[claritan]

its been a year since i got my PCS. ive come a long way and pretty much can live my normal life but i half the week i feel fine the other half i feel kind crappy and if i stay out all day no matter how i feel i will feel crappy

ive had all the rest and good food in the world. i havent drank and i keep my exercise to a point i can handle

after a year im starting to realize rest isnt gonna do anything for me anymore. im gonna start just doing whatever i want whenever i think maybe my brain is in slow mode and needs so experience to break through and be normal agian. does that make sense?

like if i feel fatigue im gonna just push through it....if my eyes hurt looking at the computer im gonna keep looking at it. do you think i can get to the point where my brain just gets used to the lights/fatigue agian and i wont even notice it anymore?

[MiaVita2012]

I personally have got to point that if I get to fatigue from pushing I will fall out meaning my body wont let me push until I recharge with sleep...If I was to add stress and push I don't know, I feel like I might pay for it for a few days....just my two cents...I found if I go to MD Appts 3 days out of the week and just do errands and clean house I am wipeout!

I ask my psy if I could get something besides all the rest,vitamins,food and exercise to give me a boost....I constantly feel like Im dragging my feet now.I got reply from MD of NO lol

Originally Posted by claritan

its been a year since i got my PCS. ive come a long way and pretty much can live my normal life but i half the week i feel fine the other half i feel kind crappy and if i stay out all day no matter how i feel i will feel crappy

ive had all the rest and good food in the world. i havent drank and i keep my exercise to a point i can handle

after a year im starting to realize rest isnt gonna do anything for me anymore. im gonna start just doing whatever i want whenever i think maybe my brain is in slow mode and needs so experience to break through and be normal agian. does that make sense?

like if i feel fatigue im gonna just push through it....if my eyes hurt looking at the computer im gonna keep looking at it. do you think i can get to the point where my brain just gets used to the lights/fatigue agian and i wont even notice it anymore?

[cyclecrash]

I have a friend that was hit by a truck and suffered a severe concussion and he's actually been one of my worst supporters because he believes I should just push through it and it will get better. I guess that's what he did at the 6 month mark and it worked for him. His was a LOT of physical injuries that had to heal and did. He's actually kind of stopped speaking to me which is sad.

Sorry sidetracked a bit! I often wonder if what he says might work. I'm at 8 months but I don't feel well enough yet to "push" . Or maybe I'm not fed up or frustrated quite enough yet. Day may come though so I totally see your point.

I also think that being in the house resting all the time makes you too aware of everything that's wrong with you and that can backfire also.

They say you can't push through a concussion though so I don't know. Has anybody (other than my friend who I think is fooling himself) actually succeeded in pushing through and still seeing improvements?

CC

[claritan]

im really starting to think your brain goes into slow mode and has to broken in agian

for example a few months into my concussion i was so anxious i couldnt go anywhere without a panic attack. after forcing myself to grocery stores, having people over and just being out and about in general i am now at the point where i dont have an ounce of anxiety

with exercise i had to start off slow now i can pretty much workout any way i want and feel ok

my lasting symptom is my flashing vision with double vision in my left eye and even though it hurts to be on the computer now im gonna just stay on it and deal with it. i have some brain fog but i noticed if i just realize its part of my PCS and its not gonna kill me i can push through and eventually during the day it breaks.

i feel im past the point where i will set myself back to the begining of PCS agian. even on my worst days now they are no where near how they were and i feel the only way i could reset myself agian would be to get drunk but im not gonna do that.


and i really noticed what has been helping me is realizing you do have PCS but the worst is over and you will not die from feeling crappy so that crappy feeling i just have been dealing with and it helps to put it in the back of your mind

[cyclecrash]

I think you spend so many months thinking "I can't do that or I'll (get sick, get a headache, have a setback, have anxiety)" so we don't do that thing. There comes a point or even different points along the way where you have to "test" those old things again and see that in fact you can do them now or its really not so bad. This then gives new confidence to slowly try other things. Sounds like you're at a good point to carefully push the envelope a little and try old things again.

My NP gets mad at me because I test too much and too soon and set myself back. You can't do it after just one good day! Sounds like you're in a pretty good place and I hope you take the testing slow and steady!

That's a shame they can't help you more with your vision. I'm sorry I don't remember if you've seen a neuro ophthalmologist or not? What do you mean by flashy vision? My eyes are my worst symptom and I feel I could do so much better if I could get them straightened around but is it my eyes or my brain that's the problem?

Good luck to you. I hope I can try pushing too at one year! Maybe then my friend will come back.....

CC

[claritan]

Originally Posted by cyclecrash

I think you spend so many months thinking "I can't do that or I'll (get sick, get a headache, have a setback, have anxiety)" so we don't do that thing. There comes a point or even different points along the way where you have to "test" those old things again and see that in fact you can do them now or its really not so bad. This then gives new confidence to slowly try other things. Sounds like you're at a good point to carefully push the envelope a little and try old things again.

My NP gets mad at me because I test too much and too soon and set myself back. You can't do it after just one good day! Sounds like you're in a pretty good place and I hope you take the testing slow and steady!

That's a shame they can't help you more with your vision. I'm sorry I don't remember if you've seen a neuro ophthalmologist or not? What do you mean by flashy vision? My eyes are my worst symptom and I feel I could do so much better if I could get them straightened around but is it my eyes or my brain that's the problem?

Good luck to you. I hope I can try pushing too at one year! Maybe then my friend will come back.....

CC

thanks alot....my next big step is getting myself out to a bar agian to hang out with friends. i know i cant drink like i used to but i just want to go out agian. the last time i was out was almost 2 months ago to have dinner at a bar and i had 2 beers and had to go because i felt so out of it. maybe that was too soon

and my eyes are my biggest problem. ive seen two optometrist and a neuro ophthalmologist and they both say my eyes are perfect its all in my brain. ive seen a neuro that says im stuck in a migraine state and thats maybe why my eyes are bothering me. ive taken multiple meds with no luck so i hope its not permanent damage. my flashy vision is like a constant migraine aura in my peripheral vision.

I don't know. I don't have good judgement yet. I never know if it it's to little or too much. People here say to listen to your body.