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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-19-2013, 10:47 PM
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Sorry but have to leave.
Last edited by Anonxyz; 02-20-2013 at 02:23 PM. Reason: Close account |
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| "Thanks for this!" says: | Brain patch (02-20-2013) |
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02-19-2013, 11:03 PM
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Sorry you feel this way....the acceptance is the one of the hardest parts of this life changing syndrome.
I am also getting treated for PTSD,PCS,Depression,Panic...It is a lot to digest and the faster you can accept the faster you can move on to coping....I was also very mad/angry at the person that hit me...but I had to learn to use that negative energy to something positive.We cannot do nothing to change this except ourselves... I know it sucks and don't look back or forward, just live the moment and try to reverse the negatives to something positive and give thanks that you still have life and a second chance.  Quote:
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (02-20-2013) |
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02-20-2013, 12:45 AM
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Legendary
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MM,
I am sorry to hear you are struggling so. You made a comment "The man that did this to me will never get it, and he still gets to live his life." Please reach out to a therapist to help you let go of this thought. It is counterproductive. The what ifs and other regrets and bitternesses only drag you down. A therapist with skills with CBT may be good. There is a full life for the 'used to be super mom' woman. In fact, research shows that the supermom multitasking is detrimental to a healthy brain. I can't imagine what it does to an injured brain. If you were to ask those around you, you will find that they do not expect as much from you as you expect from yourself. We tend to be our own harshest critics when those around us wonder why we push so hard. I am a confirmed advocate of a slower life. Stop and smell the roses and watch the kids play and do all the other things that happen slowly. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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| "Thanks for this!" says: | Brain patch (02-20-2013) |
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02-20-2013, 01:00 AM
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Just want to encourage you. I know EXACTLY how you are feeling, because my life was similar to yours before a guy who is a real jerk generally was reckless and knocked me down...
I was injured 18 months ago...it gets better! I am not where i need to be but I see the old me coming back, and I can do a bit more, and my kids think I am better (their old mum is back), and I am doing more work, planning for the future, engaging intellectually bit by bit with the outside world...less headaches, less feeling of living hour by hour. Believe me. I know that it feels like hell, but you need to believe that it gets better. I can now believe that I will go back to teaching...I may have to modify my strategies and techniques, but I will do it some day. Hang in there, day by day, hour by hour.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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| "Thanks for this!" says: | Brain patch (02-20-2013) |
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02-20-2013, 08:38 AM
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Dear missing me,
Just wanted you to know you are in my thoughts and prayers. Please try to let go of the anger. It is so destructive to you. I also was like you and was very hard on myself for so long. My family has been even harder on me as they do not understand and don't care enough to even try. I have never been religious but the only thing I had to turn to was Jesus. I hear him in my soul tell me- be still and know that I am god, there is nothing I cannot change. Turn to your spiritual side for guidance. Try to accept what is and not dwell on the past. You don't have to be superwoman. Maybe you are in a different way. I so know how you feel. I completely relate to every word you said. I am reaching out and getting more help for myself. I am forcing my family to help me. I have always been there for all of them. Why do I not deserve the same consideration. I am not going to remain so isolated. I am going to get to a psychiatrist to. I have PTSD also. Love to all of you friends. We are not alone.
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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| "Thanks for this!" says: | Mokey (02-21-2013) |
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