NeuroTalk Support Groups

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)

- - Signing out (https://www.neurotalk.org/scs-and-pain-pumps/182286-signing.html)

ger715

02-06-2013 11:25 AM

Mark,

I have never in my life received an award so descriptive of the qualities I possess. I must thank the "innovative percolations department" and all who may may have
played a part in my receiveing this award.
Gratitude indeed !

This is a very stressful time for Saffy. In the meantime, Hoping to hear Saffy's holiday plans.

Prayers in all things " possible" or " impossible".

Gerry

eva5667faliure

02-06-2013 03:44 PM

Quote:

Originally Posted by hannabananna (Post 947395)

saffy...we all can so relate to the depth of your despair in the above note to us. It takes my breath away i feel it so deeply.

You view it correctly....look what you said..."am going through a terrible patch at the moment". We patch our lives back together creating the new "who am i"...our lives forever changed due to pain and injury. We move thru life now moment by moment as our bodies shift;heal;rest;not rest.

Just for right this moment let yourself beleive in yourself...just for this moment...you have been through terrible patches before...just for this moment trust you will make it through this one too...just for this moment know you are held in love and light..

We hold the faith for you dear friend,,,touch base with us when you can,,,oh and laugh lots!!

Johanna*

:grouphug:

beautiful so beautiful

eva5667faliure

02-06-2013 04:18 PM

Quote:

Originally Posted by ger715 (Post 953219)

I know your hopes were set up. Disappointment is understandable. Please keep your appointments. If not now; something may arise in the future to change the current status.

Whatever the issues that currently are making you not a good candidate at this time; may be for the better. The surgeon may feel you have issues that the SCS would either not work or possibly be more difficult to implant. But stay in touch with your doctors. Again, something may arise in the future to change the currrent status.
Go to your appointments.....pleassseeeeeee !!!!!

Praying,

Gerry

PLEASE MAKE THE APPOINTMENTS
SOMEONE WHO CARES
SOMEONE WHO'S HEART FEELS
YOUR PAIN AND FRUSTRATION
AS MANY HERE DO
I AM A SLAVE TO MY MEDS
HAVE A SHRINK TO TALK TO
HELPING ME THROUGH A WAY
I CAN FORGIVE AND MOVE ON
YOUR INPUT IS VERY IMPORTANT TO ME
AS MY LAST MEYLOGRAM DIAGNOSIS
RSD AND EMPHASIS TO THE LUNG
EMPHYSEMA STOPPED SMOKING
OVER A YEAR NOW GO FIGURE
I DID IT TO MYSELF
I AM AFRAID TO HAVE ANY SURGERY
OF ANY KIND THE HICCUP IN THE
ROAD AFTER THE 2 CERVICAL NECK
SURGERY THEN BREAST CANCER
BOTH BREASTS WERE TAKEN OFF
LUCKILY I FOUND IT AND TOOK
IMMEDIATE ACTION STILL GOING
TO DOCTORS I AM SO DONE ALSO
BUT WE MUST DO ALL IN OUR POWER
may you be well

eva5667faliure

02-06-2013 04:47 PM

Quote:

Originally Posted by ger715 (Post 954586)

Saffy,

I think no matter what......TIME FOR HOLIDAY !!!!!!!!!!!!!!
Start planning........ That will get you out of bed and looking forward to
a change in scenery. Maybe you and hubby can even hold hands. Now
wouldn't that be a "tootaley toot"
---------- --- (just made up the word.)

With Mark on the prayin,

Gerry

take that get away no matter what
lots of love and prayers

Rrae	02-07-2013 01:51 PM

I think a get-away is a PERFECT idea!
You've done wonderfully with the other holidays you've taken and this time seems even MORE necessary than all the others combined!

You've been through too much. It's time to shake loose and enjoy another part of the world!
Course, we'll be expecting pictures when you get back! :D

Rae
:grouphug:

Mark56

02-07-2013 02:07 PM

Passport Packed

Ready to go!

Now................go

Saffy

02-08-2013 04:16 AM

I'm so regretting giving up my car at this moment. My daughter is at University at Keele and was rushed into hospital last night with suspected meningitis. I sent a text to my husband .. phone is here at home as usual and I can't get through to this work.

Have just had to e mail him.

The paramedics started Hollie on Anti Biotics straight away .. she's being admitted and having tests done. I'm just praying it's nothing too serious.

Prayers please.

Hannabananna

02-08-2013 07:44 AM

oh dear

Quote:

Originally Posted by Saffy (Post 955293)

Just reading this...thinking 5 hours ahead of me...noon to yu ...praying you are with Hollie now...sending comfort/support on a ray of light.
Do let this "prayer calvary' know.
Johanna

Mark56

02-08-2013 09:46 AM

Praying in Earnest Saffy

Quote:

Originally Posted by Saffy (Post 955293)

Oh Saffy, how very VERY frightening to learn of Hollie's situation on top of your own. Prayers are winging!!

:smileypray::smileypray::smileypray::smileypray:

Saffy

02-08-2013 12:10 PM

Henoch Schonlein Purpura ... this is what she has the latter ... a rare auto immune condition that can be deadly if it effects the kidneys, but hopefully Hollie will fight this and if it returns, fight it again.

Enclosed, see pic of her leg ... she is now walking around like us as it has given her arthritis of the knee and ankle joints ..

http://http://lh6.googleusercontent....86E4E55AAC.JPG

All times are GMT -5. The time now is 09:19 AM.

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