[bizi]

I am glad that you have your father in law
to talk to since he is a "Doll"
My family has been doing group texting which I don't like but oh well.
It gets information out to several people. sometimes the conversation is about sports. Other times about house showings, parents are trying to sell their old farm house. Spring is the time to sell.
I hope they get an offer soon.
I really don't like going to the laundrymat but sometimes you have to do things we don't like.
My vote is to call and get the orders rewritten, it is worth a try.
bizi

[OhKay]

I don't mind going to the laundromat. The problem is hauling anything there. That quilt alone is very heavy. If I still could, I would do all my laundry there like I used to do before I became handicapped. I could wash, dry, fluff, and fold a week's worth of laundry in about 2 hours (it would take me much longer now tho) for much less money than I spend doing it here. I wouldn't want to do it with my husband. He's SO impatient and unpleasant with such things, it's worth the hassle doing it here, and I guess I have plenty of free time.

I called registration yesterday to get the MRI scheduled and will have it done tomorrow morning.

I saw my PCP yesterday and he was fixated on my meds again, "you're on so many medications we have no idea what they're doing to you." I agreed... they can do damage beyond sedation. There have been no recent med changes tho, there has been a rather sudden increase in my fatigue and cognitive issues, and I don't know where the night sweats are coming from. I'm still dealing with the cough I've had for several months that we're blaming on asthma, so he ordered a chest X-Ray. And he ordered some miscellaneous blood work. He couldn't get the results of my thyroid level my neuro had drawn, so he will put in a request for that (if he remembers).

I am on a ton of heavy meds, and I know that they have to be contributing to my fatigue and cognitive problems, but I have a good idea of what my baseline is, and I don't know why he can't understand that. I left my PCP's office feeling like he was only looking at my med list and I wasn't being taken seriously, and that's exactly why I didn't want to do see him with fairly non-specific symptoms of something.

He said he wants me to call him before anyone puts me on anymore meds. I didn't mention it at the time, but that's an unreasonable request given the severity of my mental health problems. 7 out of the 9 meds I take a day are psych meds and I don't take them out of any sort of enjoyment. I would love to just start from scratch, so I'm taking the bare minimum, but that would be dangerous.

After I had the X-Ray done, the tech told me they would have the results (last night) and if it was something serious they would call me, otherwise my doctor will call me (today). I don't take that as a sign that there's anything wrong tho. I figure she's probably naive and unaware of how doctor's offices actually operate.

[bizi]

I am sure your fatigue is not something that is easily diagnosed. Since you are on a lot of meds it would be hard to know especially, since they are mostly psych meds maybe it would be better to ask the pharmacist to check for compatibility, side effects, etc. Your pdoc may also know better than your reg mdoc your psych meds.
I have had fatigue spells where I had to go to sleep. ruins your day.
bizi

[Mari]

Maybe I will give that PCP the benefit of the doubt.

But morons like him are one reason why the mentally ill are in poorer health
than the rest of the population.

I am happy to hear that he ordered blood work and the X-ray.




M

[OhKay]

My pharmacist(s) have checked for drug interactions, and I have as well. Obviously a lot of them can cause sedation, especially in some combinations, but that's unavoidable. My pdoc recognizes that they contribute to my fatigue, but she is aware of my baseline and tolerance. She knows me well, and can tell when something is wrong physically. She's the one who urged me to see my neurologist in the first place.

All the testing my PCP ordered came back okay. I don't know if that includes my thyroid level because I don't know if he requested the results. My neuro ordered it, so I'm sure he will let me know.

I had my MRI yesterday. Because of waiting, my 40 minute appointment took over 3 hours. I reviewed the images when I got home. I'm out of practice, but from what I can see, I have quite a few more lesions than I had on my last MRI. Two lesions, one of which was very large, enhanced after I was given the gadolinium contrast. What that means is that there is significant inflammation present and I'm probably in the middle of a relapse.
Other things look different, but I'm not a radiologist or a neurologist. I've decided I'm not going to compare MRI's. I know where my old lesions were, and there are more, and that's what's important. My neurologist is back from vacation on Monday, and if there is something else noteworthy going on, I'm sure I'll hear about it soon enough. I'm looking forward to talking to him about my MRI in general.
I have only viewed the images once, and I'll probably look at them at least once more to try to count them and see if I'm missing anything that I'm capable of interpreting. I wish I had images of my spinal cord, but I don't. Oh well.

I have an appointment with the urologist today at 4. I don't know what to expect and I'm anxious about it.

Yesterday morning I ended up with a cold shower, and when I tried to rinse all the soap off, the lever to change the spray broke off and was left at a setting where water was barely dribbling out... and boy was I thrilled! So, after my MRI I had to go to Lowe's to buy a new one. I'm very indecisive, but I ended up picking one that was husband-approved, so I guess my trip was a success.

When I made the bed this morning, I found cat puke on the back-up comforter just below the pillows. My husband must have missed it because he went to bed so drunk, and I didn't see it because it was dark when I went to bed. It came off fairly easily, but still... Now both the quilt and comforter need to go to the laundromat.
Maybe my husband will come with me this weekend to get everything washed? lol. That's never gonna happen. lol.
Maybe next week will work and I'll feel better. You never know. Stranger things have happened.

[bizi]

kay, do these lesions go away? or are they permanent?
When will you talk with your neurologist?
good luck with your urology appointment.
You are so brave with every thing that you are going thru right now.
I don't know how you handle all of the stress.
yes hubby to go with you to do laundry, you guys could play cards there
sorry about the cat throe up.
no fun.
(((((HUGS and love))))
bizi

[OhKay]

I saw the urologist yesterday. I was able to do what I needed to do, so I consider the appointment a success. I'm very relieved
I have to work a couple of issues out, but I think I will be fine.


Some MS lesions go away, but sometimes the white matter and nerves are permanently destroyed leading to "black holes" which can decrease brain volume and can lead to disease progression. Having a lot of those babies is NOT a good thing. I don't know how many I have. I can't ID those on MRI and have never asked how many I have. I imagine I have more now than I did 2 years ago tho.

I've looked at the MRI images a few times. I have a mac and need to use special software, but it's from 2010, so I don't get great images. I can't update it, and I would have to pay A LOT for the new version, so I make do. I'm only good at spotting the fairly obvious and am out of practice, too.

On the radiologist's report from my last MRI, I read that I had a tiny pituitary tumor, but I couldn't see it. I could see it clearly on this one because it's much bigger. It's probably no big deal though because it's isolated to the pituitary gland. 20% of the population has one, they usually don't cause problems, and they're usually benign. I'll ask about it tho.

My neurologist is back in the office Monday. I have an appointment with him May 11th, but the secretary said she'd contact me for an earlier appointment if something turns up that needs to be addressed before then. I don't know if I'll get that call because I don't get treatment (IV steroids) for relapses, and I think the only real discussion would be whether or not I want to start taking medication again. I think he will regard the pituitary tumor as an incidental finding and won't be concerned about it enough to call, if he's concerned at all.

[bizi]

I am sorry that your pituitary tumor has grown, does that cause any symptoms?
Could that be a contributing factor in this?
You are smart to be able to read your MRI.
(((((HUGS)))))
bizi

[OhKay]

Most pituitary tumors don't cause symptoms, but some can effect the level of hormones the pituitary gland releases and cause symptoms based on the hormone in question. I don't think any of that applies to me tho.

If you already know someone has MS, spotting the bigger lesions is really, really easy… they show up as usually round or oval white spots on most MRI images (there are different types of images). They are harder to detect around some brain structures and can be mistaken for blood vessels, etc. I have difficulty now. I don't know if better software would even help. I guess that's why we have neurologists and radiologists tho

I guess I am a little nervous about whether I will get a call from my neurologist's office or not. I guess I don't think there's a lot of "there" there, nothing that can't wait, and don't want to find out otherwise.

Yesterday we lost hot water (AGAIN) around 11:30am and when I checked it around 1pm it was still cold and had turned **** brown. Trying to flush the pipes didn't help. I took a nap shortly after, and when I woke up at 6pm I was able to clear the pipes, but the water was still ice cold. I called the leasing office and was told that the problem wouldn't be fixed until sometime this afternoon. I was not pleasant. I ****ing hate this place!!!


Our lease is up August 1st, and we have to give these ***holes notice we are moving by July 1st, so I will be seriously apartment hunting soon… I already have an eye out, but I think the best time to start contacting places would be the middle of next month?

[bizi]

I will be so glad when you are out of that place!!!!!!
Have a good day kay.
love you
bizi