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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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07-31-2014, 09:34 PM | #1 | ||
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Legendary
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Sarah,
Why were you in the ER ? Just PCS or something else.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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08-01-2014, 08:36 AM | #2 | |||
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Head felt like it needed to be opened up to relieve the pressure... BP was 170/108 for 3 hours
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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08-01-2014, 10:23 AM | #3 | ||
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Legendary
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Hasn't the doc given you some BP meds to have handy, just in case ? I have some in the medicine cabinet, just in case.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | Hockey (08-01-2014) |
08-01-2014, 10:53 AM | #4 | |||
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I have some but they do not work... that is the puzzling part
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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08-01-2014, 11:38 AM | #5 | ||
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Legendary
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I would ask the doctor to try something different. You need to have a reliable just in case BP med if your BP can get high.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | SarahSmile0205 (08-01-2014) |
08-01-2014, 12:32 PM | #6 | ||
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@underwater - I get depressed and/or anxious after or during a setback too. When I feel better I tend to overdo it and that causes me setbacks. It's been just over four years for me and I'm still learning how to "pace myself" as my Dr. has recommended to me for years. A part of it is that what I'm able to do changes every day and the ability for myself to analyze myself changes too. PLUS I'm the type of personality who pushes herself naturally - it's what helped guide me to succeed before the accident and it's a part of what lead me to my proper diagnosis and treatment.
My therapist reminds me that setbacks are going to cause me to feel bad and she tells me that when people are ill with a cold or the flu that they feel bad about themselves and feel anxiety and/or depression from having to lay down for too long too. It's a natural part of being human. @Sarah - I'm really glad that the Dr. had time to sit down with you in order to explain to you that she believes that you really are in pain. I remember thinking that people wouldn't believe that I had a head injury within the first year after the MVA I was in - that they thought I was a malingerer. Maybe this kind of thinking is a part of having a head injury? I'm not sure... Anyway, I remember that I had extreme pain literally in my head and that it also raised my BP a good deal. The pain meds I received intravenously in the ER helped reduce the pain and also lowered my BP. I was forced to visit the ER about 5-8 times in the first 6 months after the MVA I was in a little over 4 years ago. My second neurologist finally discovered that I probably had an increase of intracranial pressure and the spinal tap they administered to measure the pressure inside my skull relieved me of the ongoing and ever-increasing pain. I'm sorry that I can't remember all the details of your treatment, but have you been given a spinal tap? Sometimes an increase of intracranial pressure is too low to be seen on a CT scan or an MRI but it's still high enough to cause pain to the patient which is why they will measure the ICP with a spinal tap. If you haven't already had one, please ask your Dr. for one. You are both in my thoughts and prayers. |
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"Thanks for this!" says: | Hockey (08-01-2014) |
08-01-2014, 12:41 PM | #7 | |||
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Quote:
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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"Thanks for this!" says: | Hockey (08-01-2014) |
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