Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-27-2014, 09:34 PM #1
deepseafunk deepseafunk is offline
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Join Date: Jan 2014
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10 yr Member
deepseafunk deepseafunk is offline
Junior Member
 
Join Date: Jan 2014
Posts: 8
10 yr Member
Default Long-term PCS Treatment & Tips?

Hello all,
Was hoping to pull from your collective wisdom on what has helped you to recover? In my particular case, would like to hear your thoughts on the vestibular system, specifically around an inner ear imbalance and impaired vestibulo ocular reflex Know it's different for every person, so here's my story:

Had my first severe concussion playing soccer back in '94, was told I lost consciousness for about 1 minute, memory loss for about 20 minutes, but thankfully had a full recovery. Had my second severe concussion, also playing soccer, in roughly 2002. Not so lucky on this one; PCS took about 1.5-2 miserable years to recover and get back close to normal.

Had about 4 good years after that, give or take, but had a setback around 2008 in which had tingling starting in hands/feet, difficulty taking a full breath, then ears suddenly "filled" and got heavy, started getting waves of dizziness, difficulty walking, imbalance, trouble focusing, etc. Not sure what precipitated the change and still suffering 5 years later.

Thought it was something different from concussion for quite some time, but have come full circle now. Diagnosed with secondary endolymphatic hydrops through an eCog test within the last 3 years. Have seen lots of docs (ENT, neuros, opthamologist, chiros, vestibular PTs, etc.) to no avail.

The biggest thing that drives me crazy is a constant feeling of imbalance and brain fog that just never goes away. I'm convinced this is caused by the inner ear imbalance, as well as an issue with my vestibulo ocular reflex (VOR) where everything is always "unstill" and my eyes don't track properly.

Anyway, anything anybody knows of to combat the dizziness, imbalance and brain fog would be greatly appreciated. Thank you!!!
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