Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Old 08-15-2007, 07:36 PM #1
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Default Hi all,

Phoebe here. Bored to death and too hot to even open doors for dog and cats, thank goodness for pet doors! 104 today (one more day).

I'm doing well. I'm in kind of a standard mode of trigger point releases, followed by stretches, it seems to be my best bet. 4 - 5 X daily, only for about 10 min. each time. I've got neuro involvement from either c-spine or tos. Chiro when needed. phoebe
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Old 08-15-2007, 08:08 PM #2
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Heart

Hi guys. Not posting much due to needing to do some other computer things and I just don't have enough arms to do here too...but am lurking. Will be in FL Fri-Sun visiting my brother (Orlando) and good friend (Tampa). Not a fun trip, but one I've been putting off for 2 years. Ran out of $$ For Feldenkrais, but really learned some good stuff. I go to the YMCA every other day and walk/hot tub. Pain is a bit better with this High Pressure system in place - but the 100+ temps are miserable. can't breathe outside air at all. Once the next weather system sets in it will be back to pain hell. SSD scheduling should be about 5 months away.

On the brighter side, I'm in love and so far, he's OK with the TOS...he's very gentle and thoughtful in regards to my pain. But he hasn't seen a flare up yet - let's hope it doesn't spook him.

Good luck Johanna on the upcoming procedure! Mark, hope the upped meds give Goob the heave-ho! Much love to all of you folks!

Just came from Church where I prayed for us all here in TOSland.

Peace,
Anne
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Old 08-15-2007, 09:06 PM #3
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enjoy it, anne - lots of fun to be lovestruck

PS, I vote chcoclate cake for the food OTM !!!
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Old 08-16-2007, 03:50 AM #4
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I don't post much but I read the boards at least 4 times a week. I'd be lost without this place. Thanks for all the great info and support.
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Old 08-16-2007, 05:57 AM #5
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Quote:
Originally Posted by johannakat View Post


enjoy it, anne - lots of fun to be lovestruck

PS, I vote chcoclate cake for the food OTM !!!
>>>>>
>>>>>Vanilla Tatstycakes Vanilla covered chocolate with vanilla centers just to ab about the freezing point in the frodge washed down with homemade super weet iced tea

in love... thought there was a new spring in the type set
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Old 08-16-2007, 03:54 PM #6
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Default hmmmm treats

Hi I am still here and I have been having issues with my pain and my computer. I am having issues with docs here in Calgary.......but here and posting when able....
hugs to all!!!!!!!!!!!!!
Victoria
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Old 08-16-2007, 06:33 PM #7
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Hi everyone,
My Mom thank God survived her brush with death and is finally home after spending a couple of weeks at a rehab hospital.(after almost 3 weeks in icu, 2 weeks on the respiratory ventilator.)Then she spent about 10 days on the medical floor.

Dabbo,
I hope you can get a c-pap machine if you are having sleep apnea. Mine has really helped me, even a little less pain. I wake up feeling somewhat rested.

I'm getting weekly massages by a wonderful therapist certified in neuromuscular massage. It is really helping. I'm starting with a new clinical psychologist to help me deal with the cr*p that goes along with tos.

My prayers for all dealing and suffering with tos.



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Old 08-16-2007, 10:35 PM #8
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I'm here. Looking for a PT or massage therapist to help me with elbow pain that is likely to be plain old tendonitus. Waiting for a venogram (on other side) and trying to stay calm until I get results. Thanks all for all the support.
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