Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Reply
 
Thread Tools Display Modes
Old 03-01-2012, 12:15 AM #1
kccat77 kccat77 is offline
Junior Member
 
Join Date: Feb 2012
Posts: 17
10 yr Member
kccat77 kccat77 is offline
Junior Member
 
Join Date: Feb 2012
Posts: 17
10 yr Member
Default What keeps you going?

After a really crappy week physically and mentally dealing with PCS and PTSD all I want to do is throw in the towel. What do you do to keep positive and keep moving ahead?
__________________
What happened: Date of the car accident 3/23/11. I was a passenger in a car that was stopped waiting to turn into a parking lot that was hit by a drunk driver going at least 40mph. The drunk driver was let go. I suffered a TBI, concussion and whiplash.

Current symptoms: PCS, depression, Brain fog, anxiety, short-term and confusion, slowed processing of information, insomnia/sleep disurbances, migraines that last over 30+ days, sensitivity to light and sound, trouble thinking, word finding difficulties, and making decisions. I am also suffering from post traumatic stress disorder.

Rehab: Been through physical rehab, still in cognative rehab, currently in therapy for depression and PSTD, first neurologist is out of ideas for me and referred me to Cleveland Clinic. Currently on Topamax, Zoloft, Amitriptyline. Did several IV rounds & shots of DHD without any success of relief of headaches. DosePro shots also didn't work. Looking to try alternative medicines now.
kccat77 is offline   Reply With QuoteReply With Quote
Old 03-01-2012, 12:31 AM #2
Jeffrey's Avatar
Jeffrey Jeffrey is offline
Member
 
Join Date: Nov 2010
Location: Bay Area, CA
Posts: 281
10 yr Member
Jeffrey Jeffrey is offline
Member
Jeffrey's Avatar
 
Join Date: Nov 2010
Location: Bay Area, CA
Posts: 281
10 yr Member
Default

There were times in the past 19 months that the only thing that kept me going was:

My belief in God's power to heal me or at least make my life of use to myself & others.

And that eternal life awaits me through Christ's sacrifice on the cross.
Jeffrey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SpaceCadet (03-01-2012)
Old 03-01-2012, 12:37 AM #3
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
15 yr Member
Default

What kind of cognitive rehab are you doing?

Could some of your rehab effort be pushing you too hard?

One thing that helps me is to focus on today with a simple look toward the future. Too much angst about the past and worry about the future is very counterproductive.

There is not a magic window for cognitive rehab. Getting improvement with your physical injuries and head aches should be the priority. You can always work on the cognitive issues once the others symptoms are better.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SpaceCadet (03-01-2012)
Old 03-01-2012, 02:20 AM #4
Kenjhee's Avatar
Kenjhee Kenjhee is offline
Member
 
Join Date: Oct 2011
Posts: 207
10 yr Member
Kenjhee Kenjhee is offline
Member
Kenjhee's Avatar
 
Join Date: Oct 2011
Posts: 207
10 yr Member
Default

What keeps me going (actually there's several things, but I'll mention just a couple for the moment) is dedication to learning disciplines. During more robust times I studied martial arts, and although it was painfully slow due to my physical limitations, I kept telling myself not to give up. It took some 20 years to earn a first-degree black belt in karate, but I accomplished it.

With my condition weaker lately the karate is mostly out, so I turned myself to intellectual pursuits. I study the Japanese language every day. I think it takes me much longer than a normal person, as I mostly forget everything as soon as I learn it. But I will stick it out, looking forward to the day I can converse fluently with my Japanese friends.

Having goals like this gives me a youthful outlook on life and gives me a reason to live for tomorrow. As long as I can see some kind of daily advancement, I feel satisfied.
__________________
Passenger in auto wreck, mTBI:
  • CHRONIC FATIGUE SYNDROME
  • MYALGIA (generalized muscle pain)
  • MIGRAINE HEADACHES
  • INSOMNIA
  • ANGER & SELF-CONTROL (going "Frontal")
Kenjhee is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SpaceCadet (03-01-2012), xanadu00 (03-01-2012)
Old 03-01-2012, 09:58 AM #5
SpaceCadet's Avatar
SpaceCadet SpaceCadet is offline
Member
 
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
SpaceCadet SpaceCadet is offline
Member
SpaceCadet's Avatar
 
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
Default

I'd have to say the only thing that keeps me going is God and my son.

Without them I would have gave up this fight long ago.
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
SpaceCadet is offline   Reply With QuoteReply With Quote
Old 03-01-2012, 04:01 PM #6
xanadu00 xanadu00 is offline
Member
 
Join Date: Jan 2012
Location: Minnesota
Posts: 239
10 yr Member
xanadu00 xanadu00 is offline
Member
 
Join Date: Jan 2012
Location: Minnesota
Posts: 239
10 yr Member
Default

I think it's important to find non-stressful activities that we can still do to give our lives meaning. This might mean adopting a new hobby or just doing small things for friends or family members. Many of us feel like we don't have much to offer, but there's always something nice we can do for someone, even if it is only offering kind words here and there. And these sorts of small acts can make a big difference in the long run--both for ourselves and for others.

The bottom line is that even with all of our current limitations, we can still make a difference. If we aren't engaged in some kind of meaningful activity or work, most of us quickly descend into depression and apathy. We need to look for ways in which we can still do meaningful activities and make meaningful contributions to society in spite of our limitations. It's not easy, but it can be done.

Viktor Frankl said,

"We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one last thing: the last of the human freedoms--to choose one's attitude in any given set of circumstances, to choose one's own way."

For some, posting on this forum is a way to provide a service to others and make something good come out of one's suffering, For some, it may be something as simple as cooking dinner for a loved one once in awhile, or reestablishing contact with an old friend. For some, it may be honing a talent or working on a hobby and sharing it with others.

In my own case, I'm still able to play piano for short periods of time--like half an hour or less--and I'm able to learn new pieces too. Even though I can't spend much time at the piano, it makes a world of difference in my mood if I just sit down and briefly play once or twice a day, especially if I can learn a new piece. I'm still able to invite friends over once in awhile and cook dinner for them, and I find this to be very rewarding.

We need to learn to become satisfied with much smaller accomplishments than what we're used to--both personal accomplishments and services given to others. Maybe we can ask ourselves early in the day,

"What can I do today to be of service to others?"

or

"How can I best care for myself today?"

When it comes to being of service to others and caring for ourselves, the little things can add up and make a very big difference.

Peace,

Pete
__________________
Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
xanadu00 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kccat77 (03-01-2012), SpaceCadet (03-01-2012)
Old 03-01-2012, 11:33 PM #7
kccat77 kccat77 is offline
Junior Member
 
Join Date: Feb 2012
Posts: 17
10 yr Member
kccat77 kccat77 is offline
Junior Member
 
Join Date: Feb 2012
Posts: 17
10 yr Member
Default

Thank you Pete. Your words hit home because its exactly what my therapist told me last week. I have to find meaning in life and if that means a new meaning I need to do it.

My hobby prior to the accident was running but I'm no longer able to run due to the the activity induced migraines I get. I also was big into scrapbooking but after the accident I lost that creative part of myself/brain and can no longer do that hobby either. Thankfully I have a great friend who came over and taught me how to knit so I now have something new to do. I'm keeping it simple and only doing simple projects as following patterns and instructions right now would probably make my head explode as I can't process new information.

I do feel good when I can do little things for myself or my friends/family but it seems so far and few between when I can do it.
__________________
What happened: Date of the car accident 3/23/11. I was a passenger in a car that was stopped waiting to turn into a parking lot that was hit by a drunk driver going at least 40mph. The drunk driver was let go. I suffered a TBI, concussion and whiplash.

Current symptoms: PCS, depression, Brain fog, anxiety, short-term and confusion, slowed processing of information, insomnia/sleep disurbances, migraines that last over 30+ days, sensitivity to light and sound, trouble thinking, word finding difficulties, and making decisions. I am also suffering from post traumatic stress disorder.

Rehab: Been through physical rehab, still in cognative rehab, currently in therapy for depression and PSTD, first neurologist is out of ideas for me and referred me to Cleveland Clinic. Currently on Topamax, Zoloft, Amitriptyline. Did several IV rounds & shots of DHD without any success of relief of headaches. DosePro shots also didn't work. Looking to try alternative medicines now.
kccat77 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
xanadu00 (03-02-2012)
Old 03-01-2012, 11:48 PM #8
Johnson Johnson is offline
Junior Member
 
Join Date: Dec 2011
Posts: 15
10 yr Member
Johnson Johnson is offline
Junior Member
 
Join Date: Dec 2011
Posts: 15
10 yr Member
Default

My baby. She is my hope. I have to get better for her.

Quote:
Originally Posted by kccat77 View Post
After a really crappy week physically and mentally dealing with PCS and PTSD all I want to do is throw in the towel. What do you do to keep positive and keep moving ahead?
Johnson is offline   Reply With QuoteReply With Quote
Old 03-02-2012, 11:30 AM #9
xanadu00 xanadu00 is offline
Member
 
Join Date: Jan 2012
Location: Minnesota
Posts: 239
10 yr Member
xanadu00 xanadu00 is offline
Member
 
Join Date: Jan 2012
Location: Minnesota
Posts: 239
10 yr Member
Default

kccat,

Knitting sounds like a great hobby to develop. Maybe you could knit gifts for friends and family.

I know exactly what you mean when you say that it feels far and few between to do these little things for people. Maybe this is where the challenge comes in to try to become content with smaller accomplishments and more modest goals--but I know that this is easier said than done. It may help to remember that seemingly small acts of kindness can really have a profound effect on people, especially over time.

Take care,

Pete
__________________
Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
xanadu00 is offline   Reply With QuoteReply With Quote
Old 03-02-2012, 01:58 PM #10
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Kccat

I think that having all this on your plate is hard. So many of us here have some of the same issues piling, one on top of the other. I also know that Cleveland clinic is one of the best, and you will be in good hands. When my depression gets bad, I come back here, no question about that. I also try and distract myself from as my negativity as I can. I am a pain patient. I read alot, in fact so much sometimes I have to be careful of my fused neck. This takes me to any place, except the place where I am at. I pray alot too. I use the area I live in to celebrate God and nature. I try to keep with friends who are upbeat. However, sometimes depression is an issue, as well as all my other medical problems and family problems. I vent right here, and have gotten the support I need to move forward and not wallow in my pain and depression. I listen to music, and get a foot massage when I can. Having support around you at home is ever so important. I hope you have someone in your life to be a friend and lean on. I am here for you anytime. I am glad you found this site, it has help me more than councellors. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 07:22 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.