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#1 | |||
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Elder
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How do you all keep going? I have hit a rough patch. My legs are in constant pain, my brain is in constant fog mode, and I am leaking when it's most inconvenient, along with IBS sxs that make me afraid to leave the house.
I have confessed to DH that I want to disappear. There is a large part of me that sits on the bleachers, not getting engaged at all emotionally. I feel so empty & without purpose, and feel as if I am wasting the oxygen I breathe. How do you find purpose in the face of pain & the inability to really do anything of importance?
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#2 | |||
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In Remembrance
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![]() ![]() On days like that Deb, I don't know. There must still be a reason for our being here. For me, it's family. Although I sometimes feel I need them more than they need me, it's really a mutual thing and it's called love. So, on the bad days, give yourself a hug and know that you are loved and I/we all will pray that your pain and sadness goes away. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#3 | ||
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"Thanks for this!" says: |
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#4 | |||
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Senior Member
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That is exactly what I was just complaining to my neuro about. Thankfully, he heard me and is trying to help. He said I'm too young to feel this bad and wants to help me get my life back.
I think that honestly, if I didn't have kids at home, it would be easy to give up. I don't really have a chance to curl up in a ball like I would like to most days because I'm the mom. I really think you should speak to your neuro and find a good therapist. There's too much life left to live to feel this way.
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Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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"Thanks for this!" says: | Blessings2You (11-14-2011), Debbie D (11-14-2011), Jappy (11-14-2011), SallyC (11-14-2011), Twinkletoes (11-14-2011) |
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#5 | |||
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Wise Elder
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![]() But you do have a purpose. Right now you have a lot going on with your in-laws which only adds to how you are feeling. You are a very kind and compassionate person and I have learned so much from you as well as you being an inspiration to me to keep going. So, with that said, you do have a purpose and you do have a positive effect on others. You may not feel as though you do but you are far more important in this world than you are giving yourself credit for. ![]() ![]() |
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#6 | |||
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In Remembrance
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Nice to see you, Trish..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Twinkletoes (11-14-2011) |
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#7 | |||
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Elder
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I know where that dark place is, Debbie. It's a place where "look on the bright side, count your blessings" doesn't help. "Get a grip" doesn't help. Some days it feels like it's a lot of work to muster much more than "Whatever."
You said a couple of things in your post...you asked how we "keep going". Sometimes that's all you can do is keep going, and it's the most important thing you can do. Then try to hold on to the truth that it really IS a rough "patch". Just a patch. Not forever. No matter if you feel that way or not. Don't trust your feelings. Just hold on tight to the things you know are true. Sometimes life sucks. Sometimes it sucks for a long time. When you hear that voice starting to tell you lies (no one cares, they'd be better off without me, I'm just taking up space, etc.) DON'T LISTEN!! They are LIES! See a counselor, come here and talk, PM somebody, do whatever you have to do. One of the biggest lies is "nobody understands". Oh yes, somebody does. I can share things here that I can't lay on my children, things that my husband (God bless him) just doesn't have the capacity to identify with. Almost all of us have been under the rock sometimes. You'd be surprised how many are there at this very moment. You're not alone. We don't all get out from under the same way. Some can leap, some crawl inch by inch. But there's always a way. I'll say it again: You are NOT alone.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#8 | |||
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Elder
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I am so touched by you all sharing these very important thoughts...as you all know, these symptoms are so very frustrating to deal with and can drain all of the energy, energy that is sometimes needed to keep going.
I need to keep going-you're all so correct. It would tear my family apart... Thank you all again...and please keep me in your prayers so I can get through this...I've been in therapy off & on when it gets bad; I have the tools but I don't always have the wherewithal to fight. I DO need to remember to allow these thoughts to move through and out of my brain...I will continue to tell myself all that you have shared here so that I come back to myself and let Gods light shine through me again... Blessings to all of you...I am so lucky to have you all!
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#9 | ||
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Magnate
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