On a side note, yesterday I kicked *** literally in my pool, went to the grocery (with help) and generally had a GREAT day.

My pain started to rise about 7 PM, and by midnight I don't remember anything and fiance said I was "up", sitting up in a chair, ALL NIGHT, talking to myself.

I am only taking 50 mgs of Topomax...

I STILL can't talk right.

So I'm going back to bed as almost every word here I misspell and it's frustrating and I could fall over asleep anyways...

Does anyone get this?

Gentle hugs to anyone else in pain today or feeling alone. I love you all.

Is it a blood sugar thing??
Or do you think it's the Topamax?

Years ago when I was trying to get off of all meds, as I was slowing down, the less I took, the more I acted drugged. I acted drunk as I took less. Could be as you are taking less topomax it is having an affect on you. Don't know but I know that had happened to me with different meds. I would sleep walk. Get up at night and light the stove to make tea. My husband was a wreck. He couldn't sleep worrying I was going to burn the house down. I had fallen down the stairs. My mother-in-law had to move in with us. It was embarassing. That's when I checked in to the hospital in NY. The best thing I ever did. Just had to get all the crap out of my body. It wasn't that I needed it any more, it was that my body wouldn't let me stop taking it. Good luck. Have your fiance keep an eye on you so you don't hurt yourself and feel better. Linda

Hi Tamara,
I take 100mg of Topomax a day. I find that there are days that I do slur my words and speak gibberish. As far as I am aware I don't sit up and talk to myself throughout the night.
I agree with Jo have you checked your blood sugar that sounds like you might be hypoglycemic. Call your doc Tamara.. I would hate to see you have a reaction because of your diabetes..
Many Hugs
Dawn

Possibly the blood sugar - even though I wasn't testing nec. high...

Because of ER trip, I had CT scan with contrast fluid where I couldn't take the Metformin for two days. Although the sugar was not terribly high, it was higher than what is recommended...and that could result in sleepiness like that.

I am still exhausted, and just drink a bit and then fall asleep with all sorts of noise around again...this is very weird, and the only "new" thing is my extended swimming with the swimming board.

It could be though that I over exercised, and I was over physical on that particular day because I just felt so good and so normal that day, and the swelling kicked in big-time.

This was a very big surprise.

I have found now when I exercise to the degree my therapist wants me too
Its waaay too much and the RSD/ Fibro sets in BIG time even though the rest of my body feels strong and my mind is clear and free of crapola.
I'm learning to acknowledge that too much is too much
Taper off and find that happy medium.
And to top it off I've had sleep apnea with crazy RLS and aches, pains for the last couple of months.
Silly me, I used to laugh at the drug commercial of RLS thinking there is a damn drug for just everything not realizing I have had it ALL along not just the pain of finding comfort in order to sleep.

Just after our fun lunch and me making myself walk on Tuesday I've been in such a bad way
It also could be a barometer contribution too
Grrrr....
Happy medium to strive for!