Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-07-2013, 11:53 AM #1
DFayesMom DFayesMom is offline
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Cool Return of dizziness--unsettling!

I'm not super dizzy, but I have been experiencing low-level dizziness since yesterday afternoon. I had a very busy weekend, traveling 2 hours to my parents, having my daughter's birthday party, spending the night, and riding two hours back. Then yesterday morning, my daughter's head bumped mine, not very hard though. I dropped her at day care and then spent two hours on the computer--which I haven't done for over a month.


It was shortly thereafter that I noticed the dizziness. I went to my vision therapist today, and she thought maybe it was he cumulative effect of the busy weekend, the head bump, and the computer usage. She just suggested I take it easy today and tomorrow and see how I feel. I thought my dizziness was totally gone, so I'm very worried!


I talked to my neuro-op and he said he had just gone to a conference where he learned new info and techniques that he thinks will help me and that I will need to do some more of the sensory integration therapy. I am frustrated because it just seems like it could be a long time that I'm doing therapy and a lot of money that I'm spending. Any thoughts?
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-07-2013, 08:28 PM #2
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Attention I'm freaking out!

My dizziness was gone for a month and then out of nowhere, I'm feeling dizzy again! Why? What did I do? Ugh! Pray for me that it goes away and I wake up fIne tomorrow!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-07-2013, 11:46 PM #3
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I had a Very bad period last month. Huge setbacks. I was overtired from a lot of activity and I gave myself BPPV (vertigo) from trying to dance with the WII fit! I turned around quickly and moved my head up and down. Not good. You may have BPPV - a head trauma can dislodge crystals in the inner ear which then send false messages to the brain and produce vertigo! On top of the concussion dizzyness. You can get that assessed by a vestibular therapist. They can get you to do a maneuvre to get the crystals back in place. Do you have nystagmus? That can be a sign of BPPV.
Just an idea, as many people with head trauma develop this!
Hope you feel better soon. Ups and downs. Slow healing. But it will come.
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 05-08-2013, 06:37 AM #4
DFayesMom DFayesMom is offline
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Default Thanks for responding

Quote:
Originally Posted by Mokey View Post
I had a Very bad period last month. Huge setbacks. I was overtired from a lot of activity and I gave myself BPPV (vertigo) from trying to dance with the WII fit! I turned around quickly and moved my head up and down. Not good. You may have BPPV - a head trauma can dislodge crystals in the inner ear which then send false messages to the brain and produce vertigo! On top of the concussion dizzyness. You can get that assessed by a vestibular therapist. They can get you to do a maneuvre to get the crystals back in place. Do you have nystagmus? That can be a sign of BPPV.
Just an idea, as many people with head trauma develop this!
Hope you feel better soon. Ups and downs. Slow healing. But it will come.
Hi Mokey,

Are you doing any better now? It sounds like they fixed the dizziness, right?

I have a call into my vestibular therapist just to ask her opinion, but since vestibular therapy didn't help me, I feel like it has to be my eyes. I do not have nystagmus, and I did have a VPN test, so I think that would have caught it. Could I still have BPPV?


My dizziness is very low level but seems present all the time, whereas I used to just get dizziness with movement, but it does get worse with any movement. My vision therapist said it could be allergy related but that seems unlikely to me. I guess I just mostly feel kind of high, like someone drugged me.


I can't decide if I feel better at all this morning. I guess I'll just go on with my day trying to rest as much as I can and see how I feel.


Funnily enough, I've been wanting to try playing Just Dance on my Wii for weeks, and yesterday was going to be the big day, but I guess I'll have to wait a while still for that!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-08-2013, 07:01 AM #5
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Default Relapses

I know I relapsed a little on Monday from an overactive Sunday.

I took a much longer walk than ususal, got up early to help clean up from post prom, and we traveled up to Mpls to see son in college.

I didn't feel dizzy, but extra tired for sure and had a 2 hr. nap as a result and felt a bit more sound sensitive.

I am sure it was from Sunday.

For me, this whole process is a learning curve of how much is enough, what is too much, and what will be the results of too much.

I pray for your dizziness to go away.

Sincerely,

Poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 05-08-2013, 08:39 AM #6
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Default Thought it was gone for good!

I've just been free of dizziness for about a month now, and I haven't had any setbacks except for eye pain, so I just thought I was in the clear. Now I'm wondering if thE hit to the head I had may have caused something not eye related. I don't know . . .
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-08-2013, 09:37 AM #7
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Hi Difayes mom,

I am feeling better this month. It really does come and go. I wonder if those bad periods are times of consolidation which precede a gain! Or do we just feel better compared to how awful we felt!

When the neuro-opth. Tested for nystagmus last week, she saw none. But the vestibular therapist and another doctor did another test where they 'throw' you back with your head to the side and then observe your eye movements. I test positive when they do that. So it may be possible you have some BPPV which, like me, is not always active but brings on bad dizzyness and nausea when a sudden move or something happens.

I hope you feel better soon. I can see how upsetting it is to get a bump on the head and then worry what is going on. I don't know how people cope with having more than one concussion! Hang in there. It gets better slowly.

My neuro-opth. Told me this week that it can take 3-5 years of gradual healing. I was happy to hear that because I don't want this state to be as good as it gets!
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 05-09-2013, 05:59 PM #8
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Default A little better but

I'm still experiencing dizziness with movement and I feel pressure in my head. I honestly am not sure what is causing it. The pressure and dizziness seem worse when I bend over or make quick movements. I've been resting as much as possible and it has helped, but I haven't recovered completely. It is stressful to me that I am still this fragile after feeling pretty dang good for a whole month.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-09-2013, 06:22 PM #9
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Default Update

My vestibular physical therapist thinks that the fact i stopped doing my neck strengthening exercises could be the cause, because I am so unstable in my upper vertebrae. I'm starting my exercises again. She says I will probably have to do them the rest of my life. I didn't realize that, so when I felt physically better but started feeling depressed, I just stopped doing them.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.

Last edited by DFayesMom; 05-09-2013 at 06:37 PM. Reason: Incomplete info
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