I have great results so far.

I have had widespread CRPS since 1993. Suffered a Brainstem Stroke in 2010 caused from side effects of one of my pain medications. Re-gained most function back within the first week. About two weeks out Thalamic Pain Syndrome hit on the entire Rt. Side.. (This pain is like RSD on steroids). Only after a large variety of pain therapies fail, I qualified for a SCS.
This was implanted in April 2012. It took several trips back for programing tweeks to get max coverage for my leg and arm pain. I have three different programs to choose from depending on the type activity I do.

This unit has 6 positional change sensors that auto re-adjust my desired settings. Really cool techy stuff, I can adjust the pulse width and rate with one of the programs. It took a lot of devotion from the clinic staff for all the tweeks and added programs.

Later this week I start a trial with a second SCS unit which should cover the pain of rt. Half of my chest/abdomial area, side and back.

Granted my neurostimulator does not kill all the pain all the time, but it sure has made my life more bearable to be more active and less in brain fog by have reduced and stopping some of my medications.

Welcome!

So, you're going for 2 SCS's! There are a few others here who have 2 and I'm sure they'll give you some support.
I'm glad to hear that your first one is doing you good. It's amazing isn't it? Mine has brought me a quality of life that I thought I'd never get back!

I'm sorry about the stroke you had. My dad had a thalamic stroke about 15 yrs ago. NObody could figure out what happened to him. Doctors were scratching their heads. They just looked at him like cows looking at a new gate.
We find out that the thalamus is smack dab in the middle of the brain. wow!

I'm also sorry that you've been hit with this nasty CRPS.
I don't think there is anything more frustrating than this.
I'm from a small community and most people just give me that look...."oh, you poor baby. you can't handle pain"
Well, this forum sure is a lifesaver.
The people here are wonderful, caring, understanding, supportive. We're all in this together, which somehow makes things seem a lot less horrible

Please stick around and let us know how your upcoming trial goes!

Rae

Interestingly enough, I'm consulting with my dr. Next month for a cervical to match my thoracic for crps as well. I hope it works as well there as it does on bottom!!

Wish you well!! I'm hoping for some input too!!

Procedure went well. Now have 4 leads inserted. Awesome coverage so far.

Great news Poko!!

So happy things went well during the procedure. Course, you are a veteran of this by now so you knew what was happening and how to communicate to the Dr and Rep.

This unit has alot of ground to cover, so we want these babies (leads) to stick! Are you going for the laminectomy when it's time for the permanent?

Please let us know how you are doing throughout this trial!

Rae

So far the second implant is doing very good. Surgery was a week ago. ??? Laminectomy... that sounds pretty invasive. My procedures used an epidural needle at T9-10 and T10-11 for lead insertion.

Last year insertion points at T5-T6 and L2-L3

Poko, you rock!

You've been thru an amazing amount of medical trauma, in which I'm sure had your doctors scrambling. I keep thinking back on what my dad went thru when he had his thalamic stroke......he swore he saw a glimpse into hell itself.
I'm so happy to hear that you are getting on well with these devices.
Thanks so much for the update. I hope your pain levels are being managed well.
What percentage of relief would you say you get? I know it's probably too soon to know for sure with this most recent one.

Rae