Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-15-2007, 09:24 AM #1
pono pono is offline
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Default Recurrant head injurys

I'm rather foggy now, but wanted to address this issue. I had more injuries from falls down stairs, yesterday; was knocked out for less than 10 minutes. Ended up at ER -trauma unit. Tests conducted "negative" --which basically means no brain bleed or other "obvious" severe injuries-(besides the brusies, cuts, scrapes, etc)
.
After patching up wounds & given IV & pain med , I was sent home, w/ no instructions; no orders or suggestions for f/u (follow up) .... but perhaps they assume since I have HX (history) of head/brain injury, I should know the drill....



I've had several minor head injuries but am concerned, per research, that recurrant head injury can be disastrous, and for some when occurs fefore brain heals, are fatal--SIS-Second Impact Syndrome.

I don't feel "recovered" from last TBI-traumatic brain injury- 9 mths ago.-- which was dx'd (diagnosed) PCS-Post concssive syndrome.
I've had periods of improvements then regression, more downs than ups.... and now feel much worse in all ways....

these new head injurys, from falls or "drop attacks" --initially thought seizures began after I was hit by car 10+ yr ago, but tests ruled out. there are so many kinds of seizures, as well as other Neuro issues that can occur following brain njury. Can all be detected by few tests done, esp the limited basics done in ER/trauma units??? is there more advanced testing, that may show or hint at my problems?

I've seen many DR's--Rehab "brain injury specialists", neurologists... none have even agreed on what my problem or Dx (diagnosis) let alone treatmts.
I understand I do present comples Hx (history) and variety of symptoms....
including chronic pain (severe headaches, & more pain that seems to be Central Nervous system dysfunction)

Falls & resulting injury esp. to head, are worrisome, stressful--when may next occur?? can it be prevented? How do I heal when I keep injuring self.
I don't know what to do...perhaps wait til one is serious enough to warrant intervention or get & wear helmet as was suggested by ER doc who did seem to understand when he said "you can't continue to injury your head/brain...."

I"m losing my thoughts now... know there was something else I wanted to address about recurrant head/brain injury... but not recalling what now...

will try to recompose & post later, if can... it's hard writing, thinking, and ongoing problems w/ computer connections has made posting probem.

I guess I just needed to reach out to others who've been thru , or get some suggestions, advice, or info....

tho traumatic brain injurys are common, medical professionals still seem to know so little, about so called "mild" TBI....
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Old 09-16-2007, 02:04 PM #2
PCS McGee PCS McGee is offline
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Since the time of my original brain injury that has yet to heal (April of 2003), I've had at least 3 notable further head injuries, and hundreds of unwanted mild bumps to the head as well. I can't really comment on your particular situation, as I'm not inside your head, but I can tell you from my experience that each time this has happened to me, things tend to get significantly worse (the constant fear of the unknown, the unknown being how I'm going to recover from this most recent head injury, is the worst) for a few days to a week, then they tend to resolve themselves, leaving me back at the point I was at before the recent injury happened (battered, but not broken).

Usually when I take on another smack to the head, I just wear a bike helmet around the house until I feel like I'm back on my feet. The helmet seems to make me feel a lot more comfortable in my own skin (because hey, at least I've put myself in a position where I won't get ANOTHER head injury), and aside from that it protects me from bonking my head on a cabinet door or a shelf or something (those tiny bumps on the head when you're already feeling concussed have a tendency to send me off the deep end). Hope this helps in some way...
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Old 06-14-2012, 12:02 AM #3
DeborahB DeborahB is offline
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Quote:
Originally Posted by pono View Post

these new head injurys, from falls or "drop attacks" --initially thought seizures began after I was hit by car 10+ yr ago, but tests ruled out. there are so many kinds of seizures, as well as other Neuro issues that can occur following brain njury. Can all be detected by few tests done, esp the limited basics done in ER/trauma units??? is there more advanced testing, that may show or hint at my problems?

I guess I just needed to reach out to others who've been thru , or get some suggestions, advice, or info....
I can totally relate to what you are saying, PCS. I had a serious car accident over 20 years ago and still deal with falls/drop attacks. I was able to get rid of it for a couple years with a lot of weight lifting and working out, but then I got hit on the head again a couple months ago when an icy tree branch cracked and fell on my head and truck windshield (I was stuck and shoveling). It hit so hard that it smashed the windshield. The falling started all over again.

Without any kind of feeling or warning, my legs give out and I crash to the floor. It's very embarrassing and sort of dangerous, as I've wrenched my back because of it and smacked my head a couple of times. I can't control it and using a cane is useless, since it comes "out of the blue" and I'm not prepared to catch myself with a cane.

One thing I have noticed over the years is that it seems to be worse when my allergies are in full bloom. The last CT and MRI showed a lot of right lobe brain damage from the car accident 20-some years ago, as well as chronic sinusitis. There might be some sort of relationship with the sinus pressure aggravating the head injury -- I'll see the doctor again in a couple weeks as we try to figure it out.

I totally understand your frustration. Every doctor keeps thinking it's MS; I tell 'em no way; I get the MRI and of course, there is no MS. It all started with the car accident and bad bang to the head.
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Old 06-14-2012, 12:14 AM #4
Mark in Idaho Mark in Idaho is offline
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Deborah,

You replied to a thread that has been inactive since 2007.

It sounds like your doctors have the same ignorance of concussions as most doctors do.

Let us know how we can help you. The docs sure don't.

My best to you.
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Old 06-14-2012, 12:28 AM #5
DeborahB DeborahB is offline
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Quote:
Originally Posted by Mark in Idaho View Post
Deborah,

You replied to a thread that has been inactive since 2007.

It sounds like your doctors have the same ignorance of concussions as most doctors do.

Let us know how we can help you. The docs sure don't.

My best to you.
Thanks, Mark! I noticed that after the fact and posted a new thread. Best wishes.
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Old 06-20-2012, 07:28 PM #6
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Quote:
Originally Posted by DeborahB View Post
Thanks, Mark! I noticed that after the fact and posted a new thread. Best wishes.
Hey, I read the title as "Redcurrent head jellies" a couple of times before I sorted it out in my head
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Old 06-20-2012, 08:48 PM #7
Mark in Idaho Mark in Idaho is offline
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Glad to know others will read things with such odd results. I do the same thing frequently.
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