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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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So what started as a happy day, because I was finally starting to see some improvement and might actually be making progress to an eventual return to work, has turned into a crying, anxious, sad night.
I have just found out that they have promoted someone where I work and are training them to do my job. Not on a contract position but as a permanent job. I know deep down that I should be grateful that my position in the company is guaranteed to me for the next 2 years but all I can think is that even if I go back it may not be to the job I absolutely love and look forward to doing every day. They might be planning to train me to do something else. I understand that they don't even know if I'm ever coming back and they have to get the work done but it makes me scared and sad that they have a permanent position doing it. I guess they could still have him move on to something else when I go back and have me go back to my job but I'm having a hard time believing that. I'm doing everything possible to get better here and I still feel like it's not enough and not fast enough. Will I ever get back even? It just makes me feel so unimportant and replaceable. Sorry to post negative after positive but I felt like you would be the only people to truly understand and I'm hoping that writing it down here will get it to stop repeating over and over in my head and driving me nuts! I have to find a distraction somehow to break this. Maybe some American Idol will put a terrible song in my head instead ![]() Thanks for listening! CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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#2 | ||
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Hi CC,
I feel your pain. Just found out today that I won't go back to teaching this school year. Like you, I LOVE my job. Dr.s target is August for me to go back. I'm frustrated to because I am trying my best to heal. A lot of the healing is out of our hands. I have no answers, but I get what you are feeling. Best wishes, MissingMe |
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"Thanks for this!" says: | cyclecrash (02-06-2013) |
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#3 | ||
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Same here.... I was let go from my job because I ran out of medical leave. I attempted returning and lasted 3 days. (I worked with teenagers with emotional and behavior support issues).
I am back to grad school part time and for have to do an internship in a preschool. My drs are only allowing me to do 12 hours a week and it's killing me. And I really want to be back with the older kids and I don't know if that will ever be possible. When my company let me go becuase I ran out of medical leave I remember feeling the rejection and pain you feel. It sucks when you are so loyal to your job and love your work and they can just let you go without a second thought. It still hurts... Atleast you are guranteed something to go back to? But I know that probably doesn't help you feel any better now. So sorry you are having to deal with this. There are many of us who have been there ![]()
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
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#4 | ||
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Quote:
Cycle crash, I hear you!!!!! I suffered an incident today, I am praying it will not be a setback! I was rearended in my car. It was a very minor accident, i am just hoping that the only set back is a little stress from today and not anything further, ie injury. At least you like your job! ahah I hate mine. hence my plan to leave in afew months ![]() |
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#5 | |||
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Very sad for you.
![]() It's one of my biggest fears too. It would be easier if it wasn't jobs we love hey... I guess. My boss once reminded all of us on his management team... " you're all replaceable". Not his finest inspirational speech, plays in my head. Sorry that you're hurting. ![]()
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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#6 | ||
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Tough news! We do understand. I have had a terrible time with my employer...no compassion and lots of undermining me. Tough to take when you are trying to focus on healing. I think what I have learned is that life is precarious...and the job, even though I love it, is not the most important thing in my life. Sometimes that thought helps!
Hang in there, and keep focussing on the positives and the healing! |
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#7 | |||
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Thanks for all the kind words and I'm sorry you are all also going through similar things. I really do need to remember that my job is not the most important thing in my life and it does not define who I am as a person.
I will be grateful for the fact that, if needed, I have two more years to return to my job before I can actually lose it totally. Or until Long Term deems me no longer disabled and cuts me off ![]() And maybe it will be a good thing to go back to learning something totally new. There will be nothing to compare to how I used to do it. Thanks again and I hope you all are having a good day. CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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#8 | ||
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The above stories seem to be a norm for people like us who have injuries that others cannot wrap their brain around let alone understand. I too am in the same boat. My ER has set up road blocks to make it more difficult for me to return and has not engaged in any open talks with me about accommodations (I hope some or all of you who were fired\terminated at least explored the option of an ADA claim if at least for a temp timeframe. For example, I dont know how another potential ER who doesnt know your medical\accident history will tolerate a new employee needing to miss work a few times a month becasue of severe HA's or needing to rest while at work becasue the medication you are taking hasnt kicked in enough.
I cannot imagine that chronic headache and continuing cognitive issues would not qualify someone who wants to work to return to their ER under ADA protection, but unfortuntely the ER seem to get out from under these claims and we continue to suffer, It is refreshing to see there are some members here who have returned to work and seem to be thriving now.
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What happened - MVA Multiple injuries - here for support of mtbi, chronic headache and cognitive deficits. Last edited by jinga; 02-09-2013 at 01:29 PM. |
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#9 | ||
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I agree with Mokey. I have been dxd with PD. Subsequently I was terminated from my job, with the understanding that when I am better, my job will be available.
Understanding the office politics at my job, and with time, I feel I may not return to that job. Too much stress. I hope that your pain will ease with time, and that you feel better soon. ![]() Israel |
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#10 | |||
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Member
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Yesterday one of my best friends came to visit me at home.
She works (worked?) with me at the casino, where I hold a management position in marketing. Right now the GM appointed one of my senior employees (not my friend) to cover my position as an "acting" term, for the short term. I've been gone 3 months now since injury. My friend informed me that the GM has now asked HER if she'd be interested in being appointed as a long term acting marketing manager. With the understanding that "if" I come back (his words) I might not be able to perform and it could become permanent. So my friend is excited... For the opportunity. And I'm sitting there going... What? Everyone is moving on already and preparing for me to fail? And this is happy? How is this ok? It sucks.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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