[MDinpain2]

hello
I just finished a trial of nerve root stim for saphenous neuropathy after knee arthroscopy . I have been battling neuropathic pain for 3 years and have had lots of interventions.
the stimulator seemed to help but I had very irritating positionality problems. I could get severe zaps with even minor changes in body position..you have to laugh after but it isn't funny at the time hopping around like a chicken looking fir the remote !!
my question is whether this will settle down with time after implantation . It is at L3 level .
Thanks for any advice.

[pooh_ac]

Are you sure you haven't dislodged a lead. I would get those jolts if I wasn't careful when my leads had not scarred in

[MDinpain2]

Originally Posted by pooh_ac

Are you sure you haven't dislodged a lead. I would get those jolts if I wasn't careful when my leads had not scarred in

Thanks for your reply. My trial is over and the lead is out...I am trying to decide whether to have the implant but the positionality is a potential showstopper because it was so significant.

[Hannabananna]

" I could get severe zaps with even minor changes in body position..you have to laugh after but it isn't funny at the time hopping around like a chicken looking fir the remote !!"

Oh this made me laugh!1---I hope the boys & wifey .got to see it and got a laugh too.

HB

[Rrae]

Originally Posted by MDinpain2

Thanks for your reply. My trial is over and the lead is out...I am trying to decide whether to have the implant but the positionality is a potential showstopper because it was so significant.

HEY now! Me confused Are you the evil twin of 'MDinpain' ? OR is MDinpain the evil twin of YOU!

Well, whichever the case, it's great to have you! Welcome to the nut house I hope your implant will work for you (should you get it).
Was a representative of the unit there with you during the trial? I wonder what they might have to say about the positionality of your stimulation. In many cases, several tweak sessions are needed to get it right.
Do stick around!
Rae

[Hannabananna]

Me very confused too!!

[MDinpain2]

I am in no way an evil twin of MD in pain. I just am new to the forum, saw the post, saw some similarities in our situations so chose the name mdinpain2.
I did have have lots of tweaks and did have the company rep there. They approached the nerve root from below and got great position but lousy "positionality" if there is a word. Yes my family did most of the laughing at the time...mine came later.
I'm looking for someone who knows about this and whether I can expect it to settle with time.
My problem is a saphenous neuropathy after a simple knee scope not responding to any conventional or unconventional therapy hence the stimulator . I know some places are using dorsal root ganglion stimulation and high frequency stim as well. My centre here in Canada does not offer these therapies so am wondering if there is any experience with them for painful neuropathies.
thanks
mdinpain2

[Rrae]

I sure wish I could give better input. I did find a site which talks about DGR Stim and also "Axium" stim (which is new to me). It does mention the positional changes in stimulation which occur with each movement we make (standing, sitting, walking, etc). Not sure if this is exactly what you described. It also has patient stories and other info that may be of help.
Might be worth checking out:

http://www.spinalmodulation.com/pati...g-stimulation/

Neuropathic pain is certainly frustrating. The SCS is notorious for covering lower extremity pain. Is your saphenous neuropathy pain similar to peripheral neuropathy (burning, stinging)?

Well hopefully between the bunch of us we can dig around until we get the information you are hoping for!

Rae

[eva5667faliure]

Originally Posted by Rrae

I sure wish I could give better input. I did find a site which talks about DGR Stim and also "Axium" stim (which is new to me). It does mention the positional changes in stimulation which occur with each movement we make (standing, sitting, walking, etc). Not sure if this is exactly what you described. It also has patient stories and other info that may be of help.
Might be worth checking out:

http://www.spinalmodulation.com/pati...g-stimulation/

Neuropathic pain is certainly frustrating. The SCS is notorious for covering lower extremity pain. Is your saphenous neuropathy pain similar to peripheral neuropathy (burning, stinging)?

Well hopefully between the bunch of us we can dig around until we get the information you are hoping for!

Rae

And this be a perfect example of how
wonderful a place this is
Beautiful absolutely beautiful

[MDinpain2]

Originally Posted by Rrae

I sure wish I could give better input. I did find a site which talks about DGR Stim and also "Axium" stim (which is new to me). It does mention the positional changes in stimulation which occur with each movement we make (standing, sitting, walking, etc). Not sure if this is exactly what you described. It also has patient stories and other info that may be of help.
Might be worth checking out:



Neuropathic pain is certainly frustrating. The SCS is notorious for covering lower extremity pain. Is your saphenous neuropathy pain similar to peripheral neuropathy (burning, stinging)?

Well hopefully between the bunch of us we can dig around until we get the information you are hoping for!

Rae

Thanks very much for your reply. Yes what I seem to have is very localized neuropathy in the sensory nerves around my knee. Some type of "short circuit" was set off by damage to a little branch during arthroscopy and it's never been turned off since this happened 3 years ago. It is burning, stinging, electrical. , lancing in description and is stimulated usually by exercise . I didn't get the whole RSD sympathetic syndrome and it is still very specific , limited to the area on the medial side of the knee. Tried just about every therapy hence the trials with SCS.My docs are looking for a place for me to get DRG stim .Your link sis familiar to me but I will looks into it again.
Thanks again