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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | |||
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Hey guys,
Do you all have problems with insomnia? Do you sleep only a few hours at a time and have to nap throughout the day? Do you have some times where you just turn into an insomniac? Do you wake up in an alarmed state? Kind of scared and startled like if your new born baby woke you up by making a strange choking sound. That kind of feeling. I notice the total insomniac comes on when real bad storms come through. It has been a blizzard all night here in wonderful Utah. I have not slept at all. I am loosing it friends. I need my sleep or I get straight jacket-ish. ![]() Hope everyone is doing well today. I am going to go try to sleep. I managed to score some earplugs from the people who did my MRI and you guys were right. I love them. ![]() Start some new conversations so when I get up I can have something to do will you? Love to you all, Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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#2 | ||
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Didn't sleep last night! And it makes the day tough, doesn't it!? Little strategies, including just going withthe flow and trying not to stres when up at night, have helped me imrpove my sleep. Some people with tbi sleep too much! And others get insomnia, The brain controls sleep, so it makes sense that that can become dysfunctional!
Hope you have a good (not too long....45 minutes max!!!) nap!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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"Thanks for this!" says: | Brain patch (02-24-2013) |
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#3 | ||
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I have had Insomnia since the injury in June 2010, worsening over time.
I might sleep 3 - 4 hours max, most times 2.5 to 3. I don't have to nap during the day, I just will sorta 'pass out' for a bit; my wife says she will see me slouch, and see that I am not falling out of the computer chair, and leave me be - I usually wake in about 5 to 10 minutes. I will sometimes just give up after a few of these episodes and put my feet up in the recliner and let myself go; I will then maybe go for 15 to 20 minutes, deep sleep, with occasional snoring per the wife (we even have attached my pulse oximeter to watch my O2 - never below 90 - 92%) - and those times I will wake with a scare-type reaction, but never recall why. When I went for my SSDI Psych IME , he asked "so what total daily sleep do you get?" - I estimated maybe 5 hours including those nods; and he shook his head and made notes without further comments. My last I.M.E. with the Neurosurgeon for the opposition was after the Psych IME, and he told me "you look bad" - Im sure that won't make it into his report. ![]() Anyway......yes, Insomnia is something I get. When I lived in Utah (Duchesne), I loved getting out in the snow, but would not even think about it now. I can imagine your cabin fever. Sorry guy. Best Wishes.
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. Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses. Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings. |
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"Thanks for this!" says: | Brain patch (02-24-2013) |
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#4 | |||
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The first few days of my concussion were tough with insomnia. I had it extremely bad, like no sleep to one hour of sleep, which really didn't help with the anxiety at the time. A month later, i began sleep 3-4 hours. My sleep was my primary concern for brain healing, so I saw a psych who prescribed me Zyprexa for sleep and mood, which did help my mood and sleep, but not my anxiety, nausea or appetite! I later then dumped Zyprexa, and began getting 6 hours of sleep. I later on ended up depressed, without my computer, without movies, and ended up sitting in a room watching snow. A month after that, I began seeing my friends, and my symptoms improved. They all took care of me, made sure I ate, took my vitamin regimen, and took me to the doctors when needed. My sleep ended up being and is now 7 hours. Some days I see REAL improvement like 8 hours! Insomnia gets better, so don't give up hope!
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012. Symptoms: Occipital Neuralgia. 2 MRI's and CT normal. Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now. Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy. Was experiencing: Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit. Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm. Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside! |
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"Thanks for this!" says: | Brain patch (02-24-2013) |
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#5 | |||
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I was injured in November and had been getting 3-4 hrs sleep. The problem wasn't getting to sleep, it was waking up at 2am, even with zorclone. I tried getting up and making a milky drink, but still remained awake. I have been feeling better this week and have done more activities, I think this has helped because I have got 6 hrs sleep the past two nights. Getting into a routine at night, going to bed and waking at the same time is alsoimportant.
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"Thanks for this!" says: | Brain patch (02-24-2013) |
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#6 | |||
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I did have insomnia and startled waking, sometimes gasping for breath.
Two weeks ago I was prescribed Elavil 10 mg to help apparently with sleep and pain. So far it helps with sleep but not pain. Doc said to try 20 mg and I only tried one night of the double dose so far, increased dry mouth side effect and insane dreams so I doubt I'll stay on 20mg. Sorry you're having such a rough time sleeping. It is truly debilitating. ![]()
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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"Thanks for this!" says: | Brain patch (02-24-2013) |
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#7 | ||
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Yes, I have sleep disorders, from multipal medical issues. I try hard not to freak over it. I get up and read my nook for an hour or so and usually can go back to sleep. If I get all upset about it, forget the sleep, then I am a basket case. Naps I try to avoid, and I try to wear myself out doing something during the day. Hope you can find something that works for you. ginnie
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"Thanks for this!" says: | Brain patch (02-24-2013) |
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#8 | |||
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Fed up tonight of PCS, had a few signs of improvement sleeping 5-6 hours last weekend, then I got 6 hours Fri and Sat, and then an unbelievable 8 hrs last night. Went to bed at 11, but woke at 145am and am completely awake. Maybe slept too long last night. At least I am seeing a reflexologist today so maybe that will help, and I suppose it is better than 2,3 or 4 hrs every night.
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"Thanks for this!" says: | Brain patch (02-26-2013) |
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#9 | |||
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The first 6-9months after accident all I did was sleep, then after the concussion came fully out. I had Insomnia for 5months with 3-6hours of sleep and now I have been on a sleep schedule going on 4months that I get 8-10hours of sleep. Now I take 500mg of magnesium and 100mg melatonin and my prescribed benzo.
If I do not stay on my sleep schedule I will pay for it 24-48hours after until I get back on my schedule. I have noticed that symptoms have went way down because of the quiet rest and the no stress(at least try lol) ![]()
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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"Thanks for this!" says: | Brain patch (02-26-2013) |
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#10 | |||
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Yeah I am the same way, if I didn't maintain my sleep schedule, I would wake up like I went to the fiery pits of the underworld. lol. My anxiety would spike through the roof the next day until I took a nap!
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012. Symptoms: Occipital Neuralgia. 2 MRI's and CT normal. Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now. Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy. Was experiencing: Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit. Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm. Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside! |
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"Thanks for this!" says: | Brain patch (02-26-2013) |
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