Sorry guys but you'll have to drag Jim and I down there with you to kick some Tanya butt. And to think I sent Tanya a MS Walk shirt some 18 years ago. Let's make her put it on over her bathing suit and lay her out in the yard!

Poor Tanya, it isn't her fault!

A while ago I posted a thread asking about sharing creative ways to explain our various symptoms. What I got was a few responders (including our Kelly) saying they're sick of explaining, and sharing creative ways to tell people "bite me".

If somebody really, really wants explanation, I have some ready. Most of the time they mean well, but it seems as though they either want to argue with you or say "I know just how you feel...."

I agree with those who just get sick of it.

Hi Kelly!!! I know it gets frustrating sometimes.

People truly just don't understand.

Anymore, when I go to a family gathering ,I wear my MS SUCKS tshirt (It's a white tshirt with huge red letters)


Not one person asks me how I'm doing, Is the meds working, etc......

I like it better that way

Ooohhh Beth! I could make a shirt that says MS Sucks and so do YOU if you ask me why! lmao

Kelly - to you!!!

I just made a long post of my own under Social Chat.

I wish I knew how to get others to understand your sick and there are things that are going to make you sicker.

I finally found something on MCS yesterday that some what got thru to DH. It said that these chemicals/fragrances that most others came be around and don't bother than that a person with MCS is 1000 times more sensitive to those chemicals/fragrances. I told him that was why I could even smell them when he couldn't.

I don't know if there is anyway to get thru some people but I'm always looking up stuff on it hoping I can find something.

HUGSSSSSSSSSSSS

try that with being undx then it really is fun to answer over and over..how heat or how I get with humidity...ugggg hugsss,sarah

I was there for YEARS my self. Looking back I have had these same SX for over 15 years, they have just gotten worst over time. Been really trying to get a DX for about 10 years.

It has gotten to the point where I just say 'no' and don't bother explaining or trying to 'educate' family, including my DH at times. I find I am just repeating myself to those who aren't even listening. Maybe next time I'll try the lines you guys/gals use!!

True Karousal, you get to know the ppl that really want to know and try to understand and others who are just hoping you get better without understanding...so in a way they both are usually someone caring about you..cause the one might just be bummed not to get to spend much time wiht you..hehe hugssss,sarah