Thank you for replying! My neurosurgeon wants me to read alot, start an instrument, and learn a new language. I am also trying to go on a gluten free diet. and possibly exercise at least 10 mins a day as my POTS allows it. In the past i had tried a holistic approach where i was on tons of supplements but it was a little sketchy and did not see improvement. Is that what you are talking about? I alrerady take fish oil and vitamin D/ coq10. I am slo going to try to get off my medicine. With the ehlors danlos, and POTS i still think there is something there...structually. ARE there ANY more tests i can do for my brain and neck region? Vascular/not? My neurosurgeon still highly suspects i have another vitamin deficieny or mitochondrial disorder going on. Has hypobaric chambers every helped? As i have always complained of "not getting enough blood and oxygen to my head"

Also i'm very curious as to how this started as i really don't rmeember. Could concussions put these things in motion if i already had a head injury ewhen i was six? Then maybe the ocd exacerbated and my mental state changed? They have actually related the POTS to the brainstem comppression. i wonder what made my thinkng "sedated" though...And the thoguht of all these meds affecting brain development with ECT on top pf that wheni could have had an injury is scary.

What vitamins have you tried and in what doses? It takes a few months to start to see a difference with nutritional therapy.

Tons of supplements is awful vague.

Vit D, CoQ10, and fish oil are good but only a very small part of the nutrition equation.

Have you had a blood test for B-12 and folate?

How about hormone tests, Thyroid, testosterone, and all of the other hormones?

How about the Neuro-Psych Assessment?