Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 06-22-2014, 09:01 PM #21
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Coop has has tos for a very long time....even longer than me... He has also had a bad surgery a ways back. Everyone is different, and he probably has a lot of funky stuff going on inside of him by now, I am certain I do. Tos isn't supposed to affect the lower extremities either, but my hip flexors are so weak my left leg gives in on my sometimes now...since the anterior scalene botox.

Curving/rounding the shoulders is done to compensate for the body not working correctly. Doing so always made me feel more relaxed. I would go to pt to work on this, but I slept on my side after I feel asleep, always, until after my pec minor release, thus undoing any pt to correct this. Now I sleep with neck pillows and heating pads on my back to start and a side sleeping that doesn't curl my shoulders because that feels awkward now that I have had the pec minor release. I usually put a heating pad on my neck when side sleeping to better tolerate it.
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Old 06-23-2014, 01:13 PM #22
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Coop has has tos for a very long time....even longer than me... He has also had a bad surgery a ways back. Everyone is different, and he probably has a lot of funky stuff going on inside of him by now, I am certain I do. Tos isn't supposed to affect the lower extremities either, but my hip flexors are so weak my left leg gives in on my sometimes now...since the anterior scalene botox.

Curving/rounding the shoulders is done to compensate for the body not working correctly. Doing so always made me feel more relaxed. I would go to pt to work on this, but I slept on my side after I feel asleep, always, until after my pec minor release, thus undoing any pt to correct this. Now I sleep with neck pillows and heating pads on my back to start and a side sleeping that doesn't curl my shoulders because that feels awkward now that I have had the pec minor release. I usually put a heating pad on my neck when side sleeping to better tolerate it.
Yep, 34 years I've had it so it affects my entire body.
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Old 07-05-2014, 10:00 PM #23
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Because you have TOS. Because you are adding several hours of compression in the thoracic area every time you side sleep. Those aren't opinions, only the conclusion is.

You may wake up without pain, but I also saw your video regarding the low temp in your hands. And I wasn't waking up in pain from side sleeping either. But I have experienced the positive results of removing the compressive force of hours of side sleeping. Therefore I think you're missing out.
So I sleep through the night comfortably on my side, and many here don't sleep well at all. You say there's a conclusion. Not sleeping, or waking up in pain is best, if it's on your back? Why? The shoulder I sleep on is actually elevated. That makes no sense.
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Old 06-04-2015, 12:52 PM #24
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Because you have TOS. Because you are adding several hours of compression in the thoracic area every time you side sleep. Those aren't opinions, only the conclusion is.

You may wake up without pain, but I also saw your video regarding the low temp in your hands. And I wasn't waking up in pain from side sleeping either. But I have experienced the positive results of removing the compressive force of hours of side sleeping. Therefore I think you're missing out.
Was there any method you applied to sleep on your back? Its just proving impossible for me to do. All the benefit of a day of careful movement and what not goes right out of the window when I side sleep and I wake up with painful neck and hands.
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Old 06-04-2015, 12:58 PM #25
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Early on I had hyper sensitive elbows, so just touching on the mattress was enough to keep me awake.

I padded & wrapped my elbows and that helped me to not sleep on my sides back then.
Some use a pillow or rolled blanket along the sides of their body til they get used to sleeping flat.
A very comfortable pillow & mattress helps a lot.
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Old 06-04-2015, 01:39 PM #26
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Was there any method you applied to sleep on your back? Its just proving impossible for me to do. All the benefit of a day of careful movement and what not goes right out of the window when I side sleep and I wake up with painful neck and hands.
I did a couple things:

-- Printed "NO SIDE SLEEPING" in huge block letters a couple times and put one in the bedroom and one in the office.

-- Put pillows on each side like Jomar mentioned.
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Old 06-04-2015, 03:11 PM #27
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I did a couple things:

-- Printed "NO SIDE SLEEPING" in huge block letters a couple times and put one in the bedroom and one in the office.

-- Put pillows on each side like Jomar mentioned.
Thanks! So the pillows are basically to prevent you from rolling back onto your sides. Do you find neck position to either side an issue?
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Old 06-04-2015, 03:23 PM #28
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Thanks! So the pillows are basically to prevent you from rolling back onto your sides. Do you find neck position to either side an issue?
A little neck turning seems okay, but not too much to the TOS side. But you could do the same thing if you needed too.

There is also a transition posture you might try. You start on your side, but then twist you upper back to lay flat so your shoulders aren't compressed. I find it hard to maintain though.
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Old 06-04-2015, 04:43 PM #29
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A little neck turning seems okay, but not too much to the TOS side. But you could do the same thing if you needed too.

There is also a transition posture you might try. You start on your side, but then twist you upper back to lay flat so your shoulders aren't compressed. I find it hard to maintain though.
I have bilateral TOS. I am sleeping on my non dominant side coz its a tradeoff. Ok, looks like side sleeping has to stop with some concerted effort on my part.
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Old 06-04-2015, 05:24 PM #30
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Does anyone wake up w biceps soreness that are side sleepers? When I wake up on rt side mostly I have bicep sore, espec if I take a valium bf bed as this makes me in a coma so I'm on one side too long. Was hoping Pec m surgery would of helped this, but doesn't look like it has. I haven't heard anyone on here complain about biceps pain. I dont think my surgeon knows why I have this sx. Ive had this sx since 2009, and 3 surgeries I thought would of helped! So strange wish someone had answers to why st least!
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