Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 09-14-2014, 07:01 PM #1
Bruins88 Bruins88 is offline
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Default This is what I dont get...

Why after 9 months (and many more for most of you) do we still get migraines and headaches. My neurologist just says its part of pcs. My neuro phsyc said its part pcs, part psychological.

Uh ok, so your saying you dont know then and giving a dumb answer to me just to say something?

Theres got to be a reason, maybe someone here knows, maybe not. Would like to hear responses.

Personally my take, they pinpointed damaged areas. So im assuming im getting them because those areas cant keep up.

Sorry if this is jibberish, im beyond loopy today
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Old 09-14-2014, 07:29 PM #2
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Even the specialists in head aches do not fully understand them. Add the complication of a concussion with complex symptoms and it is even more difficult to understand them.
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Old 09-14-2014, 07:32 PM #3
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True. Im just at a really frustrating point. I just so badly want to be rid of these headaches and migraines.
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Old 09-14-2014, 07:33 PM #4
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I know what that frustration is like. Head aches can drain you in every way.
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Old 09-14-2014, 07:39 PM #5
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Yup!

The reason its really bothering me is because my daughter has discovered she has a voice. She does this wicked cute squeal/scream and giggle. Its amazing. But she does it non stop and it tears my head up so bad. I so badly wish I could enjoy it. But i cant. Trust me I try. I put my earplugs in so I dont hear it. It destroys me emotionally to do that.
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Old 09-14-2014, 07:51 PM #6
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Default migraines...

I have been dealing with them for a few years - I have seen many specialist and it seems the consensus from a neurologist standpoint is that the headache itself is neck related and can be triggerred by many things - stress, weather, diet, sleep depravation etc... most likely you have a cervical issues in addition to your head injury
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Old 09-14-2014, 08:24 PM #7
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Kev
Don't be hard on yourself.My sister had to do the same with her youngest daughter. It's not your daughter or you- just this hateful PCS.

I had written a thread recently you responded to. How is your sleep? What medications have you taken or currently take for sleep?

I will pray that you find relief from your headaches.
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Fell off pool ladder on 07/26/14 and hit back of head on concrete, was unconscious for a few minutes.

Clear MRI and CT. Meds: 15mg Mirtazapine, heavy vitamin regimen

Symptoms: Anxiety (getting much better), sleep disturbances, fatigue, don't feel like myself

Getting better everyday thanks be to God! War Eagle!
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Old 09-15-2014, 08:25 AM #8
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Sleep goes through cycles. But the majority of the time its very very poor. I find myself in a trance like sleep almost, aware of my surroundings, but not actually asleep.

Ill have to try to dig up some of my old reports to find out the names, I just have no clue where I put them. They arent in my filing cabinent where I always put that stuff, so ill have to do some searching when I have the time.
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Old 09-15-2014, 09:51 AM #9
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Quote:
Originally Posted by kevbo887 View Post
True. Im just at a really frustrating point. I just so badly want to be rid of these headaches and migraines.
I do too... everyday for the last 8 months is getting old!
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 09-15-2014, 02:07 PM #10
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I rarely get headaches these days (thank God, because they used to be extremely bad). However, I do experience this dull ache in the spot where I hit my head. Sometimes it feels tight. Other times, it aches like a bruise.

I hit my head in December 2013. It's crazy to me that I still have pain in that spot.
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