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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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07-31-2014, 05:08 PM | #1 | ||
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after a pretty decent streak of improvement/plateau, i woke up with funny eyes/dizzy today. maybe it was those damn eye exercises from my neuro-chiro, or just doing more than usual yesterday, but either way i'm exhausted, depressed, feel like i'll never get well.
i'm lonely and feel like i'm exhausting my friends with this process. i also think i ticked off the one that has been the kindest to me. grateful there are eyes/ears here that will understand this horrible feeling even if you can't make it better. 3 weeks ago i was crying for hours each day. since then i more or less dried up--cried maybe an hour total each week. today the founts have sprung again. even just yesterday i was thinking how grateful i was i had gotten through the suicidal thoughts section of the mess i'm in. now i'm back. i'm not going to do anything because there is a seed of faith in me that i will make it out of this--because i catch glimpses of myself and my life from time to time when i come up for air. |
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07-31-2014, 06:17 PM | #2 | |||
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I am so sorry you are going through a set back!
Last night in the ER I looked at the doctor and said... I am so over this! I know you are going to tell me that you are not seeing any thing new and you think this is all in my head (no pun intended)... she was shocked I said this... she sat and talked to me.. she said... I know it is not all made up... I know you are suffering... your BP is normal when I drug you (120/65) ... your BP when you are in pain is through the roof (170/108).. have faith... we will find a solution... I hope this is right...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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"Thanks for this!" says: | Hockey (07-31-2014) |
07-31-2014, 09:34 PM | #3 | ||
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Legendary
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Sarah,
Why were you in the ER ? Just PCS or something else.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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08-01-2014, 08:36 AM | #4 | |||
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Head felt like it needed to be opened up to relieve the pressure... BP was 170/108 for 3 hours
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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08-01-2014, 10:23 AM | #5 | ||
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Legendary
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Hasn't the doc given you some BP meds to have handy, just in case ? I have some in the medicine cabinet, just in case.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | Hockey (08-01-2014) |
08-01-2014, 10:53 AM | #6 | |||
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I have some but they do not work... that is the puzzling part
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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