Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 06-16-2007, 07:36 AM #801
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Thank you, jo!!

You are rught, I have to take care and I promis, I will do it!!!

Wish you a very nice week-end,
Barbara
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Old 06-18-2007, 08:48 PM #802
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Today I just dont feel well. God it makes me so sad to always not feel well. THis weekend I went out with hubby and 1/2 way thru did not feel well. I felt so bad for him, not to be able to go out with his wife and walk the promenade.

Dabbo I think I am just having one of our TOS tantrum's today . I just cannot imagine coping with this for 20 or 30 or more years. I cant do this.

Bad day.
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Old 06-18-2007, 09:01 PM #803
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Default tantrum time.....

I'm sorry you're having a bad day shelley.... chin up. I'm having a tantrum too.... when i go to the doc tomorrow it'll be 8 weeks since my last visit (pre-Connecticut trip) and 9.5 weeks since my last brachial nerve block. Throw in the stress from work the last 3 weeks (we've been busy! - thats good tho) and the softball mistake from last week, and i'm up a creek. oh well.

i hope everyone else is doing well......

i know it could be much much worse. but the longer this goes on, and the more active Eva becomes, the more emotionally it hurts. that being said.... the majority of the time between the 2 visits has been "good." <-- N.B. thats my re-defined good. 2 years ago that "good" could have been "bad." but whatever.
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Old 06-19-2007, 12:28 AM #804
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Dabbo - when I saw the news about that car at the charity event that went out of control and crashed into the crowd in Tenneseee - I thought of you.
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Old 06-19-2007, 12:42 AM #805
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I'm wondering how Mark is doing- haven't seen him posting much lately. Also, speaking of TN, I found out today that a guy I went all through school with, from 1st through 12th grade, lives up there and is back in the hosp. with cancer and is in very bad shape. He had Hodgkins Disease (I think) when we were in the 7th grade and I believe it's come back in his lungs now and he's developed pneumonia. I haven't seen him in years but he was always such a nice, upbeat guy and from what I understand from other classmates that have seen him, he's still the same way and has such a great attitude about this and his life. It's just so hard to hear what someone you've known for so long is having to deal with. When I heard about this it made me feel really bad for complaining about my foot hurting and about this cold that my gr'son shared with me.
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Old 06-19-2007, 05:56 AM #806
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Default Today..

is my 2nd day at work. the secretary helps me a lot but there are hundreds of little hand movements during the day, I did not recognize them until now.

since 3 days the left hand hurts very much (overdone) - and this is extremely stupid as it is my one and only help!!!
so when it rains it pours I think you say in english, or something like this?

there will be better days in my life than these last ones and I am keen on seeing these better days!

all the best for all who have a bad day too, today!
and of course for those who have a good day today - I hope you can enjoy it.
barbara
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Old 06-19-2007, 08:01 AM #807
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Default I quit...

...posting on this thread because I don't have anything good to report.

My psych. started me on cymbalta a week ago. I took it for 2 days - I think LSD and Speed would have done the same thing. I will admit that it reduced the nerve pain, I really wanted this med to work, but the side effects were too severe. Now the nerve pain has returned and weather systems moving in are re-aggrivating everything, especially my mood.

One bright spot tho, and old friend I used to work with for many years has resurfaced. He and his best friend (who has cancer) have made a CD of old skool rock n' roll and I have been able to advise them on getting their art ready for printing the cover. Good times... good friends.

I'm so lucky to have you guys here to vent at. God's richest blessings to you all!

Anne
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Old 06-19-2007, 11:46 AM #808
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I think Mark has to wait for approval for the permanent pump- the first was just a short trial to see if it would work for him.

Barb- can you only work half days??

Anne - you don't have to only have good news to post here anything is OK.

Hope everyone has better day today
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Old 06-20-2007, 02:13 PM #809
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Default Dragon, DUH!!!!

Got smart and got dragon back out... what a difference on my hands.
Why am I so stupid using my hands when I have it right here on my computer???

Could somebody please hit me over the head once in awhile with a 2 x 4 or poke me or something to remind me not to be so stinkin' stupid?


In other news,I can scoop ice cream again with my left arm. Very happy about that

Happy day to all

Johanna
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Old 06-20-2007, 02:19 PM #810
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Thank you for thinking of my Jo..... Selmer is about an hour away from here. I have relatives (in-laws side) that live outside of selmer; thankfully none were there at the time.
I made it to the pain doc yesterday, and left with a brachial plexsus block, a neck TP, a scalene TP, and 2 trapezius TP's (thank God.) Doc was pleased that I'd been 2.5 months, but the idea is to go longer in between. Hoping.......
mark - i hope you get approval for the pump long term.
barb- take it easy.... i hope your hand feels better
red- i'm sorry to hear about your friend. are they treating him in memphis?
shelley/peg/di
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