Epilepsy For support and discussion about Epilepsy and Seizure Disorders.


advertisement
Reply
 
Thread Tools Display Modes
Old 04-25-2013, 01:28 PM #1
hissleepy hissleepy is offline
New Member
 
Join Date: Apr 2013
Posts: 2
10 yr Member
hissleepy hissleepy is offline
New Member
 
Join Date: Apr 2013
Posts: 2
10 yr Member
Default Possible Seizures?? Help need answers

Ok for the past 4 years I have these what I call "episodes" where I will randomly get a sense of deja vue that is accompanied by a "nervous" stomach, flushing and increased heart rate. They last maybe 15-20 seconds and if I did not tell you it was happening you would never know as I can function normally the entire time. It will happen several times a day for a period of about a week and then I can go for weeks with nothing. They are physically and emotionally draining and after it happens I am anxious because I fear anouther will happen. I am tired of having these. The research I have done seems to suggest temporal lobe seizures. Anyubody else have these or something similar?
hissleepy is offline   Reply With QuoteReply With Quote

advertisement
Old 04-25-2013, 03:44 PM #2
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Default

Hi hissleepy,

What you are describing sounds like a possible simple partial sz. also known as a aura sz. This happens to me often I will get a nervous feeling in my stomach and then a few seconds later I will start to blank out having an absence sz. or a complex partial sz. I've had sz. for 41 yrs. and the best thing for you to do is to see a neuro or Epileptologist and get some tests done like an e.e.g. or MRI to find out if anything else is going on. Start keeping track on a calendar and write down each time you may be possibly be having a sz. and write down the description of the sz. by doing this the neuro or Epileptologist you see may see a pattern in the possible sz. I found that lack of sleep and stress are the 2 main things that can trigger sz. for a person as well as hormones changing. Try taking vitamin B12 1000 mcg. once a day and see if that helps you. I know it helps me a lot because the vitamin B12 helps calm my nerves. I wish you the best of luck and May God Bless You!
Sue
Porkette is offline   Reply With QuoteReply With Quote
Old 04-25-2013, 03:49 PM #3
hissleepy hissleepy is offline
New Member
 
Join Date: Apr 2013
Posts: 2
10 yr Member
hissleepy hissleepy is offline
New Member
 
Join Date: Apr 2013
Posts: 2
10 yr Member
Default

Thank you for your response I am currently seeing a neuro doctor and had a EEG which of course I did not have an episode during, so it was normal. I have to have a sleep deprived EEG soon so hopefully it will give me some answers. I just wanted to know if anyone else experienced this as well. I do try to record them and how many I have a day etc. I am just so tired of it happening and being anxious waiting for it to happen. I am glad I found a place to share this with thanks again

Quote:
Originally Posted by Porkette View Post
Hi hissleepy,

What you are describing sounds like a possible simple partial sz. also known as a aura sz. This happens to me often I will get a nervous feeling in my stomach and then a few seconds later I will start to blank out having an absence sz. or a complex partial sz. I've had sz. for 41 yrs. and the best thing for you to do is to see a neuro or Epileptologist and get some tests done like an e.e.g. or MRI to find out if anything else is going on. Start keeping track on a calendar and write down each time you may be possibly be having a sz. and write down the description of the sz. by doing this the neuro or Epileptologist you see may see a pattern in the possible sz. I found that lack of sleep and stress are the 2 main things that can trigger sz. for a person as well as hormones changing. Try taking vitamin B12 1000 mcg. once a day and see if that helps you. I know it helps me a lot because the vitamin B12 helps calm my nerves. I wish you the best of luck and May God Bless You!
Sue
hissleepy is offline   Reply With QuoteReply With Quote
Old 04-26-2013, 12:05 AM #4
Darlene's Avatar
Darlene Darlene is offline
Legendary
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Wink Nice to meet you!!

hissleepy,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. Sad to hear what you are going through.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
Old 04-26-2013, 06:10 PM #5
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Default

Hi hissleepy,

Over the yrs. I've had many e.e.g.'s done and it showed only activity on the right temporal lobe but when I had brain surgery done to help reduce my sz. my neurosurgeon also found damage on the left temporal lobe. Sometimes brain damage can be to deep in the brain for an e.e.g. or other tests to show anything.
I'm glad you are keeping track of your sz. One thing you might want to do is take note if you are on your computer, strobe lights or any type of bright lights when the sz. happens this means that you may be photosensitive meaning that certain colors or brightness of lights will trigger a sz. I found out awhile ago that cell phones trigger sz. for me if a lot of people are using the cell phone at the same time I often have a sz. Another thing to keep your eye on is to see if there is a low pressure in the weather when you have any sz. I have seen a pattern in my sz. and sometime one or two days before it rains or snows I will have a sz. and my Epileptologist told me that when a low pressure comes in it makes the air more heavy and humid which in turn can affect a persons hormones and trigger sz. for that person. I wish you only the best of luck and May God Bless You!
Sue
Porkette is offline   Reply With QuoteReply With Quote
Old 05-03-2013, 06:22 PM #6
Jennybristol Jennybristol is offline
New Member
 
Join Date: May 2013
Posts: 1
10 yr Member
Jennybristol Jennybristol is offline
New Member
 
Join Date: May 2013
Posts: 1
10 yr Member
Smile Thank- you all

hello, I just stumbled on this site and found it extremely helpful! I had my first seizure about a year ago, And it left me in a dejavu, dreamy state for a week or so.. I suffered severe back and rib pain for almost three months. Then, just two weeks ago I had a second seizure. I don't remember anything during these episodes, I just find myself confused and sore. Both were in the middle of the night, while sleeping. Then, in the wee hours this morning, again during sleep, I has my third seizure. My husband
called 911 Andy I don't even remember them being here. When I came out of it I didn't even know my name for a few minutes. It took about ten or fifteen to figure out what day and time it was, and that I had to work. I feel better now, except back and rib pain, but I am thankful for all the helpful posts here. I just stopped menstruating in January, so I'm hoping these are due to menopause. I was beat up badly a few years ago and sure hope I didn't sustain serious head injuries. another cause I have been hearing is stopping drinking alcohol, which I recently did. Hmmm? Anymore good advice out there. I'm going to the doctor tomorrow.
Thanks everyone and have a nice day!
Jennybristol is offline   Reply With QuoteReply With Quote
Old 05-04-2013, 12:59 AM #7
Darlene's Avatar
Darlene Darlene is offline
Legendary
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Wink Nice to meet you!!

Jenny,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sorry to hear what you are going through at this time. Then you to go on with these signs check with an Epileptologist (Dr. specializing in epilepsy) at an Epilepsy Center which are usually at University or large hospitals. I was lucky to go to one, there it didn't cost as much, because of the credit of the medicine because it was a school of medicine.

Your need to cut out the carbs and starch foods because they will trigger seizures. Start keeping track of your seizures by writing them down on a calendar, by doing this the Dr., he may see a pattern in your seizures. Get yourself on vitamin B12 500 mcg. once a day. Also avoid very bright light, like at a theater, the flashing can bring on a seizure. Just close you eyes and turn your head at that time.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
Old 05-04-2013, 05:52 AM #8
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Default

Quote:
Originally Posted by Jennybristol View Post
hello, I just stumbled on this site and found it extremely helpful! I had my first seizure about a year ago, And it left me in a dejavu, dreamy state for a week or so.. I suffered severe back and rib pain for almost three months. Then, just two weeks ago I had a second seizure. I don't remember anything during these episodes, I just find myself confused and sore. Both were in the middle of the night, while sleeping. Then, in the wee hours this morning, again during sleep, I has my third seizure. My husband
called 911 Andy I don't even remember them being here. When I came out of it I didn't even know my name for a few minutes. It took about ten or fifteen to figure out what day and time it was, and that I had to work. I feel better now, except back and rib pain, but I am thankful for all the helpful posts here. I just stopped menstruating in January, so I'm hoping these are due to menopause. I was beat up badly a few years ago and sure hope I didn't sustain serious head injuries. another cause I have been hearing is stopping drinking alcohol, which I recently did. Hmmm? Anymore good advice out there. I'm going to the doctor tomorrow.
Thanks everyone and have a nice day!
Hi Jenny,
Welcome to the forum! You might want to look into having a sleep study done. I had one done a couple of weeks ago and the Dr. found I was having sz. in my sleep but I never realized it.
When I woman goes through her change it can sometimes increase or decrease the sz. it all depends on the area of the brain that's triggering the sz. I know if it's in the temporal lobe than there's a possibility that the sz. can increase do to hormonal changes.
I don't mean to be rude but alcohol can also cause epilepsy if a person has drank for to many years because it will destroy the brain cells. Also when a person stops drinking they can go through an alcohol withdraw that will sometimes trigger sz. Of course any type of abuse physical or emotional can surely trigger sz.
My advice to you is to see a Epileptologist and have some tests done to find out what's causing your sz. The Epileptologist can also help you with your back. I have 2 herniated discs and I found walking one of the best things to help my back. I also take vitamin B12 which calms the nerves so it reduces my sz. and also helps my back pain. I wish you the best of luck and May God Bless You!

Sue
Porkette is offline   Reply With QuoteReply With Quote
Old 05-14-2013, 07:45 PM #9
amycompton's Avatar
amycompton amycompton is offline
Junior Member
 
Join Date: May 2013
Location: Duluth, Ga
Posts: 14
10 yr Member
amycompton amycompton is offline
Junior Member
amycompton's Avatar
 
Join Date: May 2013
Location: Duluth, Ga
Posts: 14
10 yr Member
Default Partial seizures

Quote:
Originally Posted by hissleepy View Post
Ok for the past 4 years I have these what I call "episodes" where I will randomly get a sense of deja vue that is accompanied by a "nervous" stomach, flushing and increased heart rate. They last maybe 15-20 seconds and if I did not tell you it was happening you would never know as I can function normally the entire time. It will happen several times a day for a period of about a week and then I can go for weeks with nothing. They are physically and emotionally draining and after it happens I am anxious because I fear anouther will happen. I am tired of having these. The research I have done seems to suggest temporal lobe seizures. Anyubody else have these or something similar?
I was diagnosed with what my Neuro called partial seizures and said they can happen hundreds of times a day. I had to wear a 24 EEG thing (halter monitor?) but they found nothing remarkable. It was beyond frustrating, but don't get discouraged by those because they have to catch those on your bad days when your having those episodes... That's what I was told at least
amycompton is offline   Reply With QuoteReply With Quote
Old 05-14-2013, 09:36 PM #10
Wren's Avatar
Wren Wren is offline
Senior Member
 
Join Date: Apr 2007
Posts: 1,414
15 yr Member
Wren Wren is offline
Senior Member
Wren's Avatar
 
Join Date: Apr 2007
Posts: 1,414
15 yr Member
Default

I had steady partial complex seizures for 15 years and every sort of EEG over and over. Not one ever showed any sort of seizure.
Then, an MRI showed a lesion in left temporal lobe so I went into hospital for VEEG....... finally it worked.
__________________
Enemies ..... Don't see them as bad. See them as broken.
Wren is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
still looking for answers khakis Peripheral Neuropathy 8 10-17-2012 07:42 AM
Looking For Answers Timothy79 Chronic Pain 2 10-16-2012 07:56 PM
Was it really PCS? Keep looking for answers!!! jmoran Traumatic Brain Injury and Post Concussion Syndrome 3 09-22-2010 10:05 AM
Looking for some answers BobbyB ALS News & Research 0 06-04-2008 05:09 PM
we need ANSWERS !!!!!!!!! happy face Spinal Disorders & Back Pain 3 09-18-2007 12:16 AM


All times are GMT -5. The time now is 03:00 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.