Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 09-09-2014, 09:04 PM #1
Capital Capital is offline
New Member
 
Join Date: Sep 2014
Location: Washington
Posts: 2
8 yr Member
Capital Capital is offline
New Member
 
Join Date: Sep 2014
Location: Washington
Posts: 2
8 yr Member
Default PCS long recovery

Hi everyone,

I have been reading this board for a while, but not yet posted.

I was mugged about five and half months ago and have been struggling with post concussion syndrome ever since.

I don't remember it, i just woke up on the pavement to some very unpleasant teen age girls demanding my purse.

I have learned a great deal from this community about recovery, as well as been impressed by the perseverance to overcome such a challenging injury.

Thank you to everyone for sharing your experiences - its helped me realize that whats happening to me is not science fiction but a part of the human experience, which has been unbelievably helpful.

I have made great strides since the first weeks and months where basic conversations were challenging and everyday noises deeply painful.

However, now that I am no longer dizzy and nauseous every single day, I am well enough to notice other deficits that previously eluded me, such as the frequent though brief brain freezes, which seem to come on after a lot of visual or mental stimulation like conversation.

I am doing everything I can - neuro psych evaluation came out pretty normal thankfully; chiropractor has helped with tension headaches; found a good rehab doctor who has put me on amantadine, nortriptilyne, and lunesta; starting vision therapy tomorrow; trying to eat well and introducing supplements.

I started back at work part time after taking a few months off. Its been good to think about something other than the concussion, but its challenging in trying to do what I used to I am reminded of how far I have to go.

I'd love advice from anyone who has succeeded in finding the patience and strength to make a long term recovery.

In particular I feel like I need help in how to communicate with coworkers and others that even though I'm six months from the injury and I look fine, I am neither fine nor doomed to my current levels of ability.

I also struggle personally with both accepting where I am while maintaining hope for further recovery.
Capital is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
music-in-me (09-10-2014), thorx89 (09-10-2014)

advertisement
Old 09-09-2014, 09:15 PM #2
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
Default

Quote:
Originally Posted by Capital View Post
Hi everyone,

I have been reading this board for a while, but not yet posted.

I was mugged about five and half months ago and have been struggling with post concussion syndrome ever since.

I don't remember it, i just woke up on the pavement to some very unpleasant teen age girls demanding my purse.

I have learned a great deal from this community about recovery, as well as been impressed by the perseverance to overcome such a challenging injury.

Thank you to everyone for sharing your experiences - its helped me realize that whats happening to me is not science fiction but a part of the human experience, which has been unbelievably helpful.

I have made great strides since the first weeks and months where basic conversations were challenging and everyday noises deeply painful.

However, now that I am no longer dizzy and nauseous every single day, I am well enough to notice other deficits that previously eluded me, such as the frequent though brief brain freezes, which seem to come on after a lot of visual or mental stimulation like conversation.

I am doing everything I can - neuro psych evaluation came out pretty normal thankfully; chiropractor has helped with tension headaches; found a good rehab doctor who has put me on amantadine, nortriptilyne, and lunesta; starting vision therapy tomorrow; trying to eat well and introducing supplements.

I started back at work part time after taking a few months off. Its been good to think about something other than the concussion, but its challenging in trying to do what I used to I am reminded of how far I have to go.

I'd love advice from anyone who has succeeded in finding the patience and strength to make a long term recovery.

In particular I feel like I need help in how to communicate with coworkers and others that even though I'm six months from the injury and I look fine, I am neither fine nor doomed to my current levels of ability.

I also struggle personally with both accepting where I am while maintaining hope for further recovery.
Just be honest with the people at work, or ask them to read up on it so they can understand better. You are still early in your recovery so you can accept how you are now by knowing that you will get better and better month after month. You should have GREAT hope for further recovery. There's no reason to think otherwise.
anon1028 is offline   Reply With QuoteReply With Quote
Old 09-09-2014, 09:18 PM #3
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

Capital,

Welcome to NeuroTalk. Sorry to hear about your assault.

I suggest you watch the YouTube video series, "You Look Great." at http://www.youtube.com/watch?v=x9Xso...ature=youtu.be

Then, try to get your closest coworker to watch it.

As others have said many times, you still have plenty of time for continued healing and improvements.

My best to you.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 09-09-2014, 10:45 PM #4
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
underwater underwater is offline
Member
 
Join Date: Jul 2014
Posts: 160
8 yr Member
Default

my therapist has been worth his weight in gold for some of the things you're struggling with--acceptance, strength, perspective, perseverance, communication.

not rocket science stuff, but just talking through stuff every week and having him challenge me, and knowing i'm sorta accountable for those challenges has really helped. not solved everything, but helped.

also helps he's a sporty guy who's had a few concussions himself, though milder, so he knows how to really place things in context and not blame everything on my anxiety
__________________
April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
underwater is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
music-in-me (09-10-2014)
Old 09-10-2014, 05:04 PM #5
music-in-me music-in-me is offline
Member
 
Join Date: Aug 2013
Posts: 127
10 yr Member
music-in-me music-in-me is offline
Member
 
Join Date: Aug 2013
Posts: 127
10 yr Member
Default

Hi Capitol,

I am sorry to hear of your troubles, but I am glad you know that you have lots of recovery potential at 6 months post injury. You might try getting your doctors to give you handouts on concussions that you can share with co-workers, or even help you if you try to explain what has happened just to take some pressure off yourself.

I hope you will gt a counselor/ therapist as Underwater has mentioned. I have just begun with one, but I have already found it is very helpful, even if it is just to speak to someone with an empathetic ear.

Please take care, M-i-m
music-in-me is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
The long road of recovery and work rmschaver Traumatic Brain Injury and Post Concussion Syndrome 17 02-18-2013 12:33 AM
How long does recovery take? soccermom Traumatic Brain Injury and Post Concussion Syndrome 10 04-28-2008 09:31 AM


All times are GMT -5. The time now is 02:39 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.