Hi everyone

Im writing this as I lie in my bed in a house that is oh so quiet. The day outside it wet and miserable and making me feel somewhat fed up today! But grateful that I have come this far.

I was an ordinary working housewife back in early 2005. My husband is a loyal caring and wonderful man and we were blessed with 3 beautiful daughters and 1 beautiful son, all of whom Im very proud of indeed. They are wonderful children who have looked after me along with their dad even in my darkest days. We are also blessed that one of our daughters, our youngest, has Special Needs. She is a wonderful young girl and a blessing to have in our home. So out life was fantastic, idyllic and happy.

Then out of the blue my legs hurt then my back hurt and in one foul swoop I couldnt move or walk. I was sent to see a fantastic Spinal Consultant who whipped me into hospital straight away and removed a disc which was pressing on my spine and nervous system. I had the burning, tingling, painful symptons which of course would be gone once the dreaded disc was removed! WRONG!!!! now that didnt happen.


I continued to have endless epidural needles inserted into my back assuring me each time I would be ok. But alas each time was as bad as the first time with no relief. This carried on until the end of 2005 when I started to also have stomach trouble. I was admitted for tests only to be told I had a low blood count (8) and that I had gall stones to boot!!!!.......I was scheduled to have a spinal fusion in early December L4/L5 only for that to be cancelled as I lay on the theatre trolley. I was devastated. I was sure this was going to put me on the road to recovery. By now I had lost over 45lbs in weight, not a lot you might think, well I was only 135lbs to start off with. I began having awful thoughts , I was crying all the time, I couldnt accept that I was now a delapadated woman and nothing was working.

In early Jan 06 I was rescheduled to have my Spinal Fusion done. I was now in the depths of depression, however, I didnt realise it then. I lay in my hospital bed with my morphine pump at 4am wishing it would all just end and my suffering would be over. I couldnt eat, sleep, think, or even care. I begged the Consultant to let me go home to my family where I knew I would get better in their care.

After being at home and eventually having the strength to walk and try to get back to some sort of normality I had to undergo another Spinal Fusion in June 06 at level L5/S1. OH how I hated going back into hospital. This operation again didnt help. I was now worse off that I had been at the very start. Now I was having all sorts of pains shooting down my legs and across my back. I was on a coctail of tablets and medications that I didnt know whether I was coming or going.

This went on for another year when I just asked my Consultant to TAKE OUT the metal in my body. I didnt find I was having any benefit from it being in there I WANTED IT OUT!!!
So in Aug 2007 the metal was taken out. I continued to 'live' my life.I couldnt do anything. I couldnt be a proper wife to my husband or mum to my children. They were rallying around me. Life just felt so bleak.


Soon I was referred to the Pain Management Clinic. I was told that basically all they could do was try to manage my pain. I was so sad to hear that after all I had been through that this was it.

I had various new meds, rhizotomies, spinal block injections, epidurals, lignucaine and ketamine infusions, Lidoderm patches....you name it I had it all to no avail. Then my Consultant mentioned the SCS!!!!


This was my light at the end of the tunnel, this was my haven.
So I went through the rigerous tests and psychie tests to be told, NO your not mad, your in pain.


I was scheduled to have my trial done in April and oh how good did that feel. I had it for a few days and I felt wonderful, relaxed even. It was great I WANTED IT NOW!!

But I was told I had to wait as my Consultant was away thru June/July so it would be August before I would be implanted. Can you imagine how I felt, that after 5 long years there was finally something to help me AND I HAD TO WAIT nearly 3 months.


Well during that time I became a nana to my first granddaughter, which was wonderful and took my mind of the waiting.....


So eventually on the 5th August that day finally came. Im now 19 days post surgery. The SCS is doing some of the work. It does need some tweaking here and there and I want to have it TURNED up so that I can get rid of some of the horrible sensations I have at the back of my legs. But so far Im being optimistic.


Ive read lots of your stories here on this forum and Im encouraged that this is what Ive been waiting for all this time.

I used to wonder if there was a GOD up there watching over me. I have always tried to be a good person and to have to endure all this pain I have found it hard to keep believeing. Even though HE sent us a beautiful daughter with Special Needs I do at times feel , well we were picked for this as we are strong people, we can do this.


So now as I type here this morning, after sharing my story, I realise that me being fed up this morning, Is NOTHING , compared to that awful depression I felt back in those dark dismal days. You know I often say, oh I feel a bit depressed today, but hey, thats not depressed thats just a 'down' day.
I hope that my story is of some benefit to some people. You know during those dark days there was no light at the end of the tunnel, but today, yes there is. I know that Im on the road to recovery. I know that I can turn my life around and try to be more active and get on with this wonderful life that GOD has given me.

I pray that you all will get to a stage where you too can be grateful for the wonderful life you have and that your pain and suffering will one day be pain and suffering of the past!!!!

Thinking of you all

Jackie

[Mark56]

Thank you dear friend for sharing-

It is hard to have something like freedom and have it ripped from you, then the pain, then the procedures. I am so thrilled for you that now 19 days out from implant you are feeling benefit. This is quite a blessing. You are so meaningful to us here, and I do remember the Emerald Isle as I flew into Shannon, knowing God had liberal quantities of green GREEN paint when that place of beauty was placed on this globe..

Hooray, and may your rehab be the stuff of continued strengthening and resolve to resume life to your personal best!!

All the best,
Mark56 PJ

[Rrae]

Thank you for sharing your story! It really makes a difference in knowing what we've had to endure to get to this point.
There are so many parts of your testimony that are very similar to mine and I feel a kindred Spirit with you........and the 'Nana' part just puts the frosting on the cake! How very precious!

You are a beautiful person with a wonderful zest for life and it is very inspiring to read! Especially knowing how far down in the depths of despair your battle had taken you..... and that you have been able to come through that.

You've brought such a bright light here to this forum!
We're blessed to have you!
Thank you
Rae

[irljenn]

Hi Jackie
I have just read your story you really are an amazing person to be helping people like me now after all you have been through since 2005. I think having only known you a few days that you are an extremely giving person and I thank you again for the support you have given me even though it has not been very long since you went through your very hard time. I am so happy that you have a great family around you and a new grandchild to keep your spirits up! my only advice is babies are a dead weight so dont be lifting her!!

Thank you Jenna for your kind words. We are all sharing our experiences. Its amazing how pain has brought such an incredible bunch of people together too.

Thanks for the tip about babies being heavy. She is just 4 months bless her and now weighs just under 12lbs so still light ........ish I'm babysitting tonight and as I type, she is asleep beside my bed. Our first sleepover. Wonderful.
Best get some shut eye before the 4am feed

Nite all xx

[irljenn]

good night Jackie... so exciting for you but i know just how mammy and daddy feel as they enjoy there first night away from feeds !! she may be just 12lb but thats a dead weight so just be careful i know i am not allowed lift either of my two even now and when she was a baby i used to hold her on a pillow as it made it easier on my back. just would hate to see you in more pain but goodnight you need to catch your sleep and enjoy her but don't be shocked when u see the parents early tomorrow as even with us after an hour or two away from them u just miss them like crazy! dont know how i am going to survive a week without my little ladies but not going to think about that for now as that's still 5 days away!!

Well its Saturday afternoon now 1.10pm and Im wrecked My granddaughter was fantastic last night and slept well , unlike her nana, who was awake listening to every move she made

Ive been charging my battery and occasionally Ive felt it VERY hot. Is this normal do you think? Its like its heating up when charged. Im still wearing a plaster over the wound, I know, but I just hate the feel of it and Im afraid I might bang that area off something. I can be clumsy. Im not liking the feeling around it at all either. Its 'lumpy'.......and I can feel where the leads extend out of it eurrrrggggggghhhhhh.....sorry dont mean to be so negative today, just wondered about the heating up mostly!

[Rrae]

Jackie,
you are not being 'negative' at ALL! I'm sorry you didn't sleep well.....doesn't make for a very good start to the weekend

And your battery pocket site is causing discomfort...... I know you are a 'small' woman, so you don't have much 'junk in the trunk' to cushion the battery, so you are more 'aware' of what's there......
I'm hoping you haven't recently lost more weight? You don't have weight to lose! But if you have lost weight, maybe this is why the lead wires seem to be protruding more?

Regarding the 'heating up' while charging....do you charge while lying down or sitting in a chair (meaning, is the charger between you and the mattress/couch cushion?)..... It could possibly be getting 'hot' due to being in a tight area.
Similar to when I'm on this laptop......if I have it on the bed, it get's hot because of not able to vent.......if I situate to where there is more airflow to the bottom, it stays cooler.

Another issue perhaps, are you charging while wearing 'breathable' clothing..?
Or do you have the charger up against your bare pocket site?
Do you have your unit 'on' while charging? Maybe try turning it off for part of the time while charging to give it a bit of a rest? I dunno.....just some thoughts off the top of my head.....

I hope your weekend looks up and you are feeling better!

Rae

[irljenn]

sorry your not having such a good day today Jackie!! i can't help on the battery charging but as for worrying about your grandaughter my mam is exactly the same I ended up buying her this device in smyths that fits under the matress so that she would stop watching to see if the baby was still breathing every 10 seconds. it worked a treat it sound an alarm if there is any problem with baby breathing and allows nanna to have a good nights sleep when she minds her grandaughter!!

Thanks Rae. What u wrote makes sense. Yes I do turn off my stim while charging. But I do lie on the couch or bed while it's charging. But I have a small pocket which the paddle sits in while it's against my skin. Maybe it's like the laptop. Will try to give it a bit of breathing space when I'm charging in the morning. See how that goes!!! Thanks

Jenna oh how you made me laugh. So all nana's must be the same (Rae I hope your taking notes here for the coming months how long now?)
I will definitely have a look in Smyths for that. Thanks. They have everything you could possibly need there dont they.
I hope your itch has subsided now. How are you feeling? Better I hope

Jackie