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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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New Member
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Hi everyone,
I have been reading this board for a while, but not yet posted. I was mugged about five and half months ago and have been struggling with post concussion syndrome ever since. I don't remember it, i just woke up on the pavement to some very unpleasant teen age girls demanding my purse. I have learned a great deal from this community about recovery, as well as been impressed by the perseverance to overcome such a challenging injury. Thank you to everyone for sharing your experiences - its helped me realize that whats happening to me is not science fiction but a part of the human experience, which has been unbelievably helpful. I have made great strides since the first weeks and months where basic conversations were challenging and everyday noises deeply painful. However, now that I am no longer dizzy and nauseous every single day, I am well enough to notice other deficits that previously eluded me, such as the frequent though brief brain freezes, which seem to come on after a lot of visual or mental stimulation like conversation. I am doing everything I can - neuro psych evaluation came out pretty normal thankfully; chiropractor has helped with tension headaches; found a good rehab doctor who has put me on amantadine, nortriptilyne, and lunesta; starting vision therapy tomorrow; trying to eat well and introducing supplements. I started back at work part time after taking a few months off. Its been good to think about something other than the concussion, but its challenging in trying to do what I used to I am reminded of how far I have to go. I'd love advice from anyone who has succeeded in finding the patience and strength to make a long term recovery. In particular I feel like I need help in how to communicate with coworkers and others that even though I'm six months from the injury and I look fine, I am neither fine nor doomed to my current levels of ability. I also struggle personally with both accepting where I am while maintaining hope for further recovery. |
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"Thanks for this!" says: | music-in-me (09-10-2014), thorx89 (09-10-2014) |
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#3 | ||
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Legendary
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Capital,
Welcome to NeuroTalk. Sorry to hear about your assault. I suggest you watch the YouTube video series, "You Look Great." at http://www.youtube.com/watch?v=x9Xso...ature=youtu.be Then, try to get your closest coworker to watch it. As others have said many times, you still have plenty of time for continued healing and improvements. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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#4 | ||
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Member
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my therapist has been worth his weight in gold for some of the things you're struggling with--acceptance, strength, perspective, perseverance, communication.
not rocket science stuff, but just talking through stuff every week and having him challenge me, and knowing i'm sorta accountable for those challenges has really helped. not solved everything, but helped. also helps he's a sporty guy who's had a few concussions himself, though milder, so he knows how to really place things in context and not blame everything on my anxiety ![]()
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel. Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements. Just started vision therapy, waiting on some blue-tinted prism glasses. "You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou |
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"Thanks for this!" says: | music-in-me (09-10-2014) |
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#5 | ||
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Member
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Hi Capitol,
I am sorry to hear of your troubles, but I am glad you know that you have lots of recovery potential at 6 months post injury. You might try getting your doctors to give you handouts on concussions that you can share with co-workers, or even help you if you try to explain what has happened just to take some pressure off yourself. I hope you will gt a counselor/ therapist as Underwater has mentioned. I have just begun with one, but I have already found it is very helpful, even if it is just to speak to someone with an empathetic ear. Please take care, M-i-m |
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