I do apologize for you feeling that you had a bad experience here Kelly. If you decide to stay on, you will see that this is in fact a very caring, supportive and informative community.
The reason I intervened earlier was for exactly what you expressed...that some people were over stepping boundaries in their responses. I don't think anyone meant to upset you, rather that they just feel passionately about their perspective....but yes, you are correct that the discussion went off at tangents and made assumptions that were not ok. And again, that is why I intervened, because that is not how we prefer things to run here.

Anyway, I hope everyone has learned a valuable lesson and will grow from this.
And Kelly, I hope you will return and maybe explore around our community a bit more...I think you will find your first impression was not what we are actually all about

The show was on Sunday at 9a.m. Eastern time here. Mostly it was about heart devices, but it talk about all devices that boston scientific puts out.

wish to heaven that you didn't have so much pain. I am sorry you have to go through that awful test. You have already suffered enough. I will keep you in my prayers for sure. when do you go for it? I hate the thought of you being a pin cushion. ginnie

I hope for the best possible outcome for your proceedure. I do care about you very much. I will pray you get the pain relief you need. Don't worry it will be OK. ginnie

Kelly, please do not apologize for your post and asking your question. Your question was a simple and legitimate question. You were doing the same thing I did before my trial, asking questions and looking for experiences. This post has been hijacked and that is not your fault.

You have to be comfortable with your decision, and you shouldn't let others make you second guess yourself.

I contemplated leaving NT myself because of how many of us were put down, but am happy Chemar intervened.

I wish you the best tomorrow and the entire period of your trial!
Nanc

Kelly,

Please check you PM's. I responded to your's with the info you requested.

Sorry I was not home earlier.

Take care and hoping better days are ahead for you.

I wanted to wish you the best as you get your trial procedure done tomorrow.
I know you must be feeling a bit nervous and apprehensive. Absolutely normal. It sounds as tho you have a good medical team with you and you and your doctor have a good relationship. Try to relax into this. Despite the way this thread turned out, this could potentially be a very good experience for you.
You've got our support and we'll be anxious to hear how it went. Maybe you could start a new thread once your trial is complete and we can help give you our experiences and share things that helped make the recovery easier, along with input regarding the post-op restrictions, etc.

The first day or so you'll feel very tender and may not feel up to doing much. I layed on ice to help with the discomfort of the small incision. Soon after you'll be able to do things around the house and play with your settings. By day 3 I was in love with it.
The wires coming out of your back can seem a bit irritating. I put extra tape there because I was afraid I'd get the wires caught on something The hardest part about the trial alot of times is having to take the leads out and the original pain sets back in. If all goes well and you and doc decide to go for the permanent, hopefully there won't be too long a wait in between. Hopefully you'll have ample pain meds to get you by.

Others will be along to support you thru this

I'm excited for you and hope to hear from you soon!

Rae

Kelly,
Wishing you a peaceful and speedy recovery!

All we who are human are destined to err, whether we do so in smothering one with hopes beyond the possible or whether another may, as you wrote, leave a reader feeling as though thoughts were being forced upon them.

As for me, when I had the Trial, and I hope you did get a chance to read of it, my wife asked me as I stopped on the main floor in our great room and asked...... how are you feeling. I was taken aback, because after the first day and a half or so of soreness from the bodily invasion, I had to admit, at that very moment, standing there. I was feeling no pain at all. Now add to this image a well over 250lb guy who at 6'2" have always in my professional career intimidated any foe. Then imagine how the mighty crumble.

I began to shake with sobs of joy, and tears poured out of me as though Moses had only just stricken the rock and water was gushing forth. TEARS OF JOY! Tears of joy........ I knew at that moment God had indeed been at my side and there was relief. Another thing regarding the human body as it changes so many million cells each day, Change will come, and for these past two years of exquisite joy, I would trade nothing in the world. If anyone tried to dissuade me, I would intimidate them into submission. I have known peace again, acquired my practice of my profession in full again, now await news of my admission to practice in New York as well, then Texas to follow. I have much to do, oh, and our family now resides in a home the title of which is in our names again.

I danced with my wife on Valentine's Night. We celebrated. I am no where near the "Fred Astaire" clone I was, but we did get on the dance floor.

Am I a world class athlete? No. Am I able to slalom ski with my children now? No. Am I able to track elk armed with my backpack and .308 with which I can shoot the center out of a dime at 300 yards freehand? No. Some things go away and do not come back for some of us.

Have I earned the income which enabled our family the joy of resuming residence in a home known to us as our home? Yes. Have I turned the heads of advocates who at one time seven years ago feared my very presence? Absolutely, because my mouth and mind work, even if sometimes I must be in a wheelchair because the courthouse halls are far too long. Has my wife seen a rebirth of the person she married almost 39 years ago and spoken up to others how it is as though God remade me for the better? You had better bet your bottom dollar!!!! My blessed love, my joy, has seen me through terrible times, and we have clung to God as we lost our entire fortune to the last dime..... the very last dime. Still clinging fast to God, watch us go in the years to come!!!!!

Yes, by God's grace I am going to purchase Boston Scientific down to its very last secret and meld my newest invention with theirs to create for this globe something which will astound all who see, hear, and feel. There is much work to be done, and this time for the sake of patients, by patients, at the behest of patients, for Wall Street analysts are in my way and had better get the heck out of the road.

So, can this technology help? It has helped me. Does it cure causes of pain? Definitely not. Is it worth the try? Only each patient, one at a time can be the judge. Mine still works well for the pain management as to which it was intended, low lumbar and thighs which used to burn with the very fires of hell while spasming so rapidly as to bring me to tears of agony.

These days I am enduring new pain from nervous system sources beyond the present reach of my SCS, and I have no clue whether my PJ as the group named it [Rae, do you still have my horse?] may be programmed additionally to aid my boiling as if in oil legs below the knees to my feet. Remember, this was that portion of my legs which have been numb since January of 2006, no sensation at all. I have split a toe and never felt it. I know the numbness is yet present, but this other sensation baffles...... and then there is the fact that my right arm is acting as it did before my third surgery to try to repair the nerve. The EMG will let us know whether it is the nerve dying again, and again, and again; however, Kelly please realize my right arm was never the subject of treatment by my successful SCS.

I am a proponent, a success story, an author of an article my Doc is trying to have published internationally. It is pretty hard to squelch the positive spirit which God has formed within me.
I praise God in all things,
May you know peace, healing, respite, joy as I have,
Praying for you,
Mark56Z, great BIG BEAR HUGS

Kelly, I hope the trial is going well for you today. Been thinking about you and hope for a successful outcome.

Please keep us posted on your progress.
Nanc

Hi Kelly

Im just wishing you the very best for today for your trial. I hope it brings you so much relief and its everything that you have ever wished for to get rid of this awful pain. Please keep us updated with how you are progressing.....

Jackie