Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-11-2014, 06:08 PM #1
willgardner willgardner is offline
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Default Food for Thought: Who Am I? (what defines me)

My brain injury and the resulting cognitive changes have made me question what constitutes a self. If I am not my intelligence, my memory or my temperament, then who am I? I feel fortunate that my ultimate goal in life has remained the same, and I can define a self as consisting of what I do to become who I want to be. I am the trying, persisting, hoping self.


What are your thoughts?
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Old 10-12-2014, 10:47 AM #2
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what defines me post-injuries. good question. I am still fiercely loyal to my family and love my nephews and nieces enough to not jump off a cliff from this brain injury
my job defined me and that was a brutal blow losing it, even 5 years later it hurts.
money defined me. now I have very little and that hurts because I liked nice cars and jewelry.
I found out that my "self" is all in the brain. the rest of the body means nothing without a healthy brain. whether it comes to sleeping, exercising, sex...without the brain none of it happens, and with a damaged brain only some things are the same for me.
sleep, pain, sex, exercise...all affected by my brain injury.
I guess I'm still who I was, only going through heck every day for the rest of my life scares me and I always prided myself on being tough.
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Old 10-12-2014, 12:33 PM #3
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Good question, Will. my self esteem took a very steep dive after my accident when i couldn't work (at a job that is my calling and i really feel makes a difference in the world), couldn't be a part of the overarching culture here locally which is all about sports--kiteboarding, kayaking, skiing, etc. Went through a breakup really because of all that and the fact that i became a weepy, anxious person who couldn't do anything.

my therapist has challenged me to see that those things aren't who i am...but since i never had to look far to feel good and valuable before, i was left in the lurch w/o those things. i think i'm seeing that showing love and knowing love are what life is really all about, and perhaps what i should be about, but i say that knowing that i'm really only ok with that as long as i recover because in a way my job and my activities were the ways i showed loved to myself and to the world. there are other ways, i have found some. i've found my sense of humor again (the lexapro helped), which was always a big part of me.

listened to an interesting non-traditional meditation the other day that took you back through your ancestors...to make you feel like they've all been struggling to survive so that you could live, and their strength is yours and all that.
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 10-12-2014, 01:12 PM #4
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The meditation sounds interesting. Is it online?
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Old 10-13-2014, 07:51 PM #5
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Quote:
Originally Posted by willgardner View Post
My brain injury and the resulting cognitive changes have made me question what constitutes a self. If I am not my intelligence, my memory or my temperament, then who am I? I feel fortunate that my ultimate goal in life has remained the same, and I can define a self as consisting of what I do to become who I want to be. I am the trying, persisting, hoping self.


What are your thoughts?
I am struggling with the same question. One minute I am running a dept, teaching martial arts and running a household. The next minute I am this self I have become. It's like it's me but not me at all. My own parents have even accused me of being different and mean. Very hurtful.

It has been over a year now. I have had to "get past" not being able to work and "get past" the things I can't do anymore. When my body feels fatigued I now give in and have a rest. I've allowed myself to live this new life and not always be feeling guilty. I am not perfect though. There are some rough days when I question the person I have become: my short temper, always looking tired, feeling exhausted, short term memory (forgetfulness), chronic pain and speech issues, etc. I now allow the emotions and make it OK to experience them. For myself, being outside is the BEST! I can now just sit and be in silence, and be content. This would have driven me crazy in the past. My goal now is doing what I need to do to get better. Patience is a virtue - and challenging.

What moves me forward is the hope of receiving treatment, to heal, the support of a few close friends and my family; especially my son.

I know a large part of my "loss" was spiritual, in the sense of not being able to practice my martial art anymore. I have, however, tried focusing on the meditation or simply allowing myself to be in silence. Everyone's journey is different and very difficult. This is what has led me here to this forum. I hope any of this novel I seemed to have typed has been helpful. I wish you all the best in your journey and one thing I know for myself is that I will not give up hope.
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1 year post-concussion caused by a high-speed MVA.
Driver to driver head-on. I was stationary and the other vehicle hit me traveling > 110 km/hr successfully breaking my sternum.
Diagnosed with chronic neuropathic pain, PTSD, somatic symptom disorder, depression, anxiety. I suffer from daily headaches, 24x7.
Meds: On prescription medication for neuropathic pain, breakthrough pain, anxiety, depression and sleep disorder.
OTC medications used to try and keep headaches in check: acetaminophen and ibuprofen.
Treatments: Physio (declined since May '14), RMT (declined since Feb '14), Psychiatry CBT (since Nov '13), Pain Clinic Nerve Blocks, Botox and Lidocaine Infusion (since May '14), SLP (since Aug '14), OT (since Sep '14).
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Old 10-13-2014, 08:30 PM #6
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Do yourself a huge favor. Dont over think your situation. Live it day by day. Because trust me, just when you think you have the new you figured out, you end up in a new situation and it redefines you.

Plus, it adds unnecessary stress and anxiety to our already damaged brains.

Also my new "way" of socia interaction is this:

If you cant accept my inability nor care to entertain it, then get **out of my way, your just blocking my road to recovery. and if you still cant accept it, I prolly didnt need you in my life to begin with.

Last edited by Chemar; 10-14-2014 at 08:46 AM. Reason: NT language guidelines
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Old 10-13-2014, 11:22 PM #7
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This question I posed is a philosophical one. Through this experience, I have redefined a lot of notions such as success, victory. I am doing the same with the "self" and I was wondering if anyone had a good idea. I think the new definition is not only more accurate, but also liberating. This injury necessitated that I eliminate a lot of limiting and destructive beliefs and perceptions. I am not having an identity crisis here. I am redefining my life for the better.
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Old 10-14-2014, 12:04 AM #8
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prolly.....

Is that text short hand or is a new language being started ?

Probably a new language that us oldies will never get.
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"Be still and know that I am God" Psalm 46:10
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Old 10-14-2014, 07:12 AM #9
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Will, I don't really understand you last post. Can you elaborate?
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Old 10-14-2014, 11:24 AM #10
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Kevbo

My sentiments exactly. And I say prolly too
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