wanted to add also that because it was not my fault and the trucking company would not compensation fairly I has to sue so ...from 6-8-99 (date of accident) until the end of 2002 I was followed... video taped, phone tapped .. 'they' because of having head injury went ALL the way back into history to elementry school . and I had really hard time in highschool cus of my situation then... anyways I went to trial by jury ...1 to get a fair settlement first and for most!! and second to get neuro stimulator as a way to controll my pain over them morphine drip and meth patch as at the time it was considered a voodoo remedy and I dont believe even today if it is approved by the gov for treatment of face pain.??? Still in trail stage but I do see it being offered more so .... forwards march is what I say. I will take a neuro stimulator over any medication or drug hands down!!!!!!!!!
Sorry i vented off a little just cus it is growing close to aniv of my accident. but i should look at it a a reason to celebrate cus I am still around to bug you all. lol . hugs and thanks
PEACE
BMW

Hi there Tina.
I did remember it was an awful accident, but I didn't know you had gone through so much in recovering. What a trooper
Since Dad past my memory is just awful....so I can't recall what type of stimulator you had.

I do know my pain doctor is talking about a stimulator for my ON, but it it placed just under the skin. So not too traumatic.

A couple years ago I did discuss with my neuro team the option of a stimulator for my bilateral TN pain, I was told I would need the motor cortex stimulator or the deep brain stimulator. Both scared the bajibbers out of me I have had the MVD and gamma knives, but these seemed way more invasive.

I believe you said you did not have to have one of these 2. What one do you have then? Would you mind explaining the procedure to me. I have seen the other ones at medtronics, but I didn't think they were for TN....but if you have found any relief I would greatly like to hear about it!

Thanks again Tina Nikki

I have a neuro stimulator. I got a trail before I decided I would have it for good. I had it for a week. then the surgery was simple simon. same day went in moring was awake threw most of it .they put the battery under skin under my left arm by bra line. then they ran wires across my back to neck then the leads back of head and lower right side of jaw. I will need to get new battery in a few years. my type of battery good 7-10 years it is like a pace maker battery. I went home that afternoon. waited like a week I think maybe a few more days then that.to heal some and stuff. then I went and had it turned on. There is a link in the helpful websites i put at top of forum here all about neuro stimulators. i dont have motor cortex or deep brain stimulator. i would say mine is very much like a spinal cord stimulator but it is not exactly a spine cords stim as it isnt for spine. Kim has two of them i think her she has diffrent type of battery but the smae type of neuro stim.
I have big bad side of face and head ache right now..alll day really and sorry if this post dont make sense or words all spelled wrong.. i will holler back on a better day. AND Dang i hope them patches work for you! no fun and not deserved in the least for you to be hounded with new pain. I have heard good things about the pathc thought so i hope it is good for you too,
PEACE
BMW

here is a link about neuro stim for face pain note the third paragraph down it is for A.D.

http://facial-neuralgia.org/treatmen.../surgical.html
I will find you some more links if i am able
the t.n.a. site wont come up but here is another.
opps try that again...
http://www.ingentaconnect.com/conten...00009/art00020
and maybe this..
http://www.aans.org/education/journa...21-6-intro.pdf

well I got the link I was trying to get the first time around...
http://www.fpa-support.org/aboutfp/N...imulation.html
and if anyone wants to talk or has questions I will gladly try to help with some answers.
Peace
BMW...Tina

I hope doodlebug reads this and visits the links as maybe an option for her. .

Tina your so sweet Thank you for sharing.
Yes those are among the sites I searched when I was looking into it a bit over a year ago. I was told for me, I would need the motor cortex stimulator ..I did a lot of research. Have you ever seens pictures of the MCS surgery? The cons outweighed the good.
I dont' relish another brain surgery, but more than that...the results were not all that great for TN. I guess at this stage in my life and pain, I am tired of being a gunea pig.

By that I mean.....I did everything, tried everything that was asked me. Anything that I was told could help with my pain, I did. I was told the MVD had a huge success rate, and yet here I sit worse off now than I was before any of the surgeries. I just feel that the MCS does not have enough research behind it, for me to be willing to task yet more risks.

Now the Peripheral Nerve Stimulation doesn't seem as bad surgery wise. It does have success with occipital neuralgia, so I am willing to try it. I of course will again try to nerve blocks first, and hope for a better success rate.

Thank you for all your help, and I am glad you have found relief Tina, though sorry it hasn't taken away your pain and you still have to suffer
Take care Nikki

do you see a pain doc or was it a neuro who reccomended motor cortex????
and I will say that YOU do what YOU feel is right for YOU. another brain surgery would have me very pensive and un willing unless the end results is a
definate thing. it is a last option for me heck once it is in for good hard to get any neuro to reposition the lead that slipped. soo .... I praying it dosent slip any more!!!!!!!

chat again soon and I hope that new pain fades away soon !
PEACE
BMW

HI again

I have what I refer to as my "team" of doctors. I have a neurosurgeon, who I only see when I am fed up and am thinking of something new...he is just great and I trust him 100%...I have an awesome neurologist who is there for me 24/7- I can ALWAYS count on him. I also go to a pain clinic and see numerous doctors there. And of course my faithful PC doc who is there for just everything lol

It was a meeting between the pain clinic the neuro and the surgeon that it was determined that the motor cortex would be the stimulator I would need.

The new pain is not letting up The nerve blocks for the ON were just ridiculously painful! I have never had pain like that in my life.......it made not only the ON worse, but effected the TN as well. I seriously wasn't sure if I was going to make it for about 3 days there. I called the doc office who did them, and the nurse said ..well that is always a risk. Well, thank you ...that helped ever soooooo much

Hope you have had a good week, take care

wow you have more doctors then I do or ever did .. well for t.n face issues I meen. I just had a pain doc and one neuro ... who isnt even near me anymore . I am sorry for your pains old and new .
from one trooper to another ....keep strong and know I am thinking of you, lots of positive things, healing vibs and low pain wishes .
You too have a nice week Nik-key.
PEACE
BMW-Tina