Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-21-2014, 10:54 AM #1
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Default Scary observation

I have been in Dallas at my parents house since last Thursday night... While I have been here I have done one activity per day that requires 'brain power'.. either a doctors apt or dinner with an old friend...

My parents have also been on vacation... So I have had a lot of time to just do nothing... and my headache has diminished not gone by any means but on the pain scale a steady 4 vs a steady 6-7 ... can dealing with my family on a daily basis really be causing my body so much stress that it makes me have this terrible headaches? If so, what can i do about it when I go home?
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 08-21-2014, 03:16 PM #2
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I think any kind of social interaction takes a significant amount of brain power. When you are home surrounded by family there is always something going on, you are carrying on conversations, theres activity going on - its probably noisy to some degree. You are trying to prepare meals, tidy up with numerous distractions all around.

I live by myself so I really notice all the ramped up sensory stimulation when I visit my family. What I do is take lots of little time outs in a quiet room with my noise cancelling headphones (a girl's best friend) and some relaxing music - even 5 minutes helps
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Old 08-21-2014, 04:04 PM #3
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Oh yes, dealing with family, or anyone, on a daily basis can cause severe headaches cos I get them!

People talking, asking things, TV on in background, clanging dishes...I can feel my head exploding, I have to go be by myself in a quiet place or I'll scream.

I put ear plugs in and even wear them while lying in the bath tub bliss...

When I'm alone in nature i hardly get a headache.

Feel better soon...
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Old 08-21-2014, 04:57 PM #4
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Just amazes me... never knew that my husband and the minions (my 3 kids.. 9,5,3) could be so taxing... at my parents I just do nothing and no one expects me to do anything...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 08-21-2014, 05:22 PM #5
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Quote:
Originally Posted by Sitke View Post
Oh yes, dealing with family, or anyone, on a daily basis can cause severe headaches cos I get them!

People talking, asking things, TV on in background, clanging dishes...I can feel my head exploding, I have to go be by myself in a quiet place or I'll scream.

I put ear plugs in and even wear them while lying in the bath tub bliss...

When I'm alone in nature i hardly get a headache.

Feel better soon...
I second that! Definitely all of these can make it worse. I also have a steady headache 24x7 and a dark quiet room can make it better. Stress is also a demon I battle with daily and it makes things worse as well. Being in nature, alone and still, is the best therapy. I agree.

On another note I have to remind my family members to keep their voices down. I have a family of loud-talkers! I control the TV volume. I also use my earplugs to help when around crowds, etc. It's all about how you cope and what assistive devices help.
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1 year post-concussion caused by a high-speed MVA.
Driver to driver head-on. I was stationary and the other vehicle hit me traveling > 110 km/hr successfully breaking my sternum.
Diagnosed with chronic neuropathic pain, PTSD, somatic symptom disorder, depression, anxiety. I suffer from daily headaches, 24x7.
Meds: On prescription medication for neuropathic pain, breakthrough pain, anxiety, depression and sleep disorder.
OTC medications used to try and keep headaches in check: acetaminophen and ibuprofen.
Treatments: Physio (declined since May '14), RMT (declined since Feb '14), Psychiatry CBT (since Nov '13), Pain Clinic Nerve Blocks, Botox and Lidocaine Infusion (since May '14), SLP (since Aug '14), OT (since Sep '14).
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