Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 07-31-2014, 05:08 PM #1
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
Default setbacks are horrible

after a pretty decent streak of improvement/plateau, i woke up with funny eyes/dizzy today. maybe it was those damn eye exercises from my neuro-chiro, or just doing more than usual yesterday, but either way i'm exhausted, depressed, feel like i'll never get well.

i'm lonely and feel like i'm exhausting my friends with this process. i also think i ticked off the one that has been the kindest to me.

grateful there are eyes/ears here that will understand this horrible feeling even if you can't make it better.

3 weeks ago i was crying for hours each day. since then i more or less dried up--cried maybe an hour total each week. today the founts have sprung again.

even just yesterday i was thinking how grateful i was i had gotten through the suicidal thoughts section of the mess i'm in. now i'm back. i'm not going to do anything because there is a seed of faith in me that i will make it out of this--because i catch glimpses of myself and my life from time to time when i come up for air.
underwater is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (07-31-2014), Marina22 (07-31-2014)
Old 07-31-2014, 06:17 PM #2
SarahSmile0205's Avatar
SarahSmile0205 SarahSmile0205 is offline
Member
 
Join Date: Mar 2014
Location: Carmel, IN
Posts: 467
10 yr Member
SarahSmile0205 SarahSmile0205 is offline
Member
SarahSmile0205's Avatar
 
Join Date: Mar 2014
Location: Carmel, IN
Posts: 467
10 yr Member
Default

I am so sorry you are going through a set back!

Last night in the ER I looked at the doctor and said... I am so over this! I know you are going to tell me that you are not seeing any thing new and you think this is all in my head (no pun intended)... she was shocked I said this... she sat and talked to me.. she said... I know it is not all made up... I know you are suffering... your BP is normal when I drug you (120/65) ... your BP when you are in pain is through the roof (170/108).. have faith... we will find a solution...

I hope this is right...
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
SarahSmile0205 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (07-31-2014)
Old 07-31-2014, 09:34 PM #3
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

Sarah,

Why were you in the ER ? Just PCS or something else.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 08-01-2014, 08:36 AM #4
SarahSmile0205's Avatar
SarahSmile0205 SarahSmile0205 is offline
Member
 
Join Date: Mar 2014
Location: Carmel, IN
Posts: 467
10 yr Member
SarahSmile0205 SarahSmile0205 is offline
Member
SarahSmile0205's Avatar
 
Join Date: Mar 2014
Location: Carmel, IN
Posts: 467
10 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post
Sarah,

Why were you in the ER ? Just PCS or something else.
Head felt like it needed to be opened up to relieve the pressure... BP was 170/108 for 3 hours
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
SarahSmile0205 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon1028 (08-01-2014), Hockey (08-01-2014)
Old 08-01-2014, 10:23 AM #5
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

Hasn't the doc given you some BP meds to have handy, just in case ? I have some in the medicine cabinet, just in case.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hockey (08-01-2014)
Old 08-01-2014, 10:53 AM #6
SarahSmile0205's Avatar
SarahSmile0205 SarahSmile0205 is offline
Member
 
Join Date: Mar 2014
Location: Carmel, IN
Posts: 467
10 yr Member
SarahSmile0205 SarahSmile0205 is offline
Member
SarahSmile0205's Avatar
 
Join Date: Mar 2014
Location: Carmel, IN
Posts: 467
10 yr Member
Default

I have some but they do not work... that is the puzzling part
__________________
The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
SarahSmile0205 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
How do you cope with setbacks? peacheysncream Traumatic Brain Injury and Post Concussion Syndrome 6 01-10-2013 05:42 AM
PCS and relapse/setbacks srgallan Traumatic Brain Injury and Post Concussion Syndrome 9 07-31-2012 09:08 AM
Setbacks in recovery parraline5750 Traumatic Brain Injury and Post Concussion Syndrome 2 06-30-2011 07:08 PM
Comparing notes on setbacks greenfrog Traumatic Brain Injury and Post Concussion Syndrome 6 06-28-2011 05:51 AM


All times are GMT -5. The time now is 11:37 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.