Hi all, just want to share some things that helped me after being diagnosed with TOS -- whether i REALLY had or not, im not 100% but several therapists/orthos claimed it as well as an ultrasound confirming certain arteries losing blood flow when i raised my arms).. i also was misdiagnosed with having bilateral cubital tunnel syndrome and even got an ulnar nerve transposition in my left arm, which did little to help..

i went to PT for 2 years, had 1 surgery, masage therapy, as well as some other treatments which all helped to an extent, but ill share what REALLY has helped..

one other thing, i was lifting a ton before i really became unable to do things because of severe pain/numbness/weakness in pretty much all upper extremities, especially on the left.. however, as I stopped lifting (having to) and i got in worse and worse shape, my condition worsened contrary to what many as well as myself would believe.. i believe this is because of postural reasons(???) as most PT/recovery treatments influence strengthening to keep the postures/nerves/etc supported

anyway, i was introduced to something called Active Release Techniques (active release dot com - i cant post links yet ) (aka ART) from a friend who receives it weekly (he is a D-1 athlete) for various injuries.. i really wasnt too optimistic of it working as nothing as, but this chiropractor who is certified in ART did more for me in TEN MINUTES (i swear to God, 10minutes) than 2 years of PT/Massage/surgery/etc.

what he did was relax (i guess is the word?) my scalenes with his hand(above the collar bone), altered my head/neck in several set directions each time, then glided the median/ulnar/radial nerves through with 3 different movements(they wouldnt glide without him relaxing the scalenes) and then did a number of "techniques" on my SCM/neck/subscap/forearm/wrist/and some other upper extremities which seems to keep the nerves freed up everywhere they pass through and eliminates scar tissue which can pinch/trap them.. i visited back every other day (or maybe every 2 others, i forget) for about 7-8 days, each time feeling significantly better and the nerves gliding with less and less of him altering soft-tissue/muscles.. i now go back every other week for this injury among others..

anyway along with ART, i learned several other things to do/not do to alleviate pain/nerve irritation..

-IF you get ART like i did/am, STOP doing those PT nerve stretches that invlove HOLDING the stretch for a number of seconds.. just simply emulate the 3 stretches the ART chiropractor/trainer/etc uses (they are pretty similar to the PT ones) but do NOT hold them-maybe for a second or 3, just do the movements.. i realized holding them for 10+seconds or so provided instant relief, but long-term irritation.. just doing them for 1-3 secs provided the same relief without really overdoing and damaging the nerve.. however ART did NOT completely fix my problem but these things have helped a TON along with it..

-muscle stretching.. you guys know all these.. dont overdo them though.. scalenes/scm/deltoids/tris/traps/forearms/lats/lat-tri attachment/subscap,chest etc.. stretching is very important, especially before/after strengthening

-next.. STRENGTHENING is KEY.. i went to john hopkins and they told me NOT to strengthen, their top vascular surgeon told me this.. she claimed my build was too small in comparison to my scalenese or something and that i should never ever do chest(bench press,etc) again.. this couldnt be more off.. every single time i work out, i feel ultimately more improved over the next couple of days after soreness subsides.. you def want to start out slow (and dont start to strengthen till a few weeks after your initial ART appointments so the nerves can heal a bit/reduce irritation).. strengthening of chest/delts/upper and lower back/tris have helped so much.. your posture is so much better when you sit in a chair or sleep or anything, i no longer get that instant muscle tightness/pain and nerve irritation when in certain postures like i did before (as well as the 24/7 shoulder/hand/arm/even facial pain i had before ART/strengthening/etc)

i really dont know why all these docs say not to strengthen, like i said the vascular at hopkins as well as DR. Richard Sanders (who i saw mentioned on here, who i talked to on the phone) were completely against any strengtherning - though PT DID influence it

-sleeping.. never ever sleep on your stomach, you all probably know this already.. i also got into a habit before i improved of using a neck pillow or no pillow because it was less painful.. again if you choose my route and get ART/strengthen/etc.. continue to sleep on your back, but with a neutral pillow as a neckpillow/no pillow tightened my SCM/neck very bad.. you also dont want to use too high of a pillow.. your neck should be neutral.. i recently started to sleep on my side sometimes again for the first time in like 2 years and i find it helpful to hug a pillow, it also will prevent (or it does for me) rolling onto your stomach

again, im not 100%, but i am 90000000x better than i was just a few months ago from everything i have posted.. i no longer have numbness/weakness/tingling, no constant pain in shoulders/upper extremities.. my traps are no longer completely knotted/tighted up.. my face/ears no longer feel beyond tight/knotted up.. headaches/lack of sleep/increased symptoms at night - significantly reduced.. chest feels loose, everything is just night and day

Im not trying to advertise ART, I just felt so hopeless/depressed and i know what some of you are going through.. many i am 100% sure have it 10x worse than I did but really if you are desperate, take my advice..

my email is ** if ya's have any questions.. if you want you can post this on another message board... just trying to help

thanks

Hello ,
Congratulations on your great results, and for sharing what helped you.
I think my chiro uses a bit of ART influences in his treatments.

I think the secret for me was getting out of the spasms and trigger points first before beginning any strengthening. And getting my top ribs dropped back down.

If anyone is wanting to see what ART is like you can search for videos of it.

Thanks for sharing. I appreciate the time it took you to post your experiences. It's good to hear what you have tried and know it helped. Glad you got relief. Keep up the strengthening. You go girl......

I also think my therapist incorporated that into the myofascial release therapies I underwent. Strengthening is great but takes its toll on my scalenes. I do have to pay attention not to overstretch or overuse those babies. I have to listen to my body. It's a work in progress.

Why is his email address blotted out?? Is this big brother at work??

Nope. Not big brother. PM him for the addy.

Most people don't want their addy's on a forum. Since search engine bots and spiders cache the posts, that means an email addy show up on searches and right into the hands of spammers.

Just so I clearly understand, you are saying that mikeyson did not list his email because he did not want it posted, or are you saying that you took it upon yourself to remove it as if you were performing a public service because he didn't realize the consequences of his own actions??

We do try to remove email addresses if we notice them for the reason mentioned.

Often members don't realize that the "web bots" & "search bots" can pick up on email addresses when they are posted.

A PM or forum email {if enabled} will work just as well and with better privacy.

Just click the user name in a members post for PM or email options.

I am glad that whatever you are doing is working for you.

But remember there are different types of TOS and that not everyone responds the same.

Neuro TOS from over work on a computer is how I got sick. I have had a rib removed with scalenes (as much as they could.) However, I am bedridden most of the time and now have autonomic neuropathy (and developed diabetes which I believe came from taking Lyrica and Cymbalta, because of how fast I got diabetes with these meds, according to my blood testing being done every couple of months.)

I was not a weight lifter. I did not have any "hobby" which could have caused this, as I just worked all of my time, really. Plus, the hand pain came first, then within a few months, TOS came on.

I believe this kind of TOS is from multiple crushes caused by swelling from overuse, and now that my brain / nervous system is damaged, further damage results as I age. I believe that neuro TOS can cause an immune type response also, which creates the swelling (inflammation) issues which hurts more nerves and causes pain.

Since 11/02 I have been in pain, and since 2003 I have not had a day that was less than 5 to 10 in pain. It is a horror. Sometimes I will have a good day, and on those days, I thank God.

Richard...when brand new members post their personal information, such as email addy or sometimes they will put full real name and phone number, yes we will remove it and PM the member regarding privacy.

If they would like it put back in, then we will glady do so.

If you have further questions about this, please PM Jo or I, as this is very much off topic and is hijacking the thread.

Thanks,
Curious

tshadow, I feel so bad for you. I know that you're suffering more than the post describes, and in so many ways.

I hope you find some peace today.

I know if it were within you power you would be up and at'em.

I had chronic, severe intractable pain 24/7 from 10-2000 till sometime in late 2006. My pain scale ranged from 8-10 with very few 7s.

I'm having it rough these last 4 or 5 days, emotions, depression, causing worse insomnia, some old pain maybe up to 3, but nothing like I was. I dont know how I stood all that but I did. I don't want you to suffer like that either. I pray you will have less pain and more mobility. Please, Lord, let it be your will. amen...