Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-07-2013, 01:00 PM #1
jac3sr jac3sr is offline
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Default Bad Dreams PCS - Anyone else?

I originally thought that I was having nightmares due to taking amitriptyline to help me sleep, but I am not taking anything now and I have extremely vivid and generally twisted nightmarish dreams! This has been fairly continuous for the 4 months I have had PCS. I bring it up mainly because I still feel exhausted, like I could sleep for another 8 hours or so, when I wake up. I've tried napping during the day, because I work later in the afternoon into the night, but I have dreams again and still feel mentally fatigued when I go to work.

I was wondering if anyone else has experienced this? Maybe its just me and the anxiety/depression is taking its toll. My doctor told me to try taking trazedone, but I'm concerned it will make me even less able to wake up from these terrible dreams when they happen. Not really sure what to do at this point. I am open to suggestions!
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Old 06-07-2013, 01:48 PM #2
DFayesMom DFayesMom is offline
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Default Bad dreams

I had some (though not like you) when I was really really depressed. They went away when I started Wellbutrin. Good luck!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 06-07-2013, 11:59 PM #3
berkeleybrain berkeleybrain is offline
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Default

I had been waking up in a panic attack state-sometimes I could remember the vivid dreams, but mostly I was just in a heightened state of fear/flight.

I have been taking trazodone and propanolol. I was on amitrip. before which made me very dazy and zombie like.

I find the trazodone good overall for headaches, and together with the propanolol and L-Tryptophan I am doing better. Now I wake up 1-2 a week vs. 7 in panic.

Best of luck to you-everyone will have different experiences. I suspect my bad dreams/ panic are my unconscious trying to work out my trauma.
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Old 06-08-2013, 12:31 AM #4
Mark in Idaho Mark in Idaho is offline
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My dreams change based on how well I am breathing or if I am sleeping with my neck and head in a good posture. I find that it helps if I wake up, I get out of bed and sleep in my recliner or just get a drink of water before trying to go back to sleep.I have had a string of bad nights this past week. No big deal for me. I have lived with this for 12 plus years.
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Old 06-08-2013, 09:25 AM #5
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Default I Can Relate

I had nightmares but I was told it was more from Post Traumatic Stress disorder.
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What Happened: In 2011 I was in a MVA
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Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 06-09-2013, 10:03 AM #6
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I have experienced this also. To the extreme. I finally started having seizures in my sleep and the neurologist diagnosed me with REM sleep disorder and nocturnal epilepsy. I am told it is common for sleep problems to occur after head trauma. The doctor put me on clonazepam and Ambian at night and it has cleared up the problems. I sleep good now and feel rested in the morning. I don't think I was really getting much real sleep before. Good luck. I know how miserable this nightmare and not feeling rested problem can be.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 06-09-2013, 01:40 PM #7
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Default Thanks for sharing your experiences!

It is good to hear I am not completely alone in this! I have had a seriously weird four or five days. I don't know if it is too much to hope that maybe my brain is making some connections or something and its completely throwing me off? I ended up taking Friday night off work because (I'm assuming) the weird dreams and not getting real rest increased my photophobia.

Still having the weird, twisted dreams, but I guess I am going to get the trazedone filled and see what happens! I've tried to go back to minimal stimulation (except for the computer) and I've just been listening to a book on tape. However, I have several thing to take care of this week...taking my car to get it fixed and providing dmv w/ certain documentations etc...this means I'll need to function a little during the day before going to work.

I know we all have to do this, but it's difficult to limit myself! All I can think about sometimes is swimming laps or going for a run. If I have a good day, these days, I try to go for a walk, but I've never liked walking because it's too slow!! Ugh...I'm being petty and silly I know. My heart aches for the energy and resilience I used to have, and can only HOPE that I'll have again at some point!! I'm rambling now, so I am going to stop!

Thanks!
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Old 06-09-2013, 05:08 PM #8
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Brain patch, I would question the doctor who said you have 'REM sleep disorder and nocturnal epilepsy.' Duh, these may be terms that can be written in your record but the question should be, What is the underlying cause ?
There is a saying that neuros are good at diagnosing aneurisms, epilepsy and tumors. These can all be imaged. Ask the doctor about something that can not be imaged and you likely get deer in the headlights.

A general idiopathic diagnosis of REM sleep disorder and nocturnal epilepsy only helps if the doctor is going to defer to drugs.

"The doctor put me on clonazepam and Ambian at night and it has cleared up the problems." This would likely be more accurate if it said "The doctor put me on clonazepam and Ambian at night and it has resolved the symptom."

I hope you have been able to move on from the clonazepam and Ambien. They are not good maintenance drugs. Clonazepam makes my Paxil look like a baby aspirin. I was on it for over a year.

I know plenty of TBI subjects who have insomnia but overcome it without drugs. I take gabapentin to help my body sleep without jerking. Without it, I can still use my non-drug techniques to get to sleep but the sleep with include twitching and jerking.
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Old 06-09-2013, 06:56 PM #9
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I have bad dreams and trouble sleeping from the stress.


Quote:
Originally Posted by Mark in Idaho View Post
Brain patch, I would question the doctor who said you have 'REM sleep disorder and nocturnal epilepsy.' Duh, these may be terms that can be written in your record but the question should be, What is the underlying cause ?
There is a saying that neuros are good at diagnosing aneurisms, epilepsy and tumors. These can all be imaged. Ask the doctor about something that can not be imaged and you likely get deer in the headlights.

A general idiopathic diagnosis of REM sleep disorder and nocturnal epilepsy only helps if the doctor is going to defer to drugs.

"The doctor put me on clonazepam and Ambian at night and it has cleared up the problems." This would likely be more accurate if it said "The doctor put me on clonazepam and Ambian at night and it has resolved the symptom."

I hope you have been able to move on from the clonazepam and Ambien. They are not good maintenance drugs. Clonazepam makes my Paxil look like a baby aspirin. I was on it for over a year.

I know plenty of TBI subjects who have insomnia but overcome it without drugs. I take gabapentin to help my body sleep without jerking. Without it, I can still use my non-drug techniques to get to sleep but the sleep with include twitching and jerking.
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Old 06-09-2013, 06:56 PM #10
Sara J Sara J is offline
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I've had nightmares and trouble sleeping since my concussion 3 weeks ago, waiting for follow up Dr appointment to see what's happening.
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