Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 04-06-2014, 04:23 PM #11
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And I want to add that recovery for me has been like 2 steps forward 1 step back the whole time, when I think I am feeling all good, I am, but I can't push myself too hard or I will feel worse again for a few days or a week. It is a fine balance between doing a little more than say last week, and doing too much, which takes some time to get the hang of.

Be kind to yourself, you have injured your brain, which is, as you know, very important to you, and your body needs this time to heal. If I were you I would put the surgery on ice for now, if you schedule a new appointment you may feel stressed and pressured to get well by then, and that stress will just make you worse! If you push yourself into doing your operation you might just end up getting worse after your surgery and if you feel like crap you won't care about your chest size anyways... I don't want to tell you what to do, you do what feels best, just try not to push yourself too much, it will pay off in the long run taking it slow!
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Old 04-06-2014, 06:33 PM #12
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I'm sorry you're going through this. It is quite a scary thing to be feeling all that. All of us on here can totally relate.

You said "i feel so " not on earth" its like im dreaming" and I totally relate to that. I felt like that too until I saw an osteopath who was able to get me grounded again and feeling like myself in the first visit. She is also able to help with other injuries to my jaw and face that happened when I fell. With the osteopath I really have been making such great progress. I continue to see a chiro, massage therapist and a concussion Dr because all my symptoms are not gone . . . but finally, after 5 months (didn't see the osteopath until 4 months post concussion) I am driving again and have soo much more energy. It sounds like I see a lot of different people but don't see them all at once . . . I think our bodies are made so complex that it takes many different specialties to help heal them. Each one contributes something beneficial.

Just rest a lot too, take the pressure off yourself that you need to be healed by a certain time. It's hard to do, but once I submitted to this and took everything off my schedule (hard to do with my own photography business, being a wife and mom of two boys) I think that is when I started healing more too . . . make sure you can sleep at night . . . I found that
L-Theanine and Melatonin (both natural supplements) were great for relaxing my mind and getting the sleep I needed at night so the brain can heal.

All the best to you!
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Old 04-07-2014, 09:15 AM #13
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Originally Posted by pierre93 View Post
Sarah would you say you felt at least a lil like your self after the first month or 2?
Mark is right.. and today is a horrible day... head is killing me... woke up not knowing what day it was... So better... well yes and no... some days are GREAT! some days are really bad! but not every day is bad... and since my accident I have not done much of anything... I have been out to dinner for date night with my husband 3 times since 1-12... I have worked a total of 5 days since then, not all in a row... I have seen countless doctors and have been on more meds than I know what to do with... everyone has a different treatment plan and a different head... so take this with a grain of salt...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 04-08-2014, 04:45 PM #14
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Originally Posted by lunalu View Post
I know how you feel being young, I am 25, trying to keep up with everyone around you but having health problems that forces you to take it slow. I have been "missing out" since I was 23 and I got sick with mutliple chemical sensitivities and now since october last year when my first concussion happened and later in january of this year when my second concussion happened.

My best tip for you is to try to think of you life in the long term sence instead of just the short term. What I mean is try to somehow accept your current health status (I know it is hard but it can be done) and do your best to improve your health, but don't get obsessive about it, it will just lengthen your ill health, and know that there will be a day when you will be able to get back to your regular life, and it may be sooner or later, no one can tell. Fun trips and your surgery and parties and other stuff will still be around when you get better, just put your health first and you will find your way back, at least this is how it has been for me. It is hard to accept that you can't do whatever you want like before the accident, but I think it is an important part of recovery to know that there are good things that come out of shitty situations aswell, like slowing down ones life and rediscovering what really is important for you. It is hard to see the blessing in a bad situation, trust me I know. And as stated above, you are early in recovery so maybe you will be over this before you know it, I really hope so!
Thank you sooooooo much for replying , it's been 18-19 days since the injury , I hope I feel better within at least 2 weeks , the one symptom that really scares me is the brain fog , it is soooo scary , also my memory and concentration , I wake up hoping it will go but it's still there !!! :'( my GP put me on anti depressants but I only took 1 and decided to stop because i want to see if the symptoms clear up on there own , is there anyway that i could talk to you guys privately ? Like email?
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Old 04-08-2014, 05:25 PM #15
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Originally Posted by SarahSmile0205 View Post
Mark is right.. and today is a horrible day... head is killing me... woke up not knowing what day it was... So better... well yes and no... some days are GREAT! some days are really bad! but not every day is bad... and since my accident I have not done much of anything... I have been out to dinner for date night with my husband 3 times since 1-12... I have worked a total of 5 days since then, not all in a row... I have seen countless doctors and have been on more meds than I know what to do with... everyone has a different treatment plan and a different head... so take this with a grain of salt...
Thanks for replying Sarah I'm happy to know you have great days ! My light sensitivity has improved drastically since a week ago in the first week I literally could not text because my eyes would hurt so bad I'd have to look away , now my eyes are ok , I'm still dealing with the scary brain fog and weird head pressure it's not painful just uncomfortable and neck pain
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Old 04-08-2014, 05:59 PM #16
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Originally Posted by lunalu View Post
And I want to add that recovery for me has been like 2 steps forward 1 step back the whole time, when I think I am feeling all good, I am, but I can't push myself too hard or I will feel worse again for a few days or a week. It is a fine balance between doing a little more than say last week, and doing too much, which takes some time to get the hang of.

Be kind to yourself, you have injured your brain, which is, as you know, very important to you, and your body needs this time to heal. If I were you I would put the surgery on ice for now, if you schedule a new appointment you may feel stressed and pressured to get well by then, and that stress will just make you worse! If you push yourself into doing your operation you might just end up getting worse after your surgery and if you feel like crap you won't care about your chest size anyways... I don't want to tell you what to do, you do what feels best, just try not to push yourself too much, it will pay off in the long run taking it slow!
Thanks for your reply I have put my surgery on hold for now , until my symptoms have improved il think about the surgery
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Old 04-08-2014, 06:03 PM #17
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peirre93,

Left click on the screen name and there will be a drop down with a Private Message and/or email link. You may need to set your preferences to allow email and PM's. You can access your preferences with the User CP link at the top. You also may need to post a few more times before the PM feature is enabled.

Anti-depressants do not cure any PCS symptoms. Often, they are prescribed to help with the anxiety, insomnia, and head aches. Amitriptyline and nortriptyline the most common to be prescribed for PCS head aches and insomnia, but in a low dose.

What antidepressant did he prescribe ?

Keep in mind that you are still very early in your recovery. By standard definition of PCS, you do not qualify yet. PCS is usually a term for concussion symptoms that persist beyond 6 weeks or so. You still stand a good chance of a spontaneous recovery in the next few weeks. The most important thing for you is to keep your stress and anxiety levels low. Failing to reduce stress and anxiety can cause a recovery to take much longer.

My best to you.
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Last edited by Mark in Idaho; 04-08-2014 at 08:47 PM.
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Old 04-08-2014, 07:58 PM #18
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Quote:
Originally Posted by pierre93 View Post
Thanks for replying Sarah I'm happy to know you have great days ! My light sensitivity has improved drastically since a week ago in the first week I literally could not text because my eyes would hurt so bad I'd have to look away , now my eyes are ok , I'm still dealing with the scary brain fog and weird head pressure it's not painful just uncomfortable and neck pain
Talk to your doctor about your neck pain... they may be able to send you to PT to help with that... I have neck pain as well.. no relief yet though... however, I am 18 years older than you... you will heal faster based on how young you are...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 04-08-2014, 08:47 PM #19
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Originally Posted by pierre93 View Post
Thanks for replying Sarah I'm happy to know you have great days ! My light sensitivity has improved drastically since a week ago in the first week I literally could not text because my eyes would hurt so bad I'd have to look away , now my eyes are ok , I'm still dealing with the scary brain fog and weird head pressure it's not painful just uncomfortable and neck pain
What Sarah said re: neck pain. A good physio, chiropractor, and/or massage therapist can help you a lot with that, even if it doesn't relieve other symptoms. Massage really helped me with whiplash after a car accident.
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Old 04-09-2014, 12:02 AM #20
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Sorry to hear you joined this exclusive club, but now that you are here, welcome!
I am 24, and my first concussion was when I was 19, but I had more concussions than you have fingers. The most important rule is DO NOT GET A 2ND CONCUSSION! With every concussion your likelihood of serious long term effects gets worse. I graduated from college only through the grace of God and the help of my close friends, but since that time I have taken 2 years off to just work an easy job and veg at home. I am still dealing with a lot of issues such as extreme light and sound sensitivity and the most recent development is sensitivity to scents (very odd). I have been trying to get the courage up to go back to school for nursing. I want to be a neuro nurse to help people like us. I am scared of putting myself through all the stress and pressure of an accelerated nursing program, but I think that once I graduate I will be very happy that I did. The brain fog is scary, but you learn how to live with it and how to push it to the back of your mind.
You are still on concussion #1 and still within the 3 month time window in which most people recover. So, keep your hopes high, but know that if it goes longer do not despair you aren't alone, and you can learn to live with this, but it is an extremely hard road. My best advice is to find a couple friends or family members who you can spill your guts to. Who you can text or write or call and tell exactly how lousy your day is. My closest friend is a person who also suffers from daily migraines and we each picked our own emoji to express our pain. I text her a couple or a lot of my particular face to express the extent of my pain. Or I'll text her that today the pain isn't that bad, but the nausea is bad. She has pain only on one side of her head and my whole head hurts and on the random days when her whole head hurts she texts that she doesn't know how I cope, but then on the days when only one side of my head hurts I text her that I don't know how she does it.
She is the reason I am able to smile and laugh, and the reason that I am not in an asylum. Her fiancé cannot quite understand her pain, but he understands that I do, and he is happy that we have each other. We aren't sure how we will be as wives or as mothers, but we just take each day at a time and hope that when the time comes we will have the strength for what we have to do.

Sorry, I only meant to write a couple sentences, but I got carried away
Live Long and Prosper!
In Christ,
Margarite
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Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused
constant migraines, nausea, and dizziness/lack of balance.
Migraine triggers are:
light sensitivity (especially to florescent or bright lights)
sound sensitivity (especially to high pitched or loud sounds)
temperature sensitivity (especially to cold or extreme heat)
activity (especially if breathing increases or head is jostled)
pressure on head (sinuses, hats, headbands, sunglasses, pony-tails)
lacks or quality (food, sleep, water)
tension (stress, tight muscles, tired eyes, sickness)
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