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Old 02-08-2013, 12:13 PM #31
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This might work
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Old 02-09-2013, 12:22 PM #32
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Shocked

Oh my! I'm so sorry to be reading this!

Praying that your daughter will respond well to the meds and that everything turns out well. Praying for you too, Karen, as you support Hollie in this battle.
Thank you for sharing this, as you know you've got all of us prayer warriors here!!

Rae
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Old 02-09-2013, 12:30 PM #33
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Heart Saffy,

Quote:
Originally Posted by Saffy View Post
Henoch Schonlein Purpura ... this is what she has the latter ... a rare auto immune condition that can be deadly if it effects the kidneys, but hopefully Hollie will fight this and if it returns, fight it again.

Enclosed, see pic of her leg ... she is now walking around like us as it has given her arthritis of the knee and ankle joints ..


Thank you for bringing your daughter's condition to our attention. Sounds like she is getting the much needed treatment in time.

Along with all you have going on; know we care. You have touched the hearts of so many of us. Please keep in touch and let us know how you and your daughter are coming along.

Love & Prayers,
Gerry
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Old 02-09-2013, 02:05 PM #34
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Heart Prayin

Of course, prayin.
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Old 02-09-2013, 06:44 PM #35
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Praying Hard!
nuf said
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Old 02-09-2013, 09:27 PM #36
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Yup [oops, wrong one] : smileypray:
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Old 02-13-2013, 01:00 PM #37
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Well .. she is still covered in the rash which looks awful .. and has arthritis in all her joints. I spoke to my Doctor and she was very concerned and told me that she should be having weekly blood, urine and blood pressure tests, to check kidney function .. I'll just talk to the wall. What can I do? She's 21 ..

We wanted her to come home and she would have done but is being forced to do two semesters in one because of having to have time off at the beginning of the year due to the stress of knowing the guy who sexually molested her got away with just a caution.

I'll stop about Hollie now because I just get upset.

I managed to get to the Doctor but it took me 46 minutes to walk from my house on crutches to the bus stop that normally would take less than 4 minutes. I was in agony and frozen walking up to the Doctor and four older people stopped to ask if I were ok (In't it funny how the young would perhaps like to approach you, but don't)

Anyway, a lady was getting another lady on crutches into her car and came over to me and asked if I needed help. I said I was going to the Doctors which was just up the road 2 minutes away. She said "Get in the car" ... and proceeded to take me to the doctors and then prayed for me, which I was really touched about.

My Doctor went mental at me for coming out in bad weather. She said this is the second time, what are you trying to do, break your back? I said my husband had said something about walking and so to be bloody stubborn I had done. She said I was obviously full of anger .. which I am .. because despite reading my Consultant letter saying that no wonder I am drugged up all the time and have memory issues because I am on so much medication, I still feel guilty that I am so, so tired all the time. (At which he also said he wasn't surprised)

So the deal now is to lower my medication and they are having a meeting re this Dorsal column ganglion thing. I am hoping that when I see my Surgeon on the 28th, he will have more news for me. Fingers crossed.

Have had an ok today but slept nearly all the day as I am on new tablets to stop my irritable bladder .. says on the box .. can cause drowsiness ...you bet it can. I am exhausted and could quite happily stay in bed all day sleeping on and off.
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Old 02-13-2013, 03:10 PM #38
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Default i'm so sorry

dear friend

i'm not in the direction of pity
you understand my concern
as someone who is a slave to
too my medicine i have been
thrown into withdrawal too many
times since "Sandy" and
and will avoid
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Old 02-13-2013, 04:57 PM #39
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Saffy,
Thanks for the update. That was really risky going out in your condition. With the anger issues, it is you that would be hurt most. It's just not worth it. Please be good to yourself. I know you have been given so many ups and downs.

Too bad your daughter has so much to deal with as well; but you can't put it all on your shoulders; it is too much for you. As you say, she is 21. Unfortunately, the man who moldested her got away too easily. Pray both you and your daughter can deal with this. It is tearing both of you to pieces. He's just not worth it.

Now wasn't that a pleasant surprise. Do you think that was coincidence this nice lady drove you the rest of the way to the doctors. Especially her praying with you. I do believe "conincidence" is Jesus' way of remaining anonymous. He was there with you all the time.

Meds are rough. I am on a high dose of Oxycontin and percocet; but without them making it thru each day would be even more difficult. I guess each of us have to decide what is most important in our lives. I do try not to lay down too much and keep busy because, as you know, they can make you sleepy. Although, I am lucky, the Oxycontin does not seem to react that way with me.

I Sure hope the surgeon's appointment on the 28th will bring some good news. ''
Let us know how it turns out.

Love & Prayers,
Gerry
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Old 02-13-2013, 06:40 PM #40
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Heart Hey my Saffy Friend

Reading all of the stuff which makes one angry made the moment of your rescue by a prodigious good samaritan JUST THAT MUCH BETTER!!! Oh to be lifted up so by one who then prayed for you captures my heart with the "want" to give you a huge hug. [Well, when Rae comes on, she will have the appropriate graphic, always does....].

I feel happy for you the meds and ganglion block are coming into your doc's scrutiny as to the need for proper consideration. May the RIGHT thing be decided to help you..... and may God shower you with blessings. Profusely.

Hollie- I just feel so concerned for her and pray all will ultimately be well for her.

Love and Prayers,
Love and Prayers,
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