I am feeling really upset and stressed out. I had another reaction to tysabri today (see tysabri thread). I'm not sure if I want to cry, scream, or ??? Does anyone have any suggestions?

Barb, I am sorry your having such troubles with the Tysabri. Will a hug do?

aw, barb, that blows!

I don't know *anything* about Tysabri, so can't offer any ideas.

but I CAN give ya hugs, and support!

I remember all the years of Betaseron and Copaxone, the trials and tribulations, the anxiety and worries... so... I WON'T say something trite like "Don't worry." 'cause that's nigh-unto impossible!

here's me (awake at 4 am, with leg cramps and hot flashes, lol), wishing you were feeling better:

Barb, I'm so sorry to hear about the reaction to the Ty. I wish I had some advice, hun. Lots of virtual hugs heading your way.

Sue, have fun at the concert!

Kay, awww the little ones are cute.

~~~~~~

Not too much going on. Have my cup of coffee and trying to wake up, as usual.

Have been very tired at the end of the work day lately. Hoping this isn't the beginning of a trend.

I have been awake since about 8am yesterday! Last night me and the bathroom became close friends. I don't know if it was something I ate or what happened but I know one thing, I sure don't wanna go through that again! And to top it off my legs are stiff and the crazy weird numbness in my face and tongue are back! I told dh to give the concert tickets back to his boss so that somebody else could go, I would rather do that than to see them go to waste. I just didn't think I could handle the crowd and noise plus it's supposed to storm tonight too. Oh well...there will be other times.

I'm going to try to eat a little something and lurk for a while then hopefully get some sleep.

Susan

Sue, So sorry to hear you're not feeling well. Rest up and get better soon.

Hey guys, thanks for the hug and poem Sandy of course it made me cry all over again!

FYI-in a moment of sheer frustration...I don't have them often as I am usually pretty positive I called Sandy yesterday and then midway thru burst into tears, which has been happening alot the past few days. For one I just got off my period...no hormonal issues there...yeah right! Then I have been in horrible pain the past few days,in fact after I got off the phone with Sandy I almost went to the ER later because I thought I was having a heart attack....alas it was only chest spasms because I and hubby could feel the muscles spasming!

Another pain issue is the allodynia, just wind whispering across my skin hurts, I have burning,numbness and a cold feeling in my arms and I went to my neuro and she actually seemed clueless about all of my new symptoms ones that clearly and obviosuly are symptoms of MS which then had me questioning if she even knew what the hell she was doing!

Barb- so sorry about the Tysabri, my first infusion is Tuesday. I am hoping it will help.

Last night after bawling to my mother for an hour ( I know Sandy, but she was actually sympathetic this time) Hubby went for takeout as I told him the pork chops could rot in the sink for all I cared because I was NOT cooking! I took a muscle relaxer because the chest spasms were so bad and then I went to bed...not to sleep as Olivia wasn't having that. I feel slightly better and I do mean slightly today or maybe my attitude has just improved a bit.

Renne, It sounds like you had a really tough day. I hope things go better for you soon. Don't worry about ny reactions to tysabri. I have had problems with all of the MS drugs as far as tolerance goes and side effects. I am also allergic to penicillin and sulfa. "I am such a delicate creature." Make sure you ask your neuro about blood work. Mine does seem to be keeping up with all of the warnings, etc.

I am feeling olay today. I have to "run" out and get bloodwork done soon. My MS does seem to be stable since starting tysabri and I do have a bit more energy so I do not want to stop. I guess I will just have to chill out and hope for the best.

Kay, thanks for thinking about me. Loved the dog. I have to deal with those **** hot flashes too. I seem to be either hot or cold.

Sue, I am sorry you missed the concert. I know you were looking forward to it.

Thanks for the hugs everyone.

Renee, Sorry to hear that things have been so rough for you lately. Sometimes the crying and screaming helps with our attitude. Scares everyone else to death, but can definitely make you feel better.

Sorry to also hear that the neuro seems clueless about MS symptoms. I'm beginning to think that we need to bombard these neuro offices with info during the MS awareness month. They never seem to agree on what's going on with us.

Hey everyone! I didn't hit the bills yesterday so today will be that day. Yay for me!

Renee, anytime you need a shoulder to vent on I am here. Sorry I went into "let's get you a new doctor" mode but that's my nature haha. Just ask Jim! I think I drive him nuts at times. I am glad you figured out the problem last night. That had to be scary girl! Hugs to you!

Barb, glad your feeling better.

Sue, I hate having a stomach thing. I'd rather suffer through the regular flu than have my stomach all tied up in knots and bolts! There is nothing like sitting on the pot with a garbage can in front of you. Yuck!

Fin, I just posted on your thread. I hope things work out for you. God is walking with you.

Has anyone seen Vonn?