FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#41 | |||
|
||||
Member
|
Hey Holly, I'm sorry you are going through this with your grandmother. I know exactly what you are going through. I'm sitting here watching my dad(at this very moment). According to Hospice, we only have a day or two left.
I wrote a novel for you, but deleted it when I realized I was spewing out everything I was feeling. You didn't need to hear that. Just know that I know what you are going through. My thoughts and prayers are with you and your family. Holly, remember to take some "ME" time. You cannot exhaust yourself. You will be no good to anyone if you do. Love ya DAY |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#42 | |||
|
||||
Elder
|
Holly,
I went through the same things with my parents so I can relate to a lot of this that you're going through with your Grandma. My Mom had the confusion earlier on though since she had Alzheimer's. My Dad had the confusion in his last days. They both saw deceased loved ones, and I felt that they were right there in the room with them. The one thing I could always do was hold their hand or hug them, and soothe them until the bad spell passed. I prayed over them in the final days, it seemed to help both of us. Your Grandma knows how much you're doing for her. You're such an awesome granddaughter, have I told you that lately? ![]()
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
|||
![]() |
![]() |
"Thanks for this!" says: | hollym (04-24-2009), Twinkletoes (05-03-2009) |
![]() |
#43 | |||
|
||||
Elder
|
Quote:
![]()
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
|||
![]() |
![]() |
![]() |
#44 | |||
|
||||
Legendary
|
Hang in there, Holly! Just being w/Grandma and loving her will help her along her path to be reunited w/Grandpa. I know how sad this time is, but cherish every moment and every word she says. During my Mother's last few days, I sat and listened to her tell me stories that I had heard long before, but I think I actually ''really'' heard them those last few days. I will forever hold those moments w/her in my heart.
I am keeping you and G'ma in my prayers. And Day, please know that you are in my thoughts and prayers also. I know how hard this time w/your Father is for you. It's never easy, but knowing our loved ones will be at Peace is what we have to hold on to. Take care.
__________________
DM . |
|||
![]() |
![]() |
![]() |
#45 | |||
|
||||
Wise Elder
|
Holly, just here to let you know I'm thinking about you and grandma.
![]()
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
|||
![]() |
![]() |
"Thanks for this!" says: | hollym (04-25-2009) |
![]() |
#46 | |||
|
||||
Magnate
|
Holly and Day,
My prayers are with you both at this time. ![]()
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
![]() |
![]() |
"Thanks for this!" says: | hollym (04-25-2009) |
![]() |
#47 | |||
|
||||
Senior Member
|
Those of you who have been through this process before, tell me what you did when your loved started sleeping all the time. She sleeps so much, but can still wake up for periods of time. I feel kind of lost for what I'm supposed to do. Sometimes I just sit in there, other times I just keep checking on her to see if she is awake, then sometimes I go in and wake her up.
I feel guilty waking her up, but sometimes I have to give her medicine and sometimes I just want to see how she is doing. I feel guilty sometimes just letting her sleep because I feel like I'm ignoring her and should be doing something else with her, but I don't know what.
__________________
Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
|||
![]() |
![]() |
![]() |
#48 | |||
|
||||
Wisest Elder Ever
|
Quote:
Sometimes he'd move his hand so I took that as a sign that he just didn't feel like being touched. That was OK....I wanted him to do what he wanted to do. I felt much the same way you do.....I was there but felt like I wasn't doing enough. He knew I was there and would do whatever was asked of me. Seemed like just another person in the room was all he wanted. Just to know somebody was there. A sweet lady that volunteered at the Hospice my Dad was in told me that she sometimes reads to the patients. Even when they are asleep or seem out of it she still sits and reads to them. Poetry or verses from the Bible....anything soothing and peaceful. She thought they enjoyed it even when they couldn't tell her. ![]() ![]() ![]()
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
![]() |
![]() |
![]() |
#49 | |||
|
||||
Legendary
|
Wow Holly, this is really bringing back the memories. When my Mother started to sleep more, I would put the TV on low and tell her what was on the news, etc or I'd just talk to her about the good times.
Sometimes I would find myself just rubbing her head lightly; as if I could hold on to her somehow. Sleeping more is a sign that the illness is taking more of her away. Just letting her know in some way of your own that your'e there is enough. I probably wouldn't wake her though, as it is part of the process. Hospice gave us books on what to watch for and what to expect, which really helped. I feel for you Holly; it's a tough and emotional time for you and your family. Keeping you all in my thoughts and prayers. ![]() ![]() ![]() ![]() ![]()
__________________
DM . |
|||
![]() |
![]() |
![]() |
#50 | |||
|
||||
Elder
|
I just hugged my Mom while she slept. I figured she needed the sleep so I tried not to interrupt. At the end she refused her meds so it didn't help to wake her up for them. The best thing was to keep her comfortable.
Keeping you both in my prayers... ![]() ![]() ![]()
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
|||
![]() |
![]() |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
help i am scared | Aneurysm | |||
I Am Scared | The Stumble Inn | |||
Scared!!! | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
I am scared | Bipolar Disorder | |||
New and scared | New Member Introductions |