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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-29-2014, 05:14 PM
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Magnate
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I'm not even sure what "crazy" means. My TBI has convinced me that who/what we are is determined, largely, by a bunch of neurons. Shake them up enough and you can completely alter personality and behaviour. Heck, even subtle injuries can have enormous consequences.
My situation has made me even more sympathetic to the pain of people labeled "mentally" ill. Using that term, implies a lot more choice and control than I believe is really in play - and blames people for their illness. Really why do we talk about "physical" and "mental" illness? The brain is a body part, just like a kidney or a spleen. We don't stigmatize people who need dialysis for a diseased/malfunctioning kidney. Why are we so harsh on people with brain issues that impact their behaviour? They're physically ill, too. The body part in question is the brain. |
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| "Thanks for this!" says: | Glacier Guy (05-29-2014), Living_Dazed (05-29-2014), Mokey (06-06-2014), music-in-me (06-06-2014), SarahSmile0205 (05-30-2014) |
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05-29-2014, 11:51 PM
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Thank you! Finally...WHY does it have to mental illness? It does imply choice where as physical illness does not.
My depression from this injury is a physical problem in my brain...it's not a choice. The paranoia, another unwanted gift from this injury, is a physical problem in my brain. I've never had paranoia before. Who would choose this? There is such stigma tied to anything referred to as MENTAL ILLNESS (said in a low echoing voice). I feel shame and guilt because of my injury and everything with it. I feel like society will not treat me the same as before. I have experienced this with medical people that knew my condition. If someone is not with me is the only times I have problems and I'm rarely alone. I don't go to those places anymore.  nope, never againJace
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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| "Thanks for this!" says: | music-in-me (06-06-2014) |
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05-30-2014, 02:03 PM
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Quote:
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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| "Thanks for this!" says: | Living_Dazed (05-30-2014) |
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06-06-2014, 12:02 PM
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#14 | ||
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New Member
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This thread made me feel better, for a while anyway. When I have a good day, I also question whether I really have PCS. When co-workers ask how I am, I always say that I am getting better slowly and it is obvious they think I am weird or faking. I could say that the neurologist said there was a possibility that I will never get better? As the days go by, it is hard not to think about things that I can't do and may never do again. Things like running to get out of the rain, roller coasters, riding my bike, or simply walking without a fear of falling again. My situation is impossible to explain to almost everyone I know. I am so thankful for this forum.
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| "Thanks for this!" says: | SarahSmile0205 (06-06-2014) |
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