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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-27-2013, 04:11 PM
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My dad went to the store for mr to get Ensure cause my protein is low While he was at the store he lost his cell phone for his biz and cannot find it!I am feeling really bad because I am so worthless right now and if I was not sick from this protein I could of went by myself to store.My family is suffering financially because they have to pay my bills and don't have extra money right now for a new phone.I feel like a burden on everyone. I am very upset and having a meltdown and my PTSD kicked in and I am all jacked up!Sorry to be a negative Nancy but I cannot take much more.I needed to vent
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | clarkstar (05-27-2013) |
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05-27-2013, 04:46 PM
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Mia,
It's just gloomy rain, rain, rain here where I am and all around blah. I am having a tired brain day. So sorry you're in the dumps. I wish there were something funny to make you laugh. I find laughter helps me -- even silly jokes. Maybe the cell will show up or get returned. pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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| "Thanks for this!" says: | clarkstar (05-27-2013), MiaVita2012 (05-27-2013) |
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05-27-2013, 05:14 PM
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Hang in there and try to stick with what works for you - the ABCs of concussion recovery (rest, nutrition, hydration, relaxation techniques, etc). PCS recovery is such a rollercoaster. I like to think of the saying, "Don't like the weather? Wait five minutes." It will get better over time.
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| "Thanks for this!" says: | clarkstar (05-27-2013), MiaVita2012 (05-27-2013) |
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05-27-2013, 05:15 PM
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MIA,
I know you will not like hearing this: STOP. You must stop focusing on what you have no control over. You know you have to calm down, you know how to meditate, go to that restful place, find your peace, and focus on CALM......... Please help yourself, and find that peaceful , calm place you have...... Your family is there for you, let them be there for you , and let them deal with those problems for now......... you did not cause this....it happened. Things do happen. Please try to relax, find your calming peaceful place and be at ease...... Venting is good..... Deep Breathing is good, calming breathes are good. Best wishes, focus on the good. 
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. Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses. Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings. |
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05-27-2013, 06:32 PM
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n/a
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Quote:
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| "Thanks for this!" says: | MiaVita2012 (05-27-2013) |
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05-27-2013, 08:14 PM
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I have some of those days but I try not to focus on things I have no control over. I have not been able to work for 15 months now and my 3 teenage children are supporting the household. My 15 year old got a job at MacDonalds and I am up over $13,000 owing my 19 year old. I have also been told it will probably another year before I can work. My 15 year old wants to get a tattoo on her foot which has the date of my accident because that is the day her life changed.....It is really easy to take it to heart BUT the best thing you can do for your family is get better. Using up precious resources on negative feelings eat away at you. You need all your energy to recover and you will get better it is just is soooooo long. Tomorrow is another day. I took a 21 day meditation challenge which seemed to help me keep positive thoughts present and get rid of the negative ones. It also keeps the stress away.
Good Luck I am cheering for you!!!! |
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| "Thanks for this!" says: | MiaVita2012 (05-27-2013), poetrymom (05-27-2013) |
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05-27-2013, 08:44 PM
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Hi Norma,
Could you give more info about the 21 day meditation challenge? Thx poetrymom
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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| "Thanks for this!" says: | MiaVita2012 (05-27-2013) |
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05-27-2013, 08:59 PM
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Quote:
I just started restorative yoga, which is also great. The hard part is getting places as I do not drive and up to 2 months ago was not allowed on the bus. But anything that can help stress will help recovery, positive attitude is BIG. |
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| "Thanks for this!" says: | MiaVita2012 (05-27-2013), poetrymom (05-27-2013) |
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05-27-2013, 09:08 PM
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Thanks guy's I appreciate the kind words and Concussion I always appreciate your help
 This whole protein deficiency is another BOOM surprise! I cannot handle negative surprises like most of us we get overwhelmed and stressed! Protein deficiency just does not happen over a week or 2....it takes sometime and with that said since I have not been eating a lot of meats because my dislocated jaw.I had no direction/diagnosis that I had a TBI until after a year and half after accident. With that being said I was not thinking clear to think about how I would get protein, because I was so much in pain and fighting to get a diagnosis for that year and half. I cannot believe I was not smart enough to start Ensure a long time ago.I guess that is part of my brain impairments  Well obviously being on bed rest for a year and just walking was not using my muscles like last few months of light jogging/walking & physical therapy it made the muscles break down more that resulted in edema. It all makes sense now because of protein deficiency 1.Hair falling out in winter 2012-2013 2.Always being cold last 9 months 3.Nails breaking past 3 months 4.Cuts/bruises not healing last 3 months 5.craving caffeine last 6 months 6.Craving sweets last 3 months 7.skin ulcers last month 8.sore/weak muscles last 2 weeks This diagnosis of protein deficiency might of had something to do with my healing resulting in taking longer.I JUST DO NOT UNDERSTAND BECAUSE IN DEC 2012 I GOT EVERYTHING TESTED AND LABS AND THIS DID NOT SHOW UP?????? So now I need to figure out how I am going to get back to where I was or better.ANY IDEAS? ~SO FAR~ 1.I am drinking ensure 2times daily...eventually switch to home smoothies with fruits,hemp, and protein. 2.I am doing meats/beans 2times daily 3.I am eating 2 bananas 2times daily also all my other fruits 4.I am drinking a glass of vanilla almond milk before bed with a banana I hope it does not take me months to bounce back to rehab.Anyone else have any input or suggestions to this major set back I am experiencing???!!!Help is greatly appreciated ***I go see my OBGYN tomorrow that tested everything in Dec 2012 and everything can back good***And I see PCP on Wed if we cannot get this figured out than I will have to go back to neurologist  Mia
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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05-27-2013, 09:21 PM
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I have learned several meditations and breathing exercises from my TBI team and my PTSD psychologist.I am almost feeling meditated out that's where acupuncture picked up. I need some relief in these areas below ASAP
My stress level is really high at the moment because 1.My daughters B day is soon 2.Health is declining 3.Financal issues 4.Waiting for disability after last convo with case worker last week she told me at most a week for a decision 5.D day is coming up 6.My daughter's summer vacation and I pray for better days for us. 7.I do no want my daughter to take care of me on her brake when I was just doing soooooo good from Late March till 2weeks ago. 8.I cannot do yoga because my injuries in neck 9.I feel like I am living in a nightmare that is not ending and everytime I get up for a few months I crash back down. 10.THIS HAS BEEN 2YEARS OF HELL FOR ME AND MY FAMILY!!!
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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