a vice, and makes my back pain worse. BUT it is going down the left leg ONLY, which is brilliant. Thank you all so much for your prayers and good thoughts ... When I was in hospital with this infection, there was a time when I was lay in bed and "felt" people at the bottom of the bed, standing there .. My fater in law and step dad were the clearest, then my dad . Then his mum ... And beyond them were others I couldn't make out ... But I felt a surge of strength/energy and comfort. I like to think that was you all being there for me ... I cannot thank you enough. |
Sinead ... This can be our thread .. I'll edit the title. X x x xumm .. How do it do that. Can someone think of a
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SCS Journeys ........from across the Pond
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It really is so sad to have to go thru so much pain and suffering. Prayers that both of you will soon get some good relief. Too many good times yet to be had. (Ger):grouphug: |
I'll get my daughter to take some pics of my incision sites and the previous infected ones so that people can check whether theirs is ok or not ...
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What is freaking me out at the moment is that I can feel the paddle ... Leads aswell ... Do not like.
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Saffy
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As always....Prayin, Ger |
I think so. Tried two lots of oral anti biotics and didn't like the side effects. Decided in hospital anyway that if two weeks on iv anti biotics didn't work then it's fate and they should take the lot out.
Not seeing my rep till April 30th so no, no one knows I can feel the paddle and leads, but it's probably because I'm slight with not much padding. Am really low .. My husband has invited his brother, his wife and a very very energetic five year old son to stay next Saturday. Let me put it this way, even my mum knows to only visit me for half an hour as I tire very quick and don't want to socialize. I am absolutely dreading it and wish there were some way I could get back into hospital lol. |
Editing Your Thread Title- CHEMAR
Cherri can assist in a well warranted rename of a thread as when my major thread was originally ANS St Judes Mini Rechargeable. If you recall, when I originally began the thread, I thought we were headed into ANS territory, had finished all of the research, prepped the mind, the emotions, the soul for a OK here we go, only to arrive in surgery prep where I met this shining smiling young man hand all extended as though he had brought the prescription for "the cure" announcing he was from Boston Scientific. Duh!
I found myself reeling from the "what about all of my prep" panic and "who is this dude" and "I can physically muster the strength to manhandle you outta my life buddy" boar grizzly bear which comes out of me when in protection mode for self, family, or client [the kind of emotion Cleo has witnessed once to her horror on a roadside as I tore into a highway patrolman for inappropriately stopping her on a foundationless charge]. She bought me a grizzly bear sculpture for my office thereafter. SO..... long story short, once the poor Boston Sci rep survived my cross examination, I relented, took the stim, and have been thrilled ever since. The name of the thread being inappropos at that time, I asked Chemar to help change it to more accurately reflect the Boston Scientific mechanics which had found their insipid way into my body. She helped. I smiled. Thereafter the thread took off with Boston Scientific given the credit for my success. NOW TO SAFFY- glad you are home, and sorry about the pic line port for med administration. I have only known cancer patients as friends who received those for direct stream administration of meds for rapid dispersement of the med to the system. You have been one dearly ill FRIEND! I send squeezes through Sinead since we Skype unawares whether you were in receipt. All of the meds and the Methadone, I have been prescribed at one time or another..... made me wonder if I would become a Meth head, but then my teeth did not blacken and fall out, and my smile is not toothless, so I reckon I did not sink deeply enough. So glad infection is under control, and I hope your dread gaping incisions are now tightly shut!! I feared for and stood at your bedside spiritually in prayer, wanting you to pull through. Hoping to pull up alongside you and your Tootle as you speed down the road, I in my Eagle Talon, a fun ride to turbo. Zipping along with the top open to feel the Spring air, and my little car would fit your roads, although the wheel is rather on the wrong side for your land. Be well, my friend, be well, Prayin, Mark56:hug:z:grouphug: |
Saffy,
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(Ger) |
Hi Saffy
Hope the infection is gone. If you are feeling the device that much that it is bothering you, don't hesitate to call your doctor. Hopefully this will resolve and you will have the help you need. So sorry you have had to endure such pain. ginnie
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Am seeing my rep at the end of the month. When I sleep on the side my lead is, I wake with a dead leg .. Having fallen when trying to get to the loo, much to everyone's amusement .. Will bring this up with her.
First I have to deal with the ultrasound exam and biopsy tomorrow of my womb and the see surgeon for op. am going to tell him to take the whole lot out!!!! Lol After that I feel a need to scour this forum a bit more and offer support to people who need it. |
Saffy
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That falling does not sound too amusing. Try standing up and staying in that spot for a minute before starting to walk. I have to do that myself or I am unstable if I start walking too soon. Too risky. Let us know how the ultrasound and biopsy turn out. A while back, it sounded like you might have a bladder prolapse. I had surgery a little over 3 years ago for that (cystocele). Do you still have the company coming for Easter? I hope the plans have changed and you can enjoy a quiet Easter. (Ger):hug::hug: |
At the moment no, the company is still coming, but I think they will understand if I say I don't feel like it.
I am totally stressed about today ... I know it's silly, but I would rather have a dozen back operations than this. I've not even had a smear test in over twenty years so this is going to be horrendously humiliating for me. And I know thousands have had them before and son on, but I haven't and I am feeling sick with horror at the thought. It's the bowel wall pushing through from all that there constipation and latterly from pushing so hard just to pee. I'm actually going to ask if he can just do a flippin hysterectomy whilst he's at it lol. I'm getting a biopsy done too as have had some unusual bleeding. One day I'll be fit and well again. Still smiling though .. But might be wincing later. I'll be fine without you all there tonight thanks .. Perhaps you can just wait outside. Hahaha x x x |
Rectocele, that's what it is.
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Oh poop! I thought my battery site was a tad tender today ... looks like the infection is returning. Time will I guess .. Not fused. This time if I get an infection I believe it's my body telling me it's not meant to be.
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Hi Saffy
I had the same thing as you about ten years ago. The bowel coming down, as well as my bladder. Things just wern't right. I did indeed have the hysterectommy at the same times as , anterior, posterior and birch proceedure. If anthing is discussed involving Mesh, to hold things back up, do some research on that one.
the prolapse is sometimes treated with mesh, and that has failed in some cases. My proceedure was quite extensive, but it was worth all of it to get fixed. I wish you all the best and a perfect outcome! ginnie |
Saffy
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I do believe, in my case, so much straining because of the narcotic pain meds I take, has lead to the cystocele and rectocele surgeries. Ginnie is right on about the mesh. The doctor that did my cystocele used mesh. The urogyny that did the Rectocele said the first urologist should not have used mesh. My rectocele was done without the use of mesh and my own body was used to close the surgery. Too many things tied in to problems with the mesh. Oh, Saffy, just read about the possible return of infection. I hope it is just tender and not another infection. You have been thru so much. Hope you are able to spend a nice quiet Easter. (Ger) |
NO INFECTION!!! :eek:
We will NOT accept this! Infection is not allowed anywhere NEAR your body!! :deadhorsebeat::Soapbox::ranting: |
OK
I understand this is very much a womanly discussion and I will barge in anyway..... Saffy, you dear lady, you are wrapped in the arms of this group love and prayers as you approach these matters with trepidation, humiliation, ick, and anything else I could through in this regard. You, my friend, need care, love, hugs, shoulders on which to hang or cry or just receive some knowing strength, and we all have those as original equipment, so I walked by to give you a figurative flower [I had purple pansies in mind, the pansies with that touch of yellow and white, small, yet effective], be not dismayed at the medical stuff, it will go away, and infection, well...... Rae has beaten it out of you, so I reckon I need to step to the kitchen and put together some of Cleo's birthday cookies for you......... got milk?
Love and Prayers, Mark56:grouphug::grouphug: |
Ha ha .. You lovely lot you. Kiss kiss.... Hug hug ...
Things weren't quite as simple after the ultrasounds. They found a polyp on my cervix and unfortunately a cyst on my ovary with dark patches that means it is "menacing" ... Hopefully. Or too menacing but they will be doing a biopsy on that. Once he gets the all clear from my stim surgeon I am having a hysterectomy, and the ovaries takes out by lapascopy and then the TWO prolapses. .. Trust me to not just get the one, sorted. My cervix has prolapsed and indeed the bowel is pushing into the vagina wall. I did have one laugh yesterday though. The man doing the ultra sound was waiting for a chaperone and I asked ..l won't my husband do? Haha .. So he who is so squeamish had to co,e in with me, whilst I lay there legs akimbo. His face. Haha .. Don't think I've ever seen anyone go as gray as to match his hair. |
Oh my. Because the time has come when my free prescriptions run out, I admit to stockpiling. I have about three hundreds 50ml tramadol caps that are going to be thrown away as they changed my meds. Even if I take them back to the chemist all they do is destroy them, even if theyve not been opened. What a waste.
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