Thank you for replying! My neurosurgeon wants me to read alot, start an instrument, and learn a new language. I am also trying to go on a gluten free diet. and possibly exercise at least 10 mins a day as my POTS allows it. In the past i had tried a holistic approach where i was on tons of supplements but it was a little sketchy and did not see improvement. Is that what you are talking about? I alrerady take fish oil and vitamin D/ coq10. I am slo going to try to get off my medicine. With the ehlors danlos, and POTS i still think there is something there...structually. ARE there ANY more tests i can do for my brain and neck region? Vascular/not? My neurosurgeon still highly suspects i have another vitamin deficieny or mitochondrial disorder going on. Has hypobaric chambers every helped? As i have always complained of "not getting enough blood and oxygen to my head"

Also i'm very curious as to how this started as i really don't rmeember. Could concussions put these things in motion if i already had a head injury ewhen i was six? Then maybe the ocd exacerbated and my mental state changed? They have actually related the POTS to the brainstem comppression. i wonder what made my thinkng "sedated" though...And the thoguht of all these meds affecting brain development with ECT on top pf that wheni could have had an injury is scary.