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Old 02-09-2009, 05:38 AM #11
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Unhappy Dear Barbara

I am truly sorry you are feeling so down, and that you feel so neglected by "the forum at large" as to desire to leave. Of course you do have the prerogative of changing your mind - and i sincerely hope you will use it!

I am guilty of not reading all threads all of the time. Also my response style is seldom that of a simple smiley face, even when that alone might go a long way. Another thing is that it might take me a long time to compose a response, depending on what i feel or what i need to say... how easily it is shaped in my head. In my personal communications this leads to lapses where i might write frequently and off the cuff at times; at other times there may be a pregnant pause lasting weeks... perhaps because of just one thing - large or small - that has got me stuck on how to reply.

...ON FORUM DYNAMICS...

Relating to the post. A long time ago, a long-standing and still current member of this forum advised me - then a newbie - to respond only if i felt inclined and when i could relate to the post. that was how this person approached it. i considered it. i found it was a useful approach for me as well.

Simple hugs and smilies
. I see many responses which, quite frankly, i do not feel show much depth. i am not judging there to be a lot or a little depth; i am simply saying that in many posts i see, it is not apparent, so i would venture that at least some are fairly superficial. now a superficial smiley face or hugs might make someone feel better, but it would make me feel like doo-doo to make a post like that. Others are not like me and may not feel like doo-doo when issuing a smiley face or hugs, even if there is not much depth or understanding... there may be just enough that they go ahead and say, this person needs a smiley face, and fire one off. And the attention alone may do the recipient a lot of good. But not everyone posts this way, and it is not a better or worse way to do things. Each poster/responder needs to be comfortable with his/her degree of depth.

Responding to none, to some - which? or to all. I used to be very cautious about responding to "priority threads" until i found that sometimes, when i was overwhelmed by time, emotional, or other personal issues, i simply could not handle more than so many... and so as not to be unfair to any one, would defer ALL POSTING. I no longer do this. I grab stuff not quite at random, but i respond to what i can respond to, at any one time, and that is it, period. Anyone is free to judge me negatively for my posting style/ethic. It is just what it is. It is necessary for me. It leaves me air to breathe.

It uses the oxygen mask principle - when flying - if the cabin pressure drops, an oxygen mask will be lowered from the compartment over your heads. Place the oxygen mask over your head and breathe normally. Always apply your own oxygen mask before assisting children or disabled passengers.

The reason for this is if you choke to death while trying to get a mask over a struggling 2 year-old, both you AND the two year old will die. Once you have your mask on, you have the time, the air, and hence the forces necessary, to restrain the two year old if necessary, ask for additional help. In order to help others, we must first be in reasonable shape ourselves.

Expressing need... and hearing need. Several years ago, had this been my thread, i might have felt pretty rejected by the lack of responses early on. It was a frequent problem for me. In discussing the issue privately with another forum member, i was also told that i had a way of sounding very nonchalant about things. (This was an observation explicitly about me; nonchalant is not a word i would use to describe this thread.) I noticed others would say very explicit things like "i need your help guys." Well, i had/have a hard time saying such things, especially over and over.

Another thing i noticed myself was that, whereas i would often let my own "needy" threads drop in dejected abandon... others who had "needy" threads would keep posting to their OWN threads, and they would then get replies while my threads kept sinking. This difference in posting style/frequency alone can make it or break it as far as getting responses.

Anyway, to sum up these two factors from my newbie days... 1) while *I* thought my posts expressed need, *others* seemed not to hear the need. The expression of need does not guarantee that it will be heard. How it is done comes into play. 2) i myself noticed objective differences in my posting style/frequency vs. that of others, differences which easily explained the relative difference in number responses received by others as opposed to by me... even when i felt horrid.

These were my experiences. I offer them as food for thought.

......


Barbara

With regard to your Pity Party thread, I shall tell you - i saw your first post, but not the second. I would have most likely responded to the second, but i did not open the thread again until now. I did not respond to the first because i could not relate to it but also did not interpret it as a cry for help. I didn't know what to say. It didn't even sound like you needed a smiley face ... i would not have been sure what face to put there... i just didn't get it. I don't feel guilty for that. It is just how it is. We don't all "get things" all the time.

As for urgencies there have been a few on the forum, including of medical character. I have yet to reply to a PM - of medical character. If i were up and on the ball with my PM's, that would be the first one to get sent. I'm not. Nor am i up and on the ball with emails. I have been IMing some and it breaks me almost every time. Now, with the work application pending, things are even tighter for me.

I have not posted about my "issues" lately, excepting the respiratory ones. That is not to say i don't have any. I do. I just don't feel like sharing. But one should not assume that just because i don't share, and i have fairly upbeat posts, that i am 100% ok on top of the world. My own oxygen mask... has a loose elastic, you could say... i have to watch myself.

I would have responded to your second message, had i seen it, because you do sound so down, even though I still I do not "hear" that one as a cry for help. However, due to the nature of the first post, and my total inability to relate to it, i did not visit the thread again... until now.

I hope you will consider the possibility that others too may not have realized how much you needed our support/responses - they may not have "heard it" in your post.

I hope you will not judge my haphazard participation, or in some way reflect it on yourself. it reflects only my own struggle with life right now.

I also want to point out that many supportive members are away:
Donna is out for surgery.
Nikko is out with back pain and upcoming surgery.
DiMarie is AWOL not sure where she is.
Pamster as best i know is working on her writing.
BJ is AWOL and last we know in a great deal of pain and post-op therapy.
Abbie was in the pit but last heard seemed in a mixed mood (worrisome!)

Except for the last, none are bipolar issues - but their threads were not chit-chat either.

Please read Bizi's Toltec thread. It gives some good insights.

Sorry for the long post. I hope to have clarified some things and perhaps lightened how you might feel about the forum's recent engagement with you in your reaching out thread.

I do hope you feel better soon. It would be good if you would share more of how you are... and as you mention bipolar... bipolar-wise too. Have you talked to your pdoc about meds... perhaps an adjustment is necessary? Anniversaries of grief can warrant a short term treatment on ADs sometimes it can help. (now you just know i had to go and say SOMETHING pharmaceutical, right? And I'm not even a Pfizer rep! )

Anyway, if you keep posting, I will check in on you, ok?

~ waves ~

Last edited by waves; 02-09-2009 at 05:57 AM.
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Old 02-09-2009, 10:23 AM #12
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Red face

Dear Barbara,
Since you have been posting for so long you must realize that some of us have been posting for 10 years and more.
It takes a long time to create friendships.
As far as the chit chat.
This is like a family.
WE care about each other.
Being bipolar is not simply about the disorder.
It effects everything that I do.
WE talk about our lives and how we are doing.
People share as much or as little based upon their comfort level.
Not that long ago I was sharing way too much information because my meds were out of whack and needed an increase due to mania.
The meds take a while to work.
knowing what is wrong with us and doing something to help empowers us.
I have many faults and am trying new things to help myself.
I share these things with others in hopes that I might give encouragement to others to try new things as well...to try to better ourselves...to deal with our issues.
I now have hope that my life will be better if I work at it.
I can't be passive in this process.
Feeling empowered is a very important aspect that I think
we all strive for.
This leaves us not being a victim...which can make us feel helpless.
Our feelings are ours to experience...how we deal with those feelings takes practice....how we react is something that we can control.
When I was manic, I could not control my actions.
I hope this helps in some way, I don't mean to offend you.
beth
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haldol 5mg 2x a day
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I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 02-09-2009, 12:41 PM #13
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Quote:
Originally Posted by Mari View Post
I'm very sorry that we (the board) let you down when you were in need. We are human.
You could give us another try if / when you are up to it.

Also, keep in mind that some people post when they are hurting. Others hide when they are hurting. Some mostly post when they are doing well. There are many posting styles / approaches. The board can accommodate everyone I hope.


Mari
Mari said it well.

We are all human and can and do reply when able. There is no time line on this. No rules. There are times that a person isn't sure what to reply, so not, can be the best thing. Computer and time constraints.

Barbara, your last sentence in your first post was this:

Writing this is making me feel better. The pity party is over and I am going to toughen up on society. I will find my way some day. I've still got that hope to cope it seems.

It gives the impression that you needed to post, to vent and you felt better.

Posts that end this way don't always get many replies.

One thing that does help in situations where you aren't sure how to reply, is to hit the Thank You button, to let the person know you read the post. It offers support. The person knows they were heard.

The BP forum is very supportive forum. It is full of a wealth of information.

In the end Barbara, it is your choice to continue to post here or not. From the replies, your friends want you to remain. We all do.

We wish you well, no matter what you decide.

Curious
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Old 02-09-2009, 06:30 PM #14
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Curious, I will stay but I'm not going to put myself out there again.

Last edited by Curious; 02-09-2009 at 06:52 PM. Reason: Per NT Guidelines.
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Old 02-09-2009, 06:34 PM #15
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Beth, you could never offend me.

barbara
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Old 02-10-2009, 04:01 AM #16
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Wink Barbara

Just know that you are welcome here. Post as little or as much as *you* feel comfortable doing. Do try to let us know if you are in need, somehow. maybe with icons. i don't know. i wish we had not let you down but this happens. i know how terrible it feels because i have felt let down before.

You seem to have a very strong sense of fairness, which is a good quality. But it can mess with us if we start feeling "jipped." It is hard to give without expectation of return... usually there is return anyway and we may not notice we have expectations... until they are unmet... when returns are scarce, we feel let down badly. and when one is depressed, feeling let down is magnified... that is only natural.

i hope you are realizing through our posting that we do care and did not catch on to how bad you were feeling.

also keep in mind, in terms of the give-take aspect of support on the forum...

Life is seldom 50-50, but even less so on a constant basis. circumstances tip the scales one way... and then other... without any schedule or quantification. Things fluctuate randomly like the seasons... summer may be hotter than usual, while winter is mild... then another year, you get a hot hot summer and a cold cold winter, or a mild summer and a freeze-your-buttoff winter....

attention is like that. the forum is like that.

anyway, we understand you are suffering, NOW, at least. in my last post i think i asked if you had considered the possibility of a med tweak... have you?

i wish you well. keep us posted.

~ waves ~
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Old 02-10-2009, 08:59 AM #17
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I also want to remind everyone not to take into account the number of Views on any thread.

Views does not mean that many people have read your post/thread.

Google, Yahoo and every single search engine out there has what are called bots or spiders. They crawl along the internet and store information. That is how people find us in searches of topics.

Each time those bots/spiders are around, they count as a view. Over and over.

Each time everyone checks for replies, it counts as a view.

The numbers can rack and up, compared to the number of posts.

It's just a number. It has no real meaning.
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Old 02-10-2009, 05:38 PM #18
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Hey you all! I am here!!!!!
Family crisies and health things going on. I read, run low on my get up and go, as it got up and went.....

BF,
Where there is a "home" and "family" we can sometimes miss ques on what is going on and a post goes unopened. But, remember we are family and this is your home, just shout louder if we don't hear the door bell. If I am not here, I am next door
HUGS
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