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Old 04-07-2009, 04:08 PM #7
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hollym hollym is offline
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hollym hollym is offline
Senior Member
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Join Date: Jan 2008
Posts: 1,690
15 yr Member
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So far so good. There were a few roadblocks (no bags for the feeding pump, no med list from the nursing home, the first pump didn't work, etc.), but we got those worked out today.

I'm becoming a pro at crushing up pills and dissolving them in water to put them through the tube. I also managed to set up the new pump, prime it and hook her up for feeding all by myself reading the instructions because the nurse was gone by the time they brought a functional pump.

Tomorrow, she has to go back to the hospital to have the PEG tube looked at because it is leaking. They are also going to do a head CT to check on the swelling by her right ear to see if it is an infection or tumor growth.

She is confused by the nurses being here. She can't wrap her mind around the fact that she is in my home but it feels like a hospital part of the time, too. She knows she is dying now, though. She kept forgetting before, but I guess having hospice makes it real. She said she wished that we could just put people to sleep like we can with animals. She said it is stupid to do do all this crap and just wait to die. She is right, I think.

So far, hospice has been a good experience. They are taking care of everything that I want them to. I think it's going to be OK. I hope so.
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Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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